November 2017 Chemo Starters

Hello my lovely friends ??

thank you for all your healing thoughts ? I felt them throughout this bumpy ride called surgery.

I’m at home now, feeling much better ? 

the op was on Tue morning, everuthing seemed ok, but on Tue night my left side felt really tight, blowing up and I felt like Hulk. They said I was bleeding internally, watched me over night and took me back to the theatre on Wed morning. I felt much better straight away (no more Hulk sensation in the chest) but due to the bleed my bloods were really low. It took them all day Wednesday to choose between blood transfusion or iron pills, eventually tjey put me on the pills. In the meantime the drain started leaking and we couldn’t find out from where; the stitches were intact, but whenever I moved it leaked so I had a huge surgical dressing applied on it and they let me go home on Friday night.

The brusing and swelling  from the op is horrendous. The district nurse who came to see me last night sent me to A&E because she was worried I was bleeding again. My chest, arms, back are purple. I’m even swelled up and bruised under my stomach, in the labia and groins. It’s going down my thighs today.  I had and appointment with th BN today, they took the drain out as it wasn’t working properly anyway and they said the docs must have thrown me off the table during op at least twice ? and that they haven’t seen anything like this before… The surgeon said, the body will slowly absorb everything, it’s just one of the possible things that might happen post op, and it happened to me. Luckily, I’m not in much pain anymore, it looks worse than it feels xx 

my pyjama bottoms are great ?:scissors: I still haven’t taken a picture but promise I’ll show you what I’ve made ?:scissors: 

I hope all is well with you, appointments, rads, work, holidays ? I’ll catch up with you soon xx

have a good afternoon xx

???

Lovely to have you back Anadan, I can’t imagine how you must be feeling after what you have been through.
Sending you all the healing thoughts and hugs possible. ???

Anadan, you are here but I am so sorry about the ordeal. You poor thing. I really hope you can heal in the comfort of your own home without the intrusion of hospital routines/noise etc. 

 

I am still in seroma land. Unfortunately, the release of the draining lasted only a few days and, as they warned me, the fluid is back in town. It is very irritating to end up with pretend breasts that are bigger than those that were removed (and not reconstructed). I had my radiotherapy consultation this afternoon and we need to settle on a size for the seroma so they can do (and stick to) the planning on Friday. It is like choosing a prosthesis size, but less fun.

 

Lesley, inspired idea about FB and it may be time, as I said in my PM to you, to reveal that I am not, in fact, a heroine from a Tolstoy novel…Can’t wait to see you all on there soon. Wishing your poor wounds swift healing and hope you begin to feel less sharkbitten very soon.

 

Otter and Carole, take it steady with the work routine - it is so tiring going back and we definitely need to be as kind to ourselves as we would be to others. 

 

HF, you poor thing. I am just finishing my antibiotics and they do the job, but it is not much fun, especially when it delays other treatment. Hang in there. 

 

JC, FMB: how are you both doing? xxx

Yay Anadan it’s good to hear from you ??? Sending healing vibes x
Lesley loved the run down and I’ve asked to join fb group x
Carole foobie is looking better! The top half tucked under the pec looks and feels good if not still a little swollen. The hammock half is hard and really soft in places. With hard bits of scar tissue that you can feel through the skin. I think it will eventually all feel soft and I’m hoping it will droop a little into tear drop shape but at the moment it’s a solid hump!
I just took it for a road cycle and so far so good. Feeling good ? :sunny:?

Thanks for the description Bythesea. Mine is harder at the top than at the bottom, but if I lean forward it in places feels quite soft. ? what would anyone think reading this.
All my scaring is underneath a no lumps or bumps. I am just hoping as the swelling goes down it softens up ?

Oh Anadan, you poor love. Sounds like they did the surgery then bounced you around the room like a squash ball. I hope you’re doing loads of resting up. And like AK said, don’t forget it’s not a straight line. You can feel terrific one day but it’s totally OK to feel a bit crap the next. My nurse friend told me that, in fact, it’s quite usual because when you feel great you push yourself, energy and movement-wise, more, then the next day the body pushes back and slows you down a bit. Two steps forward, one step back. 

 

Great idea for a FB page, Lesley. I’m not ready to say goodbye to you all. 

 

Hope everyone’s lumps and bumps are coming on fine. I’ve got cording too, but I gather that’s all reversible. In the end, I think my foobs are going to be rather more smooth and round than my original boobs. 

 

Spent yesterday dealing with eldest daughter who is having dizzy spells. A levels, mother with cancer, it’s all go! She was freaking out yesterday. Luckily my GP is fantastic and listened wisely to all her worries. We’ve now been referred to get an MRI which I hope will confirm what my instinct says, which is that it is hyperchondria + stress. 

 

(Hope you don’t mind me sharing that, but the effects of this whole boob job on the family just keep rippling out…)

 

Meanwhile, back to work (from home) for me. 

 

HF 

xx

Hi Lesley, FB page is a great idea, I’ve just sent a request so look out for a Fiona ? Good luck battling the M25, I hope traffic is kind to u x

Hi Anadan, welcome back ?
Gosh, u have been thru it this past week, sending you love and hugs and wishing for a speedy recovery xx

Its been 4 weeks since single mastectomy and reconstruction and I’m certainty moving around like my normal self with the odd twinge and tiredness that reminds me to slow it down.
Still no news on an appointment to discuss results so still hoping for clear margins and C cells have all gone.

I hope the ‘back to work’ gang are doing well, i woke up very stressed the other morning as i dreamt i was back at work and everyone was so relieved that I was piled high with work and no mention of me being out…it was weird. Work has been great and so supportive…in real life and not in dream ?? I will certainly miss eating dinner at 5pm with the kids when I go back.

I hope everyones recovery goes well, we thought battling chemo would be the hardest…how little we knew!!
Hope to c u on FB xx

Today the CT scanner was working so tats done and ready to go ? ?

Great news Carole … you’ll be by the sea before you know it

xx

HR, it’s so true what you’ve said, we must be kind to ourselves. I feel alright today, the weather is fantastic, so I went out to clean the garage… but only the little things :slight_smile:  Lesley does much more then me ??

well, the drain is out and I can feel the fluids building up. Is this normal? When I touch my ‘breast’ / swollen  chest it has like a ripple effect, little waves. It’s not red or painful or anything. Shall I just keep an eye on it? 

Pathology results next Tuesday … 

 

I would love to join you on FB, but I don’t know how to find you :frowning:  I want to be in touch, although I know I can be awful and disappear for ages; you’re always in my thoughts though, and I would have never got this far without you, especially because my family / relationship situation is crap and I’m on my own in this sh** 

 

???

Found you ? thank you, Lesley xx why is it nov 18? Not that it matters, but I had to ask my daughter a stupid question: ‘which year is it now?’ ?? you can imagine her face ?? we strated nov 17, didn’t we? 

Don’t worry about it ? it really doesn’t matter but  you got me thinking there ???

Anadan my lovely you should ring up your bc nurse and have a quick word about that just in case anything might need draining off :heart::heart::heart: Keep yourself safe ???best to make a call to be sure. Sorry to mother hen as usual, but I’ve always been about keeping as safe as you all can on this journey of treatments my lovely ??:sparkles::sparkles:Shi xx

That’s what I did, Shi today xx had 200mls drained off and feeling better now xx bloods still low, but growing slowly, this explains why I feel so tired x

Have a nice sunny afternoon xx

Anadan ???so glad you’ve kept yourself safe darling that’s music to my :sparkles::sparkles::sparkles::sparkles: :heart::heart::heart::heart:To all you ???brilliant Nov ladies ??:sparkles::sparkles::sparkles:Shi xx

Hi Harryfiddler
How are you doing, hope everything is going to plan.
I hope that your daughter is okay and that her A levels are going okay. My son is 16 and doing his GCSEs as we go through this, not great timing
Just realised it is all very quite here as we have run off to FB. Please join us as we miss our Australian ray of sunshine.
Hope to see you soon on the other side
Carole x

Yay I miss her too xxx