November 2024 chemo starters

@flojo they told me to get a post surgery bra , I couldn’t have worn my usual one tbh as it went across my wound under my arm .
I’ve just swapped over to some yoga bras which are more supportive and comfy . I’m not sure which prosthetic I’m getting but the ones I was shown pre surgery were quite heavy and squeezy like a stress ball !!

Welcome @norms80 @krissykochanski @bec23 @louisa12345

I’m starting Paclitaxel too and mildly terrified (understatement ) I’m away in N Wales visiting all my family and am devastated I can’t visit my little grandson as my daughter and her partner have come down with Covid :cold_sweat:

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Hi Louisa I started my chemo 11th Sep 4 x EC every 3 weeks and then 4 docetaxel every 3 weeks followed by radiotherapy and zometa. I have just had my 3rd cycle of EC. In 2016 i had DCIS in r/breast and a mastectomy and reconstruction no chemo or radiotherapy and was on tamoxifen for 5 years. In May this year the scar tissue was rippling and a scan revealed a lump. Following biopsies scans etc it came back cancerous. I had the tumour removed in June with clear margins. Results came back as an invasive grade 3 - 44mm er/pr + her2 negative. They did a full clearance mastectomy but cancer was found in 23 of 26 lymph nodes so consequently had axillary node clearance. A long journey ahead and worried of my high risk factor advised by my oncologist but throwing everything at me. Getting the Treatment plan helps you understand a little more. Scary but they are the specialists. Sending lots of love and support x

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Thank you for the welcome. Sorry about the covid - I would be devastated too. I have a 15 month old granddaughter and am already upset about having to avoid her when comes home from nursery with another bug :frowning:

I am in South Wales so not too far from you x

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Hi to you all my love to you that we are all going through this horrible situation of having to have chemotherapy pre op or post op. I was very nieve to knowing anything regarding breast cancer till it happened to me. I’ve found a good way to discuss on this forum. Now I’ve found a group of people all in the same boat as me. Diagnosis differs but we are all chemotherapy starters in November and have that conversation start point and support xxx

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@krissykochanski I just tried to reply to you and my post was hidden as hateful content ! Ooh err :see_no_evil: I’ll try typing it again

It’s hard when you have to protect yourself from infection but you can make up for it with your grand daughter with lots of cuddles when you’ve come through all this x

I’m in the Cotswolds now but just cramming in last min visits . I saw my grand son on video call instead x

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Ah yes. I realised you’d said you were visiting Wales after I wrote my post. DOH!

Chose my wig today, it was much more enjoyable than I’d imagined it would be.

Still no call from my treatment centre but I’m sure it will be soon.

I wonder what you wrote that was considered hateful?!? :grin:

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@krissykochanski I scanned my post but couldn’t see what I’d written wrong !

I’ve got all my wigs already :rofl: literally one for every day of the week, I figured the only silver lining is having different hair :see_no_evil: did you get a wig voucher ? I wasn’t given one .
I’ve bought two beanie hat wigs and was fitted for a wig too . Are you going for similiar to your hair ?

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@louisea77 since I was diagnosed I’m so up on BC terms now … not an enviable position but at least we are all well informed , thank goodness for. This forum x

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Wow. I nearly bought 2 as I liked them both but decided I’d stick with the one for now until I know how comfy I find it, then if I get on with it I’ll buy the 2nd one later.

Yes I got a voucher for £100. Surely you are entitled to one? I did have to ask so maybe they just forgot to offer you yours?

I went for similar to my style but blonde. Never been blonde in my life but my daughter and friend that came with me both loved it on me so I went for it. The grey ones were too grey and the brown ones too brown (my own hair is half and half). Never saw THAT coming lol!

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Hi @arty1,

Sometimes post which contain our ‘watched words’ get automatically flagged to us to approve - that can sometimes mean certain words even when they are used in a harmless context can get sent to us for approval and your post will be hidden until we do so. Apologies for any inconvenience :slight_smile:

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Iam having the same treatment and am going to give cold capping a go too .

I understand the first fifteen minutes are the most challenging. I’m hoping I can wear headphones to distract from the brain freeze - good luck xx

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@Alice_BCN thanks for explaining :blush:

@krissykochanski I’m going in for a tour of the oncology day ward so I’ll ask the breast nurse about it then x my hair is currently bright red and I’ve got blonde, auburn (beanie hat wigs ) and a wavy black one with fuschia ends !

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@mrso2 I suffer from migraines so I’ve decided not to go with cold capping . I’m going to just embrace the wigs and not having to dye my hair every two weeks :see_no_evil:

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Totally understand, that sounds like the right decision for you

I’m expecting to lose my hair but I’m doing it to encourage my hair to grow back quicker after treatment

Buying a wig and a cover anyway - hoping to get my appointment soon . I’m stocking up on hats and headbands , one benefit of doing the treatment during the colder months .

I hope your migraines are kind to you during your treatments xx

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@mrso2 fingers crossed for the cold capping x
Thank fully wigs are much better than they used to be …have you had your date through yet ?

My migraines have been all over the place as have my periods since they said I had to come off hrt . I’m ER- but my consultant said the hrt still had to go … gutted !

Yes , I start my chemo Monday 4th November .

I had to come off HRT too but I had only been taking it since January .

Hoping your migraines tail off , you could do without them on top of everything x

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Not long to go ! - have you had your picc line put in ? I’m anxious about it due to my heart issues but also they’ll have to put it in my right arm which is going to be a nuisance :tired_face:

I haven’t had an appointment for my echocardiogram yet :see_no_evil: