It doesn’t seem two mins since this thread started and now we are all crossing the chemo finishing line 
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Thanks. I start Letrozole in three weeks, then a blood test in four weeks to check everything is back to normal. I’m waiting for a radiotherapy planning meeting, with a view to that starting in four weeks, then after that another scan and start on Abemaciclib. So a long way to go yet! I am also eligible for a trial which is a newer drug that Letrozole and has proved successful in secondary cancer, so they are now rolling it out to primary cancers to see if it has the same success. Hope everyone has a peaceful weekend. xx
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How are you doing now? x
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Hope everyone is doing well. Lovely to start to see people moving on in treatments.
I have 2x EC left (#3 next week if bloods are ok and liver plays ball!). I agree that the joint pain is a challenge with filgrastim. I sit on a heated blanket and this really helps, then using a few hot water bottles to take to bed. Loretadeine antihistamines also help but I do find that I’m awake with the pain some nights. Hoping to get some respite before the next round as I finished the jabs Thursday night. Lots of stretching for me too, although I’ve noticed that my hip joints feel somewhat inflamed.
@arty1 would you mind sharing where some of your marvellous wigs are from? I’m going to order a couple as I haven’t had my nhs voucher yet and my hair is shedding away. Do you have any tips about wearing them so they don’t shift or fall off?
@flojo which drug is the one coming forward as a trial? I have my end of chemo review soon and would like to ask my onco about anything which can help me to stay cancer free going forwards.
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It is part of the Cambria-2 trial. As I understand it, some people on Letrozole can develop secondary cancer, which finds some pathways around the drug. Based on how it has worked with secondary cancer, they think the drug (Camizestrant) is more effective in blocking these pathways, but that is what they want to test. Here’s more on it: A trial looking at camizestrant for early breast cancer (CAMBRIA-2) | Cancer Research UK
I’m not sure at the moment - waiting to find out more.
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Thankyou. Something to discuss with my oncologist.
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@flojo it feels never ending doesn’t it 
. I’m not sure if I can face injections until
November … have they said how many sessions of radiotherapy you are going to have ?
@brambles1 Two were from a wig maker and were expensive and tbh I should have saved my money , all the others were from Amazon !
The one in my profile pic was under £20 from
Amazon . I never had a wig voucher …very disappointing
Thankyou. I’ve had a browse and there are some lovely ones - you’ve given a stranger in the same scary boat the confidence to give it a try.
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@brambles1 Go for it ! Read the reviews carefully , they are cosplay wigs rather than ones for people with no hair , so you’ll need to cut the combs off on the inside . I bought a soft wig cap to put on first and it helps stop the wig from being itchy . I also usually have to trim the fringes on them x
These are all Amazon ones for under £20
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These ones were from an online site called headscarvesbyciara - they are more expensive but quite cool . They are hair attached to hats which are around 60 pounds and fringe wigs which as the name suggests , make you look less “hairless” when wearing a headscarf
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I think 15 sessions - so quite a few!! Three weeks of five days.
Your wigs look amazing by the way - I like the purple/pink one in particular! xx
My hair is currently growing back quite a lot - looks a bit like baby’s hair, but I have a reasonable covering.
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Thanks so much @arty1 they all look amazing. They should have you on This Morning for an article on positivity in the face of challenge!
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Hope everyone Is doing ok? Just thought I would pop on to check in with you all & see how you are all doing!!
I have had a CT scan this morning for radiotherapy planning.
I start my radiotherapy on the 11th March & my last chemotherapy was 6th Feb so a few weeks between finishing chemo & starting radiotherapy!
I’m starting to feel better each day after my last chemo just the usual fatigue & aches & pains & my taste is getting slightly better too!! Anyway hope everyone is ok x
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Radiotherapy tip
I remembered a great tip that Dr Liz O’Riordan gave for keeping warmer during radiotherapy and it helps.
She suggested cutting off the sleeves off a long sleeved Tshirt and wearing on your arms. I had some long socks that I cut the foot open and wore them. It really helped to keep a bit warmer in a cool room.
Hope it helps. 
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I’m glad you are feeling better - that’s good to hear as you are a week ahead of me so positive news! I had my last round on Friday and wasn’t too bad over the weekend but today I’m totally knackered and light headed. It’s probably the worst day of the whole treatment. I’m hoping things settle quite quickly…How was the CT scan and planning? I’m still waiting for an appt but they said they would give me a few weeks to recover first. xx
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Hi hopefully you are starting to feel a bit better by now. I just have the usual pain in my body especially lower back & hips & across the top of my back because I seem to cough quite a lot after each round of chemo when my lungs are rebuilding.
The CT scan was quick & then they scratched those 3 dots on me with a needle & some ink so that they can see where to target 
the radiotherapy.
I was hoping it would be a bit sooner that I was having it so that I get it out the way quicker but I’m sure it will soon come round. Hopefully you will have your plan soon too.
It all still feels very surreal to me & i still don’t think it’s actually sunk in that I had the diagnosis then all the treatment so far. I think we just go into some kind of overdrive & just power through it all x
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@flojo gosh that’s a lot , make sure you drink lots of water and also have good cream to keep the area moisturised x
I’ve had some great wigs and the god thing about wigs is they always look tidy from any angle 
I braved it to a face and body art event yesterday and painted all day . I’m exhausted today … I did wear a mask … but this wig … gets the most compliments . People who didn’t know I’d had chemo were asking me where I got my hair coloured
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@brambles1 I don’t know about positive … I just try to stay upbeat but obviously I’ve had many days where I’ve just cried and eaten chocolate biscuits . Which is why I d put a stone on 
@shelbylou81 … it is surreal isn’t it … once you start treatment you become engulfed but every so often you think to yourself ., blimey I’ve got /had cancer …, and then you realise how Blimmin amazing you are for pushing through something you never thought you’d have the strength to do … it’s amazing what we’ll cope with when we have to x
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It is a lot but that’s the joy of lobular - it doesn’t do what you expect it to do - it’s sneaky unfortunately. Good to see you looking so well! x
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