Hello @lmack95 nice to meet you and share the journey (although it’s not a journey we would wish on anyone, it’s nice to be able to accompany each other)
Sorry to hear about the vomiting and diarrhoea that sounds so rubbish. Have a bit of diarrhoea today myself but it’s the fatigue I am struggling with most ATM.
I will be having Zoladex too after they’ve done the chemo and radiotherapy etc, that and letrozole (?) for ideally 10 years, at least 5. Ribociclib for three years. It’s not a short journey is it
I managed to actually get out today which was good but feel clobbered now. It’s very much moment by moment it seems. Hope you get some relief from the current side effects xxx
Hope they manage to get you sorted on meds to help! How is your little one coping? It must be hard having such a young child - mine are a little older (5&8) so can at least understand what’s going on. Hope you’ve got a good support network
If you have any spare ondansetron it’s known for being constipating so should help with diarrhoea, I take whatever they give me like sweets tbh, although I declined any benzos. Thanks for sharing about your anti sickness medication, I thought what I was being given was pretty standard but they’re really saying it like they’re doing me a favour and giving extra! I’m definitely entitled to something being a carer but it’s more hassle than just doing the caring myself, dad is physically pretty good it’s his sight and hearing so I don’t do anything heavy. He’s having an aneurysm surgically repaired in a couple of weeks which will be a huge relief - that’s one of the reasons why it’s really important I’m as fit as possible - needs to be done at a hospital 2.5 hours away. I feel great a week after last taxane treatment and bloods were really good, just been super busy last 2 days with unexpected stuff that needs doing and I’m out in the sticks so everything is 1-2 hours away. Hope everyone who had treatment today got through ok and feels reasonable, and everyone else is doing well too xx
Hi everyone, this is my first post. I started chemo yesterday (EC for a few cycles, then the one called taxol or something).
Good points are that I cold capped and found it absolutely fine, barely at all uncomfortable. Usually don’t have a great pain tolerance so it must affect everyone differently. And other side effects are quite minor so I can’t complain too much.
Tricky things are I’m still not sleeping well, still uncomfortable from the port going in, still have bad cording from mastectomy and lymph nodes removal, nausea is moderate (like first trimester pregnancy for me) and I am a bit fluey. Also it’s pouring with rain which may scupper my plans for a walk : )
I’m already nervous about round 2, I’m such a worrier and can’t relax.
Hi there, I have also been diagnosed with metaplastic triple negative breast cancer. I thought I would say hi as it seems pretty rare so it may be reassuring to know you’re not the only one. I am seeing the oncologist on Monday and I had been expecting to get a chemo/treatment plan, but my pet-ct scan has shown a concern about my liver so I having an MRI liver scan next week. I am taking heart that a previous pet scan also showed a concern on my lung a couple of months ago, but that hasn’t changed shape so they are not worried about it. A good friend who understands about scans says they will show up all sorts of activity, not necessarily cancer. So while I completely spiralled earlier this week, my experience with my lung panic last month tells me to try to not to waste energy on worrying when I don’t yet have all the information. Which sounds easy but obviously hard to do in practice. and I also have a 15 year old so I am completely with you on the wtf fear journey.
My journey so far has been long and complicated (I have already had a masectomy, though yet to see the oncologist) but will save that for another time. I just wanted to wave hello to a fellow metaplastic person .
Well done on getting the first one done! I can’t say much as I think my treatment is different but I hope the rain clears a little so you can go for a little walk.
I know the feeling of anxiety around the second treatment already. Just try and take it one step at a time and allow yourself to just be upset by what’s happening too. Do you have someone to reach out to or maybe counselling services you can access?
That’s wonderful I know how you feel - it’s quite a shift from doing most things for the kids to doing very little! Putting myself first and just resting feels very weird
Hello @sunflower2025 , welcome to the thread. I had my first yesterday too, and on the same drugs EC for 3 cycles then Docetaxel for 3 or 4.
Well done for sailing through it!!! Chemo itself was fine, although I had to have a break between the E and the C as I got shivery and nauseous. But they reckoned that was actually my reaction to cold capping. When it first started it felt painful and then settled down after ten mins and I thought would be fine but then just got really painful again after half hour. I got through it but not sure I’ll do it again. Although I give it one more with a medium size instead of small , in case that’s the reason?
Side effects from EC v mild so far, but well see how/ if it progresses!! How are you this morning?
I’m trying not to think too much about EC 2 , just take day at a time. Raining here too , also craving a walk!!! Sorry you’re having a hard time with surgery after effects. Are you keeping up with exercises?
Just a bit of black humour, made me laugh this morning, I was thinking we’d replace the kitchen table in a couple of years. So I said we could do that ‘if we’re still here then’ to my partner.
Helooked shocked and upset and told me not to talk like that.
I looked at him blankly for a minute and then said “ohhh! no. If WE are still in this house” (we rent).
He thought I said ‘i’ and that I was being supremely morbid. I was just thinking about the joys of renting …
Lovely to hear from someone who was doing the same thing at the same time! Glad you’re feeling ok, it’s a relief not to have been hit too hard isn’t it? I’ve just done the injection in my belly that can apparently cause bad bone pain so we’ll see if that develops.
Re cold capping, yes I was between sizes so they went for medium as small was just too tight. That probably eased the pain but I guess may mean it’s not quite so effective. I also had a sedative tablet which I’m sure helped, did you? And did you have paracetamol? The thing that put me off is how much longer the process takes - in total I’m having 16 chemo sessions which is a lot of extra time!
Hi thanks for your reply! Yes, not looking forward to doing the injection this evening! I’ll try to do it myself, but if I wimp out my partner will!
I heard you can also mix up the inner and outer cap sizes to get an in between, so a medium inner cap plus small outer. I’m hoping they can try that for me next time, or just try medium, or I’m out!
I didn’t have sedative, but I did have paracetamol …. Although may have gone a bit too early with that and it wore off about three quarters of the way through.
16 sessions that’s lots!!! Just take it one day at a time I guess and try not to think too far ahead xx
Good luck with the injection. I got my partner to prep it and double check the instructions, I distracted myself elsewhere, then he just handed it to me and I did it, so no anticipation. I didn’t hesitate, just did it. Felt like a flu jab or something, absolutely fine.
That’s interesting about the cold cap combo, I will enquire. You should give it one more go, you can stop any time x
Injection went well tonight I must be getting the knack, hardly felt it! Definitely recommend taking out of fridge for a while so it’s at room temperature. I do the initial stab (for want of a better word) quite quickly while pinching the skin, then release the skin before doing the plunger. Getting used to it but will still be glad to have a break from it after tomorrow (when the 5 days is up till next time). It’s all a bit surreal that this is currently reality.
Stay warm and dry all - it’s wild out there tonight!
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, also craving a walk!!! Sorry you’re having a hard time with surgery after effects. Are you keeping up with exercises?
