November 2024 chemo starters

Lol

Hi you can click the reply button on the right hand side under the post you want to reply to , then click the @ button on your keyboard and start typing the name of the ouster you want to reply to , so it appears like this … @hlc

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@arty1 thankyou x

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Anybody suffering with rib pain and any advice for help. Thought it was cos id gone back to underwired after surgery but back in post surgery and still hurts

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@hlc yes I’ve had rib pain since my surgery which eased but now seems pronounced again since my chemo … I ran a bath yesterday and just sat in like an annoyed … rash covered one boobed potato…. But I did feel better afterwards !

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I’m same- my surgery was 25th September Left side mastectomy and lymph node clearance. Who would’ve thought that would seem so minor but I agree- in comparison to this, it does.
Having said that- I’m not to happy to look at my surgery site now but I just feel low that I’ll deal other that when all the other crappy treatments are out if the way :hear_no_evil:xo

@arty1 Yes, I need to do that. I have lots of messages sitting. I know people mean well but I’m so sick of telling people how crap I feel. I’m going to do that so people realise I’m not just being ignorant :hear_no_evil:xo

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Thankfully it feels much better today xxx
Deffo think u should try the party even if you manage an hour or so might lift your mood xxx

I feel much better now I have my fake boob xx
Looks much more natural and it was free which was a bonus xx
I noticed some people saying they got vouchers or didn’t get one ??
I get a new one every year and go to an appointment where they have a lovely selection :joy::joy::joy: and you pick your boob :joy::joy::joy:

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@kd48 sadly I haven’t been given one … I ordered a boost breast form which actually looks really good and I’m happy with . I chased the breast clinic about my prosthetic but still haven’t heard anything … so I’m just going to leave it

@arty1
Aww that’s disappointing !!
I’m interested in people’s experiences with the various NHS’s
I’m in Scotland so overall it’s a pretty standard package for the whole of Scotland not much variations as far as I know !!

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@kd48 yes it was supposed to happen , I was promised I’d be called in six weeks post surgery for a fitting … Thank fully I’m not really going anywhere at the moment and the boost form is lovely

Anyone else crippled with heart burn ? I genuinely feel like my oesophageal tract is on fire :fire:… Trouble is most antacids are contraindicated for me due to my blood thinners … I’m nibbling a banana as they are great for acid … but I think I’m going to have to ring the triage line tomorrow and give them a list if stuff I need prescribed :see_no_evil::see_no_evil: it’s just annoying that hubby will have to go to the hospital to collect it …
I felt crappy last night as I can see and feel the evidence of the chemo in my body but I’ve also told myself it’s knocking any cancer cells for six !

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Just popping on to say hello, im a chemotherapy starter in November had my first treatment yesterday doxetaxol phesgo herceptin etc. 1/6 cycles.

Very fatigue yesterday, waiting to see if anything else hits this week, i am triple positive idc stage 2 grade 2 and large area of high grade dcis

Shannon

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That’s very generous - a new one every year! I think they said mine should last two years - not sure what happens after that though. But definitely made a difference when I had one fitted.

What part of Scotland are you in? My folks come from Aberdeenshire.

@arty1 sorry to hear you are still suffering. That’s rotten. You asked about braving the shave. I just can’t do it so I’m watching my hair disappear. I’ve been working remotely, so people say it looks ok - they wouldn’t say that if I leaned over and they saw my big ugly bald patch!

I had genetic testing done a few weeks ago so results came back today - negative - no dodgy genes involved, just lots of bad luck - which is good for my sister and family. The nurse said it was a good thing but then followed it by something like so it doesn’t explain your bad case of breast cancer. So felt a bit disheartened by that. It’s certainly a rollercoaster…

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@flojo it’s very personal … hair loss affects us so differently, for me my hair has always been part of my identify so it’s going to hurt seeing it go , plus I’ll look blimmin awful with no hair ! A friend of mine with BC has just shaved her hair … she looks edgy and cool … I’m going to look like Les Dawson :see_no_evil:

I don’t have a strong history of breast cancer but both sets if grandparents died of cancers , my dad died of cancer abc my mum had cancer … I asked for genetic testing but was told I don’t qualify as I’m over a certain age … I’ve had the same ā€œit’s just bad luck ā€œ and I can’t decide what feels worse … because at least a faulty gene gives you an explanation and also something you can mitigate … but ā€œbad luck ā€œ just sucks

Les Dawson! :rofl: You might be pleasantly surprised. It just screams cancer patient to me and I just want to be seen as normal - or as normal as I ever am!

The genetic testing is a relatively new thing at the hospital I think. Offered if you have more than three lymph nodes affected as it can also offer more drugs. That said, we don’t have a lot of cancer in our family so I would have been surprised if it had come back positive. But good to know for my family.

Are you feeling any better or sick of feeling pants?

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@arty1 . Soak it is then … with one arm stuck out with picc line. Got waterproof cover but you cant stick it under water

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I know that one! How good will it be though to get a shower or bath and just relax without having to wear a cover on your arm or have it sticking out of the water! I can’t wait :grinning:

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Another one dreaming of a bath.

Re the cold mitts/ socks: Yes, I’ve been using them for three cycles now. I’m on 12 x paclitaxel and then 4x Ec. After my third pac I felt like I’d slammed one fingertip in a drawer so I bought the suzzipads and have used them for cycles 4-6 ans planning on continuing. Cold cap is no problem but I’m having to work at these cold mitts/ socks. Managed it though and my fingers and toes are much more comfortable.

I’m in the October group.

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