I think ‘Mazel tov!’ might be the right response Emma?!
If it gives you heart, I started shedding about day 15 and here I am day 23 with still a reasonable head of hair. Today might be the day I have to clip it, but I’ve thought that every day for the last week. It is a little bit Kim Jong-Un at the mo…
I think the best advice is probably, ‘hope for the best, but prepare for the worst’
Xx
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Sorry Ele, you have really made me smile with the Kim Jong-un comparison. I am sure you wear the look a lot better than he does.
Noticed this morning that the fine hairs on my forearms have now gone. I only ever normally notice they are there when I’m somewhere hot and they go blonde but now I know they are gone I’m missing them. The last few evenings I’ve felt like I need to put on the heating a bit earlier than normal as have felt chilly. Perhaps this is because I don’t have the extra body fur now to protect me.
Just back from my first session, it went better than I’d thought, although I did have a few tears when the lady next to me asked if it was my first time, I think it was all just building up inside and she was being so sweet and nice it just set me off. Anyway got myself together and hot on with it. I kind if feel I’m just sitting waiting for something to happen now…fingers crossed I hope it’s not too bad xx
Well done Audrey, one down. Take all your anti-sickness regardless of how you feel and drink plenty of fluid and I’m sure you’ll be fine x
Well done Audrey. You’re on your way now. I know it’s odd waiting for something to happen and not knowing what it is. I hope you gave a good evening and not much happens.
kim Jong un made me smile too. Another delight in this whole process. My hats have arrived, but I’m really starting to hope I won’t need them. I feel quite sad about the possibility of losing my hair and I think that now it could be quite close it is worrying me more than I expected it to.
Emma D xx
Me too Emma re the hair. Thought I would be strong about it but now I’m getting closer it seems more scary. At the moment I just want to get through my friend’s wedding tomorrow and then I’ll deal with the next thing.
Hope you are feeling okay Audrey.
Sleep well dear people of this thread and thanks for helping me through another day. xxxx
Hi ladies,
just a quick hello and hoping we’re all doing well on an otherwise gruesome rainy day - I’m on day 4 of FEC 1 and keep falling asleep, sickness has gone, just tired now. Eagle partially landed yesterday, I think it’s gone back to the nest to roost…
hope you’re all okay and staying strong, much love xx
Emma S X
I’ve had a few stray hairs coming out today. Nothing major, but clearly something is starting to happen. Lady garden continues to thin. Fingers crossed for the cold cap success. How is hair watch with everyone else?
I hope those who have recently had treatment are doing ok. It’s been quiet on here’s today. I bet you’ve all been out shopping and having a marvellous time. We’ve been in Cardiff today for the uni open day for my daughter. I’ve just ordered pizza from our local online place and looking forward to an evening in front of the telly doing sod all!!
Emma D
A few stray hairs here as well Emma D. Think I’m going to be giving our two semi-long haired cats some competition in the moulting stakes before too long.
I went to see a friend get married this afternoon which was lovely and met up with some friends I’ve not seen for some time. Several people commented on my turban which is covering the hair that’s not been washed for several days. Luckily there were lots of hats and fascinators so I didn’t stand out at all.
Lazy night with pizza for me too.
xx
It is quiet on here today. Well I’m sat here all snug in my caravan watching the X factor, drinking Diet Coke whilst everyone else is having a beer or 3, I just can’t manage any, both times I’ve tried it’s given me a cracking headache.
Another headache is my hair, it’s everywhere, in the sink, toilet, bed, floor, dinner, i think in the next day or two it maybe time to bite the bullet and get the clippers out. As for the lady garden, well that’s long gone!!!
Anyway, hope your all keeping as well as can be and enjoying your Saturday night.
Jayne x
Morning ladies,
has anyone else got a portacath? I’m finding it really hard to get used to - though it’s only been in a week - it feels like it’s touching my throat and it’s such an odd feeling, it’s waking me up. Should I give it a bit longer to get used to?
Emma S xx
Morning everyone.
Sorry Emma S, I don’t have a portcarth as I keep being told my veins are too good. I just hope they last out to the end of all this.
I have taken to wearing a hair net in bed as recommended by someone somewhere on this site to catch the shedding. It’s very Ena Sharples. I’ve not taken it off yet and figure that if I don’t then nothing untoward will happen. Denial or what?
Hope you are enjoying time in your caravan Jayne. It’s a lovely sunny day here today and I might try and do some gentle gardening.
Hope everyone who has had treatment this week is coping okay. Can’t believe that quite a few of us are already counting down to our next session in the coming week.
Happy Sunday all.
xx
Sorry you have been feeling a bit blue Ele but totally understandable. I can go several days without worrying too much about it all then suddenly a thought creeps in and won’t go away. I met up with a couple of friends locally for dinner on Friday. On the way back home there is a small hill and by the top of it I felt really breathless. Now logically I know it’s because I’ve been mostly sat on my backside for the last eight weeks recovering from surgery and trying to take it easy after the first chemo. And I am not climbing four flights of stairs in my office every day because the lift seldom works but of course I started to think, on no, lung secondaries. I’d forgotten about it by the time I woke up yesterday morning but it’s easy to get into a state thinking about all the “what ifs.”
Anyway well done for tackling the hair and putting your face on. I’m a great believer in the latter helping me face the day when I’m feeling rubbish, although today I can’t be bothered and am sitting here in the hairnet of denial looking as unglamorous as it’s possible to be.
Look after yourself.
xx
I have a portacath, and it definitely felt weird a first. I felt like I had a stiff neck and was very aware of it all the time. I had it done on the Monday before my first treatment, so it is 3 weeks tomorrow and it’s only on the last week or so that I can say I have 't noticed it as much. I still feel it if I roll over in bed or if I lie on my back and the skin over my chest tightens. I dislike it, but I know there are benefits. I will however be celebrating big time when it comes out.
Sorry to hear you are down as well Ele. Mostly I’m keeping very positive to the point I almost wonder if I should be taking it more seriously, but then sometimes I feel rather panicky when the reality of it all hits me. I suppose it is natural and we will be on a roller coaster of emotions. It’s great to know we are in the same boat and when we are down there is someone to pull us up. Hugs xxxx
Hi all, signal a bit hit and miss here, so grabbing an opportunity whilst I can to post.
Peggy Cat, I was wearing a little sleep cap, but got up this morning to the biggest hair loss yet, I was so fed up of picking hair off everything food,drinks, sink, toilet, so today my sister in law who has luckily brought her clippers to the van shaved it off for me, it feels very weird, she has took it to a number 1, but it is still very patchy where it has come out completely I’m sat in the caravan looking a bit like Phil Mitchell, so I put my face on and put a scarf on and everyone has commented how nice I look, I know there probably only being nice, but it did make me feel better.
off to the outdoor cinema with all the kids later to watch ghostbusters!
Hope your all feeling ok thus evening!.
Keep well Jayne x
Chris, our chemo-twinness strikes again. I too have questioned whether they gave the right drugs or if for some reason they haven’t worked properly as well!
Enjoy the glass of red.
Morning ladies.
i’m wide awake early again which is par for the course for me at the moment. Day 18 and hair watch continues. Apart from a few strands when I run my hands through my hair, there is still nothing significant happening. Who else used the cold cap? I’m trying to see if anyone thinks they may have had success with it.
countdown to FEC 2 is on indeed. I have my blood test on Thursday and then treatment on Friday all being well. Upping the bran in my diet from today!!!
have a good day all. We are off to Thorpe park today. My family were joking yesterday about me ending up like a dandelion on the rides. Funny, but I hope not.
Emma D xx
I also meant to say well done Janey. Very brave, but good to be in control. I’m sure you’re rocking the scarf look! Xx
Hi Emma S I have a port & felt like someone had their hands round my throat for the first week, but it does go. Hang in there. xx