Hi AK, thanks for posting about ur experience, it really helps others!! After all that u have been thru, u r no wuss xx
Can I please ask how the seroma felt?. I had my single mx 3 weeks ago and I have a soft swelling above the reconstruction boob which I have had since day 4 after op, I’m massaging but it remains. Also discoved 3 days ago a hard lump under boob close to chest wall which i think might be fat necrosis…according to Dr. Google…??
Hi Otter, hows work going? I hope you are easing back gently.
Just curious, r u doing a phased return to work?
Hi Lesley ? I’m so glad they moved u, its disgusting that the sheets weren’t clean…yuck!!!
Hi Carole, I hope the rads appointment goes well. X
Can I please ask how long it took for your mx results? Its been over 3 weeks since my op and I’m worried about the results (clear margins or not!)
All I can say today is aarrhh.
Been for rads planning and now home but achieved nothing as the CT scanner has overheated and they cannot fix it. New appointment made for Tuesday next week with start date planned for 29th May.
fmb I don’t know how helpful I can be as I was told three week post surgery that all was good, even had it in writing, to then be told 2 weeks after that, that all wasn’t good and that there was a trace in the removed tissue. I am sure you will be fine but try and remain patient, I wouldn’t want you to go through the rollercoaster of emotions me and my family went through. Even today’s problem has neatly pushed my other half over the edge.
Well time to turn in the laptop and see what the work world is up to.
Positive vibes to all on this lovely sunny day.
Xx
Just a quick message - saw my consultant today for mammogram results. All clear - whoop whoop ?? just happened to ask if my port would set off airport security & here I am in hospital waiting to go & have my port removed under sedation!! They are fitting me in at the end ?
Xxx
Well done JC on both counts, must admit I forgot about your port … assumed it was long gone!
Good advice AK - yes changed rooms and it was bright and sparkly clean.
Home again now and knackered!!
Anadan - how are you
Xx
Another sunny day here and a day to be positive and up beat ?
First positive of the day is that I have now lost 8lbs and only have 6lbs to go to be back to pre-chemo weight, so may treat myself to cake today ??
Have a lovely day ladies you all deserve it ???
Carole - that’s great … I had lost 11lbs, but put 2 back on over the last 2 days … but that was expected … I was very badly behaved!!
Lovely sunny day here so I’m going to try and gets some gentle rays … slowly reintroduce my skin to the sunshine!
Anadan - hope you are ok and on the right side of your op now.
Take cate everyone xx
Lesley what were you told about rads and sun I was told to keep that side out if the sun for a year, and like you I am a sun worshiper too x
?? tried mine on a few days ago and was quite impressed that all still looked okay for saying what changes that have happened.
I will soon find out exactly which area gets blasted and will work out what’s best, understand what you mean by treatment area for you, my original lump was at the exterior side.
And yes total shade and sackcloth was already my advice
Xx
Thanks AK, I will definitely go and see the breast centre nurses when I go in for my herceptin jab next week so they can have a look xx
Hi Anadan - how are you doing? Sending postive thoughts and hugs ur way xx
Yeah JC ?? happy u got the all clear for ur mammogram xx
Good evening ladies, sorry I’ve not been about for love and support but been at my work pretending life is normal before my rads start. Started work yesterday at lunch time and finished tonight at 5. Disco last night for 80 kids and an overnight stay and I’ve survived!!!
Well done Carole and Otter for your first week back. Otter hope there are some friends lurking in the new team xxx
Carole well done on the weight loss and for still looking shamazing in a bikini xxx
Fmb my fluid filled foobie started to soften yesterday. Op was end of march, wash out was middle of April. As the swelling went down I had a little hard lump appear that surgeon said was scar tissue
which should eventually break down. So maybe not fat necrosis???
Annakarenina well done for FINALLY seeking help! Hopefully lesson learnt for all of us! Thank you xxx
Lesley boke to those sheets and well done for noticing. I usually just jump in! Probabally slept in hundreds of plucked and tuckeds!!!
Hair dye arrived and is not so much extreme blonde but has given my hair a well needed lift ?
My sun advice was to stay covered so I’ve bought a huge sun/rain hat and have been applying factor 30 to my face every day. Please send up some sun 
Abadan sending love 
and hoping that your ok and getting spoiled xxx
Hi all! Greetings from Sydney. Good to hear that you’re getting a bit of sunshine over there.
I finally got a time for rads – mid-morning, every day for 5 weeks, which is good because I miss the traffic but bad because it blows the whole morning. Oh well. I spent this week doing the rush-around-before-treatment thing. Can I ask, how much pain have people had, and for how long, after a double mx? I am still getting the tits-on-fire feeling, five weeks on. I guess it’s a very large wound inside. And I’m still wiped out just from taking the dog for a walk. I am in awe of those of you who have gone back to work. (Feeling lucky to work from home).
Hope everyone is taking care of themselves. It’s Mothers Day tomorrow in Australia so I’m expecting a cup of tea in bed!
Cheers
HF
xxx
Hello everyone,
HF, I am 3.5 weeks on from double Mx/node clearance and can definitely still feel it with random sensations that seem to come and go with no rhyme nor reason. Much worse when I was carrying 1250 ml of gungey fluid on my chest. I think healing properly takes time and my sense is that it is very easy to think it will be linear and consistent progress, but it is much more up and down/dynamic than we’d wish. Hang in there and listen to your body. I am fortunate that my work is cerebral and not physical, but I still find it tiring and am taking it flexibly, working at home/shorter days when I need to do so. Be kind to yourself and go gently, my friend.
Otter, well done on your busy week. I am so pleased you have support, but do take it steady. We none of us want to undo the healing we’ve done together or deny what we’ve gone through and work will still be there, hungry for your wisdom, when you’re ready to do it full-time. My experience is that managing boundaries and expectations is really hard when people see you in the building, but I have been working with a coach at ‘Working with Cancer’ throughout this pesky process and it has really helped me stay in work, but also protect myself a bit.
JC, great news about the mammogram. Thrilled for you. And FMB, equally good news you are getting the swelling and lumps/bumps checked out next week.
Lesley, rest up well after your battle with the sheets this week!
Anadan, we are still thinking of you and wishing you the very best of healing and recovery.
Love and happy weekend vibes to all. xx
Hi all
Having had my port removed under local anaesthetic with sedation followed by being hit with a summer head cold I now feel as if I am emerging and can catch up with everyone.
AK - how are you now?
Otter & Carole - how was your first week back at work? Hope you were able to relax over the weekend. Carole huge hugs to your other half, I think this journey is sometimes harder for them as they can feel helpless. Well done on your weight loss
Lesley - your hotel room sounds horrid. Glad they changed the room for you. Well done on your weight loss too
Sending you all ??? and wishing you all a safe and healthy week xxx
Welcome to Monday! (I’m always a bit ahead of the game here…)
Thank you AK, for reminding me that it’s a zig zag line to feeling better. I just got back from what should have been my first radio session and my right boob wound is all yucky, so it’s antibiotics and a week’s delay for me. Boohoo. I’m trying to embrace it. I know the (mostly self-inflicted) pressure to feel better / normal is not helpful. I’m thinking it might be time to book into a Looking good seminar – I think they’re the same here – to just spend a day having a bit of fun with some other cancer ladies.
Hope you all had a good weekend and don’t work too hard!
HF
xx
Good morning ladies
On my commuter train in to London and starting to wonder how I ever did this week in week out. Again just a short week as rearrange rads planning is tomorrow and days holidays on Thursday to try and sort out our allotment. OH is off all week doing major weed and overall, and I’m joining him Thursday for planting.
Hope this week goes well for you at work Otter.
JC hope you are now feeling better and cold has nearly gone.
HF hope the antibiotics do the trick and you can get those rads going.
Bythesea how’s foob going I am still quite swollen but I think it’s going down, it’s also quite hard. Just want to compare notes if that’s okay.
Anadan hope you are doing okay, sending healing vibes.
Have a lovely day ladies xx
Morning all
lovely to read all of the posts from over the weekend… update from me is as follows
Rads finished 2 weeks ago
Under boob ‘rad burn’ all cleared up and you can’t see there was anything there … I would question why you are looking under my boob … but I digress!
‘rad burn’ over scar area … looks like a shark bite!! HF might contradict me on that, but I think it does anyway!! lots of very red skin which was broken and is now healing, but still lots of open, weeping skin. In the end I couldn’t be bothered arguing with the HCP about prescriptions so I have purchased all my own dressings - I’ve spent just under £100 so far, but I see it that it has bought me serenity rather than agg as I argue with doctors and nurses!
Weight has stagnated over the last 5 days - but I have been a bit naughty, so to be expected
Hair is a steady number 2 all over, still very Sinead O’Connor’ish but I will be going without wigs now unless presenting or to new clients who dont know my current circumstances.
I’m not feeling as tired now, as long as I get one good lie in a week, that seems to be working for me.
Concentration is back up and I am now devouring books like its going out of fashion - nothing very high brow, but I love it!
My subconcious has been busy at work and I have cleared my house and garage out from top to bottom - if it’s not been used in the last 12 months, it is gone. Majority of stuff I’m selling either on eBay or FB MarketPlace. I’ve never used the MarketPlace before but I would recommend it - very easy … so far!
I am definitely clearing the decks for my new post cancer life!
OH continues to amaze me - so loving and supportive. Gynae issues continue, I have tests next week and the week after and my Onc has given the green light for topical hormone solutions in the short term to try and improve things - one of the advantages of being TN … I knew there had to be one somewhere!
My mum’s health continues to be a worry, she is being so fobbed off my her GPs - and she has categorically told me not to get involved . I really want to phone the practice and speak to the practice manager, not to kick up a fuss, but just to let them know my concerns… any advice ladies??? Mum is 250miles so I can’t just pop in with her when she is next due to go 
Busy week ahead for me - Epsom Tuesday, Olympia Wednesday and Barnsley Thursday … clocking up the airmiles!
Sending lots of love and hugs to Anadan - hope you are ok - let us know how you are doing xx
me again!!
Had a lovely blowy walk around the village … that’s when I do quite a bit of my thinking … anyway…
I have made a group on facebook - Nov 18 Chemo girls - I’ve set it up as a closed group at the moment, so anyone on FB can see it and who the members are but not the posts.
My thinking behind setting it up, is for any of us that want to stay in touch more personally than this board??? For me, I feel as if I have made friends for life thru this journey, but I’m not sure if I want to have to come to BCC to talk to you … does any of this make sense??
Anyhow, I have set the group up, if you fancy joining go for it, if it’s not your bag, no worries.
If it works and we are all happy we can make it a secret group so no one can see posts or whos on the group. I am just conscious that this board is completely public as well.
?