@lmack95 so sorry you’re feeling so bad, hope you’re keeping in touch on the support line re the vomitting, and oral thrush- I know there’s definitely something I’ve heard of people taking to help with that. Really good that you’re managing daily walks though, that’s good both physically and mentally. I guess if they’re throwing the kitchen sink at you that has to be a good thing in terms of beating this bugger. Lots of us have different varieties of treatments and we all have so many varieties of type of BC, stage, grade, lymph involvement , so we have to trust it’s tailored to our needs. I’m on a fairly basic plan, and sometimes worry a bit they’re not giving me enough!!
You can do this , sending you strength and positive thoughts xxx
@jtspg, I think on this journey we can never speak too soon,always something to surprise us!!
Sounds v tough for you with sister. You need to stress that this cleaning needs to be done as you are susceptible to infection , and obviously as you are ill it’s her that needs to be stepping up.
You’re also allowed to feel sorry for yourself sometimes, all of us are ,there. We can’t be expected to be these “ brave warriors" all the time, that’s just nonsense! And here is a good place to offload.
Take care of yourself and be kind to yourself. Sending hugs xxx
I just read this after posting on October thread. After tolerating filgrastim, for my fifth night my back pain was immense. Feel like am being bent the wrong way!! Was going to ask re codeine, was it easy to get prescribed? I have a few left from surgery recovery but not many.
If an oncologist prescribes something for pain do you get given it by chemo nurse or does it have to go through GP? (You can tell I am a noob at this haha!) x
This is a rubbish journey and you can say so as many times as you need. And like you I feel really daunted by doing this over and over.
We’re all here and dump as much as you like. No one will tell you that you are over thinking or ‘keep positive!!’ when you just need to say it.
So sorry about the oral thrush, that’s a thing to endure on top of the rest. I am suspicious I may be developing the vaginal version as have a tendency to it when run down and it can get quite severe and painful
Gentle hugs to you. Please keep an eye on yourself if the people you live with have colds and flu. Xxx
Agree @jtspg you are especially not supposed to be scooping pet poop for your own safety so maybe emphasise that part to your sister. So hard.
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Also hi @pretoria am just tracking back as there are posts I have missed in all the busyness of coping with things. Wanted to say hi.
I’ve had several scans that showed up things that needed further investigation. They are really looking under the bonnet, and finding things we didn’t know were there, and not necessarily cancer related.
I have two large fibroids and sclerosis in my left hip apparently! Everything seems to lead to other things… they kept delaying my surgery while they checked things but my breast surgeon put his foot down at one stage !!
My experience is that on day 7 of the fligrastin, severe bone pain, like a pulsing pain, can kick in. I was advised to take paracetamol and antihistame an hour before each jab.
The first round, the pain was scary but codeine, paracetamol and antihistame eventually manage it for a few hours. In all, the pain lasted about 36 hours. The second time, about 14 hours.
My chemo nurse asks about pain each time, and they do give you codeine to go home with after consulting the oncology doctor the same day. No one should have ro endure pain
Sorry to hear you’re suffering! Can they up the antisickness meds at all for you? Throwing up is horribly draining I felt awful first evening from throwing up but they adjusted meds and have been ok since, though today is first day off the strong ones so will see how that goes
Welcome to the group, I had my first EC on Friday but I’ve already done 11/12 weekly paclitaxel (one was skipped due to neutropenia) as I’m triple negative so following the keynote protocol. I wasn’t brave enough to try the injections at night in case I couldn’t sleep but I’ve found that two loratidine an hour beforehand has made them very manageable for doing in the morning. Best wishes for your treatment, will be thinking of you on Thursday xx
I’m so sorry you’re having such a rough time. I was told right at the start that with modern medicines I shouldn’t vomit at all. I’ve pushed for the absolute maximum but some of the drugs clash with my existing medication so I know there’s something else available that I can’t have which may be available to you - levomepromazine. I was given the aprepitant to take home so I could have the initial dose a full hour before beginning my appointment, then there’s two more capsules of that for days 2 and 3 (I think longer courses are technically possible but they absolutely wouldn’t give me them!), then I have iv dexamethasone and iv ondansetron as premed and oral dexamethasone (3,2,1 tablets daily for days 2-4 to tail off), oral ondansetron supposedly evening of treatment then 2x daily for days 2-3, however I’ve been stockpiling them and intend to take for a week, I have metoclopramide as needed for rescue but tbh I take them 3x daily and will be doing so for 5-6 days. I hope this is helpful to see what is standard / possibly marginally extra after making a fuss vs your own situation where you desperately need extra help. Ondansetron is constipating too so could help if you’re still suffering in the bathroom. Again, really feel for you, absolute worst nightmare, I hope you get a much better experience next cycle as this isn’t normal or in any way your fault.
Have you had any neutropenia? I was wondering if I got given a hefty 7 days after I had to miss one of my taxane treatments, then I thought maybe it was dependent on interval so 3 days for weekly treatment, 5 days for fortnightly etc but seems I’m wrong!
Also has anyone had estrogen withdrawal bleeding on the zoladex? I am bleeding quite a bit and it’s more liquid than a period so can’t really tell if it’s normal it’s so weird😫
Honestly, they say you won’t get all side effects but I have at least half so far
Anyway feeling much more myself today and managed TWO walks!
I’m so glad you’re feeling a little better it sounds like you’ve had a really hard time and gone on a long time too, glad you managed to get out. I had a little walk with dad and it’s lovely to be outside
I felt awful first evening from throwing up but they adjusted meds and have been ok since, though today is first day off the strong ones so will see how that goes 
who knows 