November 2023 radiotherapy starters

Hi @louise67 This sounds really tough to be waiting so long. I feel for you. There’s nothing selfish about wanting your treatment sorted.
I’m lucky to have just finished my 5 days of radiotherapy having been diagnosed in July and surgery in Sept. It was not too bad, just a bit achey on my 68-yr old shoulders! Am awaiting the sunburn feeling & tiredness symptoms to kick in…
All’s I’d say is to focus as much as you can on the positives, that your lumpectomy will have removed the tumour, that your lymph nodes were clear (hurray!), that your Oncotype score is low, and that the Letrazole will be working its magic to inhibit any recurrence. Radiotherapy will be an added protection, and I know how frustrating the delay must be, but meantime you are doing so well to have got this far, you’ve done all the right things, and every day is yours to live however you want. Be your own hero, let the tears come when they need to, and the laughter when it can. Sending love x

2 Likes

Hi ladies, how everyone is doing?
I am wondering if you are driving to radiotherapy and how tired are you feeling if you are driving?
Does anyone start radiotherapy at the same time with tamoxifen hormone and Zoladex injection? How you feeling?
Have a lovely weekend :hugs::gift_heart:

2 Likes

Session 1 of 5 today … was quicker than I expected… and not much waiting around … fingers crossed for the rest of the week

4 Likes

All my best and good luck with the treatment,
I am going tomorrow for scan and markers, any tips will be helpful, should I prepare for?
Big :hugs:

2 Likes

The room was quite chilly … something warm on your feet… moisturize regular

2 Likes

Hello all,

I recently had 5 days of radio with the last one 12 days ago.

I’ve felt quite tired tired this week with a lot of achey joints and some insomnia.

Has anyone else found this? Trying to work out if it’s radio or tamoxifen related.

2 Likes

Hello,

I am on day 12 after radio, which was for 5 days. Last week was worse for the fatigue especially in the afternoons. But it is not as bad this week. I still get aches and pains which I think the Letrozole tablets are causing. I have just started getting the sort of sun burn feeling and itchiness now. I am using aloe Vera gel which really helps ease it. Have been putting lots of Aveeno moisturiser on 2-3 times daily as well. Take care x

3 Likes

Hi sister radio gals! I finished 5 days of radiotherapy 6 days ago. Am mostly feeling ok, not really had sunburn, more just a redness, a bit of itchiness and an internal achey-ness similar to post-surgery. And although a bit more tired than usual I wouldn’t call it exhaustion. I’m lucky to be retired and not too many commitments apart from my 3 yr old grandson once a week! So, unless it all kicks in soon, maybe I’m one of the lucky ones to not have too many side effects. I hope everyone is getting through it ok and taking good care of yourselves. xx

2 Likes

My chair has been delayed until December due to the cough I won’t be starting radiotherapy yet, I will be following your posts to get ready, thank you all for sharing this experience I advise you that any adverse reaction to discuss with the radiotherapy team, I am sure they have seen all the adverse reactions of radiotherapy and could help with .I wish you easy treatment, and I hug you dearly :gift_heart::revolving_hearts::muscle:I’m curious how you feel that day and how you travel, I have to go about 80 miles to the hospital, I’m afraid to drive, Also, what creams are recommended for you to use after radiotherapy. I asked the radiation therapy nurse and she didn’t recommend anything, saying that we’ll see when it’s needed, and that you shouldn’t use anything until it won’t be necessary :scream:All my best to all​:cherry_blossom::sparkling_heart::heavy_heart_exclamation::gift_heart::revolving_hearts::muscle:

2 Likes

I am sorry your radiotherapy has been delayed. I hope the cough clears soon and you can get started. It is great when you know it is all over and done with. You have a long way to travel. I only drove to mine once and then took the buses. The roads around the hospital were all road works and took forever to get there, this just stressed me out even more. Taking the bus was not too bad, but I did feel very light headed and a bit nauseous after the treatment, but that could have been just anxiety or the travelling. I wish you well with your treatment, sending hugs xx

2 Likes

Thank you for your reply, means a lot :heart:
Unfortunately I don’t like to drive and I always have carsickness on bus, I will check with the train.
Yes my cough it made me very weak and discouraged, now I’m afraid that the radiation will affect the lungs again, I hope I will be fine and my body will hold on. Take care of yourself I hug you :hugs::heavy_heart_exclamation::gift_heart:

1 Like

That’s interesting. We all seem different!

My skin seems a lot better now. They gave me flamigel which has been amazing but I started to add aveeno blue too as it’s not very moisturising.

My aches could be hormonal, hard to tell. ive definitely had shoulder stiffness as that side is noticeably stiffer today so it it may have been that too.

I’ve felt a lot brighter today and have been able to exercise (rowing machine) for 30 mins quite hard. Hoping it continues! Last few days I’ve had to stay in bed.

3 Likes

Hi all, I hope your radio treatment is going well for those who have started and best wishes to those who are waiting. I know this is not related to the radiotherapy, but the group have been so supportive. My poor youngest sister has just been told her cancer has spread and is stage 4 now and in her lung. She has just recently fought both throat and breast cancer and was doing ok. We are devastated as you can imagine. It is so hard trying to support her as we live a long way from each other and can only see each other once a year. It is heartbreaking, she is 54 and on her own. The family have been great. But it is so hard to deal with.

4 Likes

Hi dear,
I am so sorry she got the bad news.
Yes is hard to be away from your beloved sister and hard to accept you can’t help her. For her is more than we imagine.
Did she received the plan for treatment, what will be? If you scroll on search button you will find a few girls who are on stage 4 second cancer in lungs, and you maybe will find a supportive way to help your sister, encouragement and happy stories.
I am alongside with my heart and please share with us and keep updating the treatment.
All my best to you and your sister, have a good treatment :muscle::pray::hugs: big hug and stay positive and strong :cherry_blossom::smiling_face_with_three_hearts::gift_heart:

2 Likes

Thank you so much for your lovely words. I will have a look at the other forum. She does not go on the forums unfortunately, but I will try and get her have a look, or contact them. I really feel she needs the support especially now. Sending hugs and best wishes to you too xx :hugs::pray:t2::two_hearts:

1 Like

I’m so sorry Tessa, that is such difficult news. :bouquet:

1 Like

Hello :hugs: ladies, how you keeping?
How your treatment is going?
How you feel?
Christmas knocking on the door, anyone made the Christmas tree? Shopping?
I decided to decorate early this year that my children enjoy longer and have fun, :two_hearts: they are happy and seeing me more energetic person. My cough almost disappear, hopefully when my steroids are finished to not come back.
Monday I have electrocardiogram and the following week Tuesday the scan for radiotherapy.
Hopefully everything will goes well and my body will be strong enough to do the radiotherapy.
Hopefully you are doing well.
All my best :hugs::sparkling_heart::two_hearts:
Big hug :hugs:

Hi all, hope you are all well :blush:

I finished my 20 sessions of Radio on Tuesday & despite taking care of my skin in the last week it has unfortunately reacted & broken down, including my scar under my arm.
The team have given me dressings to use to protect the areas whilst it heals but warned me it could get worse over the next 2 weeks before it gets better :pleading_face:

They have reassured me they will see me again if I’m worried at all about the soreness as I don’t live far from the hospital & will also give me a follow up call on the 6th Dec

Apart from this physically I’m doing ok, boob feels ‘achy/heavy’ , nipple remains tender along my scar line & I seem, so far to have avoided any particular tiredness

BUT
I just can’t stop crying now it’s all over - I just feel so emotional & I don’t really know why - I guess the impact of the whole journey has caught up with me xx

I’ve been off work for the last 6 months (I’m an A&E nurse) and I have an occupational health assessment on the 7th about returning to work & im so worried about how I’m going to cope with the demands of my job
Just feeling overwhelmed :pleading_face:

3 Likes

Hi dear, Well done, you are a strong woman I’m glad you finished the treatment :revolving_hearts::muscle::star_struck:
I hope your skin heals quickly. Did you use the cream after each session of radiotherapy? Good luck and strength to return to work well, good health and don’t worry, in time you will regain your energy.
Big hug :hugs: take :kissing_heart:

1 Like

I’m so sorry your skin is bad and I hope it heals soon.

I am onto my 4th week and unless it’s something else, finding I am very tired indeed.

You may not be ready to go back yet for some time due to the impact of radiotherapy. I seem to have some good days and then I slump.

3 Likes