@krissykochanski hope you feel better soon.
I have a link here that gives guidance on how to use the forum. I hope it helps
https://forum.breastcancernow.org/t/getting-started-on-our-forum/97221/2
It explains how to reply, edit a post, send private messages etc.
oh you poor thing!! I hope youāre feeling better already 
sending love! Xxxxx
I started paclitaxel Nov 1st. 12 weekly cycles + herceptin 3 weekly. Finding it quite manageable at the moment 3 weeks in
Is anyone just going into TC docetaxel & Cyclophosphamide. Thatās my regime. My consultant says Iām young enough and healthy enough to tolerate and come back from its 4 cycles of it and then 15 radiotherapyās condensed into 5 sessions .
Morning I am from the July thread and have messaged you re TC (which I did)
Hope itās gone through as I find it hard to navigate DM on this forum 
Thatās good to know x They changed me to Nab paclitaxel which is every three weeks which means a stronger dose probably so I hope Iām ok with it .
What have your main symptoms been ?
So I started yesterday with my EC. All went smoothly and was packed off with a load of meds. Felt quietly confident, especially as I had heard that the pre meds are pretty effective. By my goodness the nausia was horrendous. I admit I have a low tolerance for it in everyday life. I think I may have made a mistaken the first signs of nausea as hunger and so I ate lots of toast and peanut butter that I was craving, without taking the optional extra food related anti sickness drug (Domperidone), as thought Iād do trial and error. Wonāt be doing that again! wasnāt actually sick but the hot and cold flushes and needing to lie on the bathroom floor where horrible. Eased up around midnight and I did manage some sleep. And so far today is much better - although I donāt fancy leaving my bed!
Anyone else had it that bad! Or is it normal and I just have to get a grip? Dreading next cycle alreadyā¦ So sorry anyone that hasnāt started - a rubbish negative message! Just interested to get a baseline on whether I am particularly sensitive. Rosie
Hi Rosie,
You did exactly what I did on my first cycle. I ate rather a lot when I got home and also spent the night in the bathroom. Wasnāt sick but felt so nauseous.
Next round I ate a sandwich when I got in (my treatment was at 1pm) and then made sure to take another anti sickness before bed and it 100% was better. I then kept on top of anti sickness meds and also ate snacks as and when next few days to keep nausea at bay and it was 100% manageable.
I said after my first cycle I cannot do this another 3 times but it didnāt happen, I managed it way better so hopefully itās the same for you too.
Popped over from the august thread. Hope all goes well for the rest of your treatment.
Thank you so much for that reassurance! Really good to hear.
@krissykochanski Oh no 
is it a bug or side effects.? You poor thing 
Will they delay your next cycle
I really hope you are starting to feel better x
Feeling way way better. Thank you! Still resting up, but feeling more optimistic about next cycleā¦
Phew thatās good to hear ! 
Hello! How is everyone doing? Good luck to those sitting in the chemo chair tomorrow - especially if itās your first time. I hope it goes well.
I was at the hospital yesterday to see the oncologist so my CT scan at the weekend was clear (yay!). They took bloods and said they would call if there was a problem. I havenāt heard so Iām assuming all is ok for round 2 tomorrow.
Dreading it a bit, but looking forward to getting it done as that will be a third of the way through.
They made such a mess of my arm at the weekend with the CT scan cannula that they warned me to keep an eye on it in case it gets infected after chemo - hoping not!
My hair is still sheddingā¦
Take care everyone. xx
@arty1 I hope your concert was good last weekend!
@flojo thatās brilliant news about the Ct scan one less thing to worry about 
how have you felt these last few weeks ?
Shocking about the cannula , honestly there is no need to make such a dogs dinner out of getting a needle in !
When did your hair loss start ?
Kasabian were incredible ! My daughter couldnāt believe she was actually there , it was great that we managed to go 
Thatās brilliant you were able to go - so pleased for you!
Iāve felt absolutely normal for the last two weeks other than worrying - hair loss started a few days ago - itās not terrible but when I brush my hair, it brings quite a lot out - more than the normal shed!
Are you starting chemo tomorrow?
@flojo thatās great, Iām so glad you havenāt felt too bad ā¦ sadly so think the worrying comes hand in hand with all this
Are you cold capping ? I canāt remember if you said you were ā¦ Iām not in a good way today ā¦ terrified ā¦ had a few tearful outbursts and have been catastrophising imagining every worse case scenario ā¦ anaphylaxis, crippling side effects ā¦ neutropenia sepsis ā¦ yep Iām a real bundle of joy right now
I felt exactly the same as you - really scared and didnāt want to do it - and the same worries too! Hopefully you will feel better once you know what to expect. I do -slightly! I can worry for England! I did cold cap, but at some point, if Iām too bald, I guess I wonāt any more. Itās a real joy isnāt it!
hi!!! how are you feeling today?? what time if your infusion tomorrow?? I am really hoping youāre ok and not stressing or panicking too muchš
So I am two weeks since my first infusion, and so far so goodā¦ā¦. nothing too bad to reportā¦ā¦ sleeping still not the best, skin getting a little better but my hair is falling out now and has gone quite matted!?
so Iāve got a head scarf on today to get use to it and I need someone to come and cut it super short maybe first?! maybe my sisterā:smirk: as didnāt have time before chemo started to have it cut, as they pushed for chemo quite quickly for me!!
Remember message whenever you want if youāre feeling worried about tomorrow!! youāll be absolutely fine, honestly! itās not half as bad as you think!! I remember people telling me that but didnāt believe them, lol.
Xxxxx
@flojo Iāll join you in worrying for England ā¦ in fact Britain ā¦ the world ! Ex husband used to joke that Iād wake in the morning and worry about having nothing to worry about !
People seem to have varied results with Cold capping 
I canāt stand the idea of it so am going for the shave as soon as itās start to fall out
So next chemo for you tomorrow ? X
@stevie86 no im a mess ā¦ like a quivering blob of jelly in a corner ā¦ I really need to get my big girl pants on ā¦ Iām glad you are feeling ok x
For me ā¦ re the hair Iām going to just shave it off ā¦ I donāt fancy picking lumps of hair out of my dinner 
I think most people brave the shave when they start to see furious shedding x
What chemo are you having again ? Iām worried the abraxane is going to nail me to the floor ā¦ not looking forward to it ā¦