November 2024 chemo starters

Lol

Hi you can click the reply button on the right hand side under the post you want to reply to , then click the @ button on your keyboard and start typing the name of the ouster you want to reply to , so it appears like this ā€¦ @hlc

1 Like

@arty1 thankyou x

1 Like

Anybody suffering with rib pain and any advice for help. Thought it was cos id gone back to underwired after surgery but back in post surgery and still hurts

1 Like

@hlc yes Iā€™ve had rib pain since my surgery which eased but now seems pronounced again since my chemo ā€¦ I ran a bath yesterday and just sat in like an annoyed ā€¦ rash covered one boobed potatoā€¦. But I did feel better afterwards !

2 Likes

Iā€™m same- my surgery was 25th September Left side mastectomy and lymph node clearance. Who wouldā€™ve thought that would seem so minor but I agree- in comparison to this, it does.
Having said that- Iā€™m not to happy to look at my surgery site now but I just feel low that Iā€™ll deal other that when all the other crappy treatments are out if the way :hear_no_evil:xo

@arty1 Yes, I need to do that. I have lots of messages sitting. I know people mean well but Iā€™m so sick of telling people how crap I feel. Iā€™m going to do that so people realise Iā€™m not just being ignorant :hear_no_evil:xo

1 Like

Thankfully it feels much better today xxx
Deffo think u should try the party even if you manage an hour or so might lift your mood xxx

I feel much better now I have my fake boob xx
Looks much more natural and it was free which was a bonus xx
I noticed some people saying they got vouchers or didnā€™t get one ??
I get a new one every year and go to an appointment where they have a lovely selection :joy::joy::joy: and you pick your boob :joy::joy::joy:

1 Like

@kd48 sadly I havenā€™t been given one ā€¦ I ordered a boost breast form which actually looks really good and Iā€™m happy with . I chased the breast clinic about my prosthetic but still havenā€™t heard anything ā€¦ so Iā€™m just going to leave it

@arty1
Aww thatā€™s disappointing !!
Iā€™m interested in peopleā€™s experiences with the various NHSā€™s
Iā€™m in Scotland so overall itā€™s a pretty standard package for the whole of Scotland not much variations as far as I know !!

1 Like

@kd48 yes it was supposed to happen , I was promised Iā€™d be called in six weeks post surgery for a fitting ā€¦ Thank fully Iā€™m not really going anywhere at the moment and the boost form is lovely

Anyone else crippled with heart burn ? I genuinely feel like my oesophageal tract is on fire :fire:ā€¦ Trouble is most antacids are contraindicated for me due to my blood thinners ā€¦ Iā€™m nibbling a banana as they are great for acid ā€¦ but I think Iā€™m going to have to ring the triage line tomorrow and give them a list if stuff I need prescribed :see_no_evil::see_no_evil: itā€™s just annoying that hubby will have to go to the hospital to collect it ā€¦
I felt crappy last night as I can see and feel the evidence of the chemo in my body but Iā€™ve also told myself itā€™s knocking any cancer cells for six !

3 Likes

Just popping on to say hello, im a chemotherapy starter in November had my first treatment yesterday doxetaxol phesgo herceptin etc. 1/6 cycles.

Very fatigue yesterday, waiting to see if anything else hits this week, i am triple positive idc stage 2 grade 2 and large area of high grade dcis

Shannon

2 Likes

Thatā€™s very generous - a new one every year! I think they said mine should last two years - not sure what happens after that though. But definitely made a difference when I had one fitted.

What part of Scotland are you in? My folks come from Aberdeenshire.

@arty1 sorry to hear you are still suffering. Thatā€™s rotten. You asked about braving the shave. I just canā€™t do it so Iā€™m watching my hair disappear. Iā€™ve been working remotely, so people say it looks ok - they wouldnā€™t say that if I leaned over and they saw my big ugly bald patch!

I had genetic testing done a few weeks ago so results came back today - negative - no dodgy genes involved, just lots of bad luck - which is good for my sister and family. The nurse said it was a good thing but then followed it by something like so it doesnā€™t explain your bad case of breast cancer. So felt a bit disheartened by that. Itā€™s certainly a rollercoasterā€¦

1 Like

@flojo itā€™s very personal ā€¦ hair loss affects us so differently, for me my hair has always been part of my identify so itā€™s going to hurt seeing it go , plus Iā€™ll look blimmin awful with no hair ! A friend of mine with BC has just shaved her hair ā€¦ she looks edgy and cool ā€¦ Iā€™m going to look like Les Dawson :see_no_evil:

I donā€™t have a strong history of breast cancer but both sets if grandparents died of cancers , my dad died of cancer abc my mum had cancer ā€¦ I asked for genetic testing but was told I donā€™t qualify as Iā€™m over a certain age ā€¦ Iā€™ve had the same ā€œitā€™s just bad luck ā€œ and I canā€™t decide what feels worse ā€¦ because at least a faulty gene gives you an explanation and also something you can mitigate ā€¦ but ā€œbad luck ā€œ just sucks

Les Dawson! :rofl: You might be pleasantly surprised. It just screams cancer patient to me and I just want to be seen as normal - or as normal as I ever am!

The genetic testing is a relatively new thing at the hospital I think. Offered if you have more than three lymph nodes affected as it can also offer more drugs. That said, we donā€™t have a lot of cancer in our family so I would have been surprised if it had come back positive. But good to know for my family.

Are you feeling any better or sick of feeling pants?

1 Like

@arty1 . Soak it is then ā€¦ with one arm stuck out with picc line. Got waterproof cover but you cant stick it under water

1 Like

I know that one! How good will it be though to get a shower or bath and just relax without having to wear a cover on your arm or have it sticking out of the water! I canā€™t wait :grinning:

2 Likes

Another one dreaming of a bath.

Re the cold mitts/ socks: Yes, Iā€™ve been using them for three cycles now. Iā€™m on 12 x paclitaxel and then 4x Ec. After my third pac I felt like Iā€™d slammed one fingertip in a drawer so I bought the suzzipads and have used them for cycles 4-6 ans planning on continuing. Cold cap is no problem but Iā€™m having to work at these cold mitts/ socks. Managed it though and my fingers and toes are much more comfortable.

Iā€™m in the October group.

3 Likes