I just feel really tired really. And not very energetic but then again I’ve had little to eat in last 24 hours so that’s not going to help. Random readings on thermometers but not over the limit. I don’t know if it’s just my mind running away with me. How did you feel when you phoned the nurses Ali?
How are you Ali49?
I nearly rang my helpline when I woke up after an hour’s sleep feeling awful with a ball of acid in my stomach and feeling like my skin had been stretched on stalks. I was shivering after being sick but I drank some water took a lansoprazole and managed to get some sleep so it passed. It is so scary not knowing what is normal and what isn’t.
Well done Karana! Hope you had a nice time with your sis? I’ve had exhaustion hit me hard today - it’s day 9 and I had thought things were getting better. Quite a lot of acid feeling in my tummy and just feel listless. Lovely to have my mum here and she’s making me some soup and marmite on toast so that might perk me up in time for Strictly! Have a good evening all hugs xx
karana, good to hear you’re doing well. Yes today hasn’t been too bad took one donperidone earlier today but nothing since. Friends came round but didn’t stay long which was nice. I do keep having the old 30 mins of not quite feeling right and a bit of anxiety (no idea why), mainly mid morning and early evening.
Chaffinch, Claire-bell I also had an acidey feeling yesterday evening I think it’s because I overdid it a bit with fatty, acid food (my friend bought me a little bake well tart, then I had cheese on toast with some tomatoes). Today I’ve stuck to plainer stuff and feel much better. I think I’ve also worked out that early evening is when I seem to feel the worst but am ok once I’ve eaten.
now also watching strictly!
Claire bell yay another marmite lover xxx lol
Nice to hear some of you doing so well and the rest of you who are feeling a little fragile hope you feel better soon
Hugs to each and everyone of you xxx
Donperidone made me feel funny. It works on the heart so made me dizzy, a bit sick and a bit of a fast heartbeat. I had felt great but the next day felt fluey and then had awful back pain. I didnt have a temp but just felt awful. The nurses never mind you checking in with them. Hope you all have a good night and feel better xxx
They did with me cherry so my gp gave me cyclizine, which works on the brain. I only took 1 then didnt need any more. I think nothing is a given. You just have to see xc
Morning ladies, hope you had a restful night. I still have no side effects other than fatigue and feeling like I need to eat anything that isn’t nailed down after my steroids in the morning! Maybe the side effects will hit me a bit later in the cycle but reading all your up dates is does show how different it can be for everyone. xx
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Morning runnerbean I had a dreadful nights sleep but probably because at the moment I have to save all my wee for testing (medical reasons) and at 4am whilst trying to wee in a jug whilst still half asleep I managed to wee on my feet so jumped in the shower to wash them. Bit of a mistake as it woke me up completely should have just got out baby wipes ??x
Runnerbean, good to hear you’re doing well and I hope it continues for you.
SueW sorry to hear you didn’t sleep well but you have your reiki today? You’ll probably fall asleep during that lol.
Woke up feeling really anxious for some reason this morning and a bit jittery (hadn’t taken any meds since yesterday am, so don’t think it can be that). Just been to Tesco to do weekly shop felt a bit sick and giddy whilst walking round then started to get into a panic but was ok once I got home. Now back on sofa, not really sure what to do with myself as I don’t really feel tired or ill but every time I try and do something I don’t feel quite right either!
Yes reiki at 2 healer coming to my house
Hope I lie down whilst it’s done cause if I am on a chair and fall asleep could end up falling off lol x
Just do what you can when you can be guided by your body x
Feeling jittery does seem to be a thing. I blamed it on the steroids at first but I’m not convinced. I’ve not had any since lunchtime yesterday but still feel a bit that way and my skin feels stretched and a bit spikey too.
Glad that you seem to be doing ok Runnerbean 
We are all so different which must make treating us quite a challenge!
I’m feeling quite jittery today too…and also not ill enough to not be doing anything but don’t know what I shld be doing! Took dog for another walk and waved off my sister now I’m feeling a bit lost…!! Eating melon as I seem to be liking that!! Xx
Morning Sue, I know it probably wasn’t funny in the middle of the night but you made me laugh. Reminded me of the time a big spider ran across my foot when I was on the loo and I jumped up! xx
I must admit to laughing to myself x have to find humour where I can take it ?
If anyone has the chance to have reiki grasp it with both hands I feel so relaxed xx
Sounds like you enjoyed it SueW. I have some reiki booked but couldn’t get booked in until end of November.
I feel reassured that others are also feeling jittery and it’s not just me (although I am sorry that you feel like that)! Having another day on sofa especially as it’s now raining!
Karana, hope you enjoyed your time with your sister.
Sorry to hear it is raining where you are Meesh73.
We have had a few hours of really warm autumn sunshine so we went for a walk and stopped at a coffee shop with nice clean outdoor tables (everything gets careful inspection from now on!) had a pleasant coffee and warm fruit scone in the sun not what I was expecting this weekend! Grab the little pleasures of life where we can. Caffeine hasn’t helped with the jitters but hey it was nice.
Back on the sofa now watching through the window as hubby scrubs the chicken house out ?
It wasn’t too bad here earlier but now just drizzling. Glad you managed to get out for a bit.