It’s all very worrying. Hopefully we will get to the other side. I keep telling myself that this time will pass!
Mine was picked up on screening although I had been to the GP some months before with a concern and told it was nothing to worry about. So feels like I missed an opportunity to catch it a bit earlier.
I’m off to the hospital for pre-chemo bloods this morning. I think I’m developing an allergic reaction to the place!
How are you getting on following surgery? I had my prosthesis fitted on Monday so I’m really pleased with how it feels. Makes me feel more normal!
I’m know what you mean about being allergic to the hospital I feel myself literally having a reaction when I pull into the car park !
I’m going to be marking the weeks off on the calendar I tell you ! Good luck with the bloods , you’ve reminded me I need to organise my appointment for that . My nhs app has shown they’ve made an appointment for me to have a picc pine fitted the day before but I said I’d rather try with a cannula first .
Recovery has been ok , I had an infected seroma two weeks ago but antibiotics have cleared it up . I’m still wearing my comfy,I’ve bought a breast form from boost but not sure when I can wear it ?
Is it an nhs one you have ? Does it feel ok ? Not too heavy ? I want to bin off the post surgery bra too but it’s still very red and bruised round there and probably still too early (4.5 weeks post surgery )
I didn’t have a post surgery bra - I was told any bra that was comfortable.
But for the fitting, I had to supply a back hook bra with pockets and the hospital supplied the breast form. I tried various ones on - they provide Amoena or Trulife ones. I ended up with a Trulife as it was lighter and more natural. It is much more comfortable that the softie, which I probably had overstuffed.
Fittng was at 6 weeks, so not too long to go hopefully.
I was diagnosed Aug 15, triple positive, grade 2, 18mm IDC and had lumpectomy and SN biopsy on 11th Sept. No node involvement Had post surgery infected seroma 14 days after surgery and spent a week in hospital.
I start 12 x weekly Paclitaxel and 18 x 3 weekly herceptin some time in November. No date yet.
Going to try cold capping and have had 10 inches cut off my hair in preparation. Wig consultation tomorrow.
I feel remarkably well after recovering from my infection and it seems a shame to think that soon I will probably feel ill again. I’m dreading it but I know the possible benefits so I’m aiming to get my head down and just power through it if I can. I’m as ready as I’ll ever be and just want to get started so I can get to the end asap!
I start chemotherapy (EC) on 6th November ( 4 cycles fortnightly followed by 12 weekly cycles of something else - so 20 weeks total without any delays). Was diagnosed mid June so feels a very long time coming!
Had excision of 2 lumps and axillary node clearance followed by re excision of one site.
Whilst being scared at what is to come >I am ready to be doing something!
Hi. All of you wish you so much love and support. I’m starting my chemo in November. I have an appointment with the oncologist on Wednesday. I’ll get my treatment plan discussed and then get pre assessment and start. I had er/pr + her2 negative. Right mastectomy they found the cancer span 6.5 cm and removed with clear margins but was found in my lymph’s . I’m waiting now to see what the oncologist suggests. So still nervous that the expectation is chemo and radiotherapy will clean up anything else in my lymph’s. Or cell spread anywhere and the ten years of drugs after wards will give any cancer cells nowhere to go thrive or feed and so should die. Scary thought my life is in the hands of the nhs and cancer specialists. Sending love to you all xxx
@flojo they told me to get a post surgery bra , I couldn’t have worn my usual one tbh as it went across my wound under my arm .
I’ve just swapped over to some yoga bras which are more supportive and comfy . I’m not sure which prosthetic I’m getting but the ones I was shown pre surgery were quite heavy and squeezy like a stress ball !!
I’m starting Paclitaxel too and mildly terrified (understatement ) I’m away in N Wales visiting all my family and am devastated I can’t visit my little grandson as my daughter and her partner have come down with Covid
Hi Louisa I started my chemo 11th Sep 4 x EC every 3 weeks and then 4 docetaxel every 3 weeks followed by radiotherapy and zometa. I have just had my 3rd cycle of EC. In 2016 i had DCIS in r/breast and a mastectomy and reconstruction no chemo or radiotherapy and was on tamoxifen for 5 years. In May this year the scar tissue was rippling and a scan revealed a lump. Following biopsies scans etc it came back cancerous. I had the tumour removed in June with clear margins. Results came back as an invasive grade 3 - 44mm er/pr + her2 negative. They did a full clearance mastectomy but cancer was found in 23 of 26 lymph nodes so consequently had axillary node clearance. A long journey ahead and worried of my high risk factor advised by my oncologist but throwing everything at me. Getting the Treatment plan helps you understand a little more. Scary but they are the specialists. Sending lots of love and support x
Thank you for the welcome. Sorry about the covid - I would be devastated too. I have a 15 month old granddaughter and am already upset about having to avoid her when comes home from nursery with another bug
Hi to you all my love to you that we are all going through this horrible situation of having to have chemotherapy pre op or post op. I was very nieve to knowing anything regarding breast cancer till it happened to me. I’ve found a good way to discuss on this forum. Now I’ve found a group of people all in the same boat as me. Diagnosis differs but we are all chemotherapy starters in November and have that conversation start point and support xxx
@krissykochanski I just tried to reply to you and my post was hidden as hateful content ! Ooh err I’ll try typing it again
It’s hard when you have to protect yourself from infection but you can make up for it with your grand daughter with lots of cuddles when you’ve come through all this x
I’m in the Cotswolds now but just cramming in last min visits . I saw my grand son on video call instead x
I feel myself literally having a reaction when I pull into the car park !
