Hi all. I’m Jenny and just had my chemo start date of 3rd Nov. I thought I would start a November thread as there isn’t one yet. I had a mastectomy in Aug followed by an axillary clearance in Sept. I had two grade 2 tumors and I had one positive lymph node. Feeling pretty well recovered after my surgery. Just a bit or cording left but the physio has really helped. I have 6 cycles planned. 3 of EC and 3 of Docetaxel. I will also have Goserelin (Zoladex) whilst having chemo. Just want it to start now so I can get it over with. Hope everyone else is doing ok.
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Hi I had joined the October thread but start the 27th. I am having 3 EC and 3 docetaxol too. I had my lump out and 2 lymph nodes ( negative) but my onco dx test on my lump showed high risk of re occurrence so now I’ve got all this coming.
I went to see the chemo ward today. Had even more bloods and checked for Monday. I did have a cry there. The lady was lovely and said she understands it’s overwhelming. X
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Hi all, I’m Keely - I’ve been lurking around the Oct25 thread too picking up tips. Had my first oncology appt today so looking like I’ll be starting in the next 2-3 weeks.
I’ve got a 42mm Grade 3 HER2-positive ER-borderline tumour so have the joys of chemo before surgery - 3 x 2 weekly EC then 12 x weekly Paclitaxel w 3 weekly Phesgo.
Trying to get as much ready at home to make things easier before starting treatment - have 2 daughters (5&8) so hoping to keep as much as possible normal for them!
How are you all recovering after surgery? x
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How have you been with your daughters ? My boys are 7 and 10 and it’s so hard. My 7 year old hasn’t let me lie down at night with him all week and then he said the reason is because he doesn’t want to catch cancer like you do a cold!!! You think they are fine then boom something like that is said ! X
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Aww that’s got to be so tough!
Mine are doing ok at the moment but I think it’s still quite an abstract concept for them as I haven’t started any treatment yet so nothing has really changed for them.
One thing we did find helped was we watched the Operation Ouch (BBC) special “Let’s talk about cancer” together - they explain it brilliantly for kids and go through all the different treatment stages. They make a point of explaining that you can’t catch it so might help your boys xx
Yes thank you that would absolutely help. But I will cry my eyes out. Even reading that has started me. It’s all important though isn’t it and has to be done. Thank you for sharing the show. We will watch it. X
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Hi @jenhopeful our story’s sound similar I had single mastectomy on 7th October will be starting chemo in dec I had 3 tumours in the end grade 2 ER/PR+ and HER2 negative I believe and 4 out of 17 nodes positive, I’m keen to find out what my chemo regime will be, are you having yours every 2 weeks?
Hi @emilyxxx
They have said my chemo will be every 21 days. 3 cycles of EC followed by 3 cycles of Docetaxel. Then radiotherapy afterwards. They have also said I will have the hormone therapy during my chemo rather than afterwards. I worked out last night that I should be finished with radiotherapy by mid March and I’ll continue with the hormone therapy for 10 years. Hope you are recovering well after your mastectomy and axillary clearance. I still have a bit of cording but generally the recovery has not been as bad as I expected. It’s the waiting for results that’s the hardest part for me x
Hi yeah I’m recovering well thanks had results last week so chemo it is for me just waiting for oncology appointment to find out what I’m having x.
This is what I’m having too. They’ve added ribociclin for 3 years after the radio as well for me.
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Did they give you a % that that will decrease it by. I’m sure she said 3/4 % to me for ribociclib too