Good luck tomorrow Sue !!!
Thanks for sharing your fb post Sue! It was really nicely written and covered everything! How do you dm people in the forum here? X
Claire and Cassie, can I join your carriage please? My 2nd cycle is on Monday. Though I’ve always hated rollercoasters!!
Lots of love to everyone starting tomorrow xx
Sue, your FB announcement is beautifully worded, I wish I didn’t have to keep messaging everyone but at the same time I’m not ready for that yet.
My hair’s kind of aching today, I’m not sure I’m ready to start wearing the scarves yet. I really wasn’t worried about it in the build up to all this, but now it seems to be affecting me more than I thought.
Lots of love ladies xx
Reboot of course you can join. Everyone is welcome. Don’t worry we’ll all hold hands. The chemocoaster is like life. Every now and again you just have to throw your hands in the air and scream lol.
Cassie x
Hi Reboot
I’ve had an itchy scalp all day today too. I realised today I don’t want to loose my hair either and feel like you but I think I’m going to get a nice hat and not worry to much about a wig maybe? We will see! Hugs for you for Monday xx
Evening Ladies
Not sure whether I should be posting here or in September starters but I know quite a few of you on here so I thought I’d just post a quick update on my 2nd chemo sesh. Couldn’t post yesterday as I went out for dinner after my treatment (yeah, getting a bit cocky now!! ?)
As with last time the actual treatment day was somewhat eventful. I had a trainee chemo nurse putting my cannula in, unfortunately she made a bit of a bodge of her first attempt and I nearly passed out!! And cos she’d hurt the first vein she then had to inject the epirubicin (the scary, potentially flesh burning red drug) manually with a big plastic syringe which was pretty uncomfortable too. Not convinced she totally knew what she was doing. When I almost fainted she tried to take my blood pressure on my leg but that didn’t seem to work either. I suspect she’s actually a trainee at Argos but somehow ended up at Clatterbridge…
The magnificent news for all of you in the Cold Cap Club is that this time the cap was a much less harrowing ordeal. I think my electric throw really helped and I’d upped my painkillers from paracetamol to cocodamol.
Unbelievable really that it wasn’t as bad because due to all the faffing about with my newby nurse I must’ve had it on for 4 and three quarter hours!!! ? I better not lose one single strand this cycle!!!
Today, very little to report. Feel totally normal - not even my rosy cheeks this time. The only low point was having to attend a meeting with a new client and explain that I don’t usually pitch up at meetings looking like I’m sleeping in the woods. I’m just glad that during my last oncologist appointment she announced that my lump had shrunk by half a centimetre or I’d honestly question whether the chemo was working!!
Anyway, glad to see you’re all perky as usual. Really sorry to hear about your picc line Runnerbean. I decided against one of those and despite my nurse apparently digging for potatoes in my veins yesterday, I’m still going to persevere with the cannulas now.
Cherry Bakewell xx
Hi Cherry Bakewell sorry but that really made me laugh, I’m sure it can’t have been a very nice experience but I can just imagine an Argos trainee digging for potatoes in your veins! It’s encouraging to hear you feel equally well after your second session. I too didn’t really suffer too much after my first one so hoping for the same when I have my second in a couple of weeks. They also had trouble with the cannula in my hand (no trouble finding the vein or putting it in, just decided they wasn’t happy with it) and opted to put it direct into my arm. The guy who put the one in my arm was brilliant there was no bruise at all and I didn’t feel a thing! I hope it continues to go well for you.
Evening all cherry as usual you have my laughing and make this path seem so normal ?
Clairebell if you press on the persons name as long as you are logged in you get the option to private message them
Well I just been for a meal for the hubby birthday and going to try and have an early night ready for tomorrow however the 2 hour nap this afternoon might put a stop to dropping off to sleep easily x
Good luck tomorrow SueW and anyone else starting tomorrow. Remember to drink and have your sweets around. I have been ok today, day 16 and went for a lovely walk in the sunshine and a nice lunch with my friend. I even remembered to put sun lotion on!! I am also feeling tired Cassie and Claire. My 2nd trestment is the day before you.
I noticed this morning that my hairy legs are no longer hairy, my pubes are going and my hair has definitely started shedding. I had a little cry with my mum this afternoon!!
Anyway i have pulled myself together and said to my kids that we are going to think it can go now, in the Autumn, with the leaves and come back in Spring with the flowers!! As long as it doesnt come back like grass!
I just notices in the Marie Claire magazine that the up and coming trend this Autumn is the silk headscarf. Just like my mum used to wear, tied under the chin. What more could we ask for to keep our wigs on!@
Hope everyone gets a good nights sleep xxx
Good luck tomorrow SueW and anyone else starting tomorrow. Remember to drink and have your sweets around. I have been ok today, day 16, and went for a lovely walk in the sunshine and a nice lunch with my friend. I even remembered to put sun lotion on!! I am also feeling tired Cassie and Claire. My 2nd treatment is the day before you.
I noticed this morning that my hairy legs are no longer hairy, my pubes are going and my hair has definitely started shedding. I had a little cry with my mum this afternoon!!
Anyway i have pulled myself together and said to my kids that we are going to think it can go now, in the Autumn, with the leaves and come back in Spring with the flowers!! As long as it doesnt come back like grass!
I just notices in a magazine that the up and coming trend this Autumn is the silk headscarf. Just like my mum used to wear, tied under the chin. What more could we ask for to keep our wigs on!
Hope everyone gets a good nights sleep xxx
Dont know why thats posted twice with a change in!
Ali, I like that thought about the hair going with leaves and coming back with the flowers. Very timely how lucky for us to be able to make that positive and lovely analogy!
I am trying to make it doable Meesh. My path is fill of leaves - eventhough i dont have a garden or a tree! So as i was brushing them up the thought just came to me! How are you feeling about the hairloss?
Ali what a brilliant way of thinking ?
Thank you all for your good wishes will update tomorrow x
Ali, I’m cold capping so in denial and trying to hang on to it! I keep hoping it’ll be ok, but expecting it won’t as I wasn’t that confident that the fit of the cap was right or that they left it on for long enough (I had trouble as the first machine wasn’t working and I only realised after 10-15 mins of having it on). Then there was a lot of faffing about switching machines, so not really sure what time I ended up getting it on. Anyway, I’m picking up my wig tomorrow and I have some hats, although not really sure about the hats (they seem too close fitting and make me look like I have a pea head and that’s with all my hair still). I like your positive thoughts though so I’m going to pinch them and if my hair goes then I’ll think of it as the leaves!
Good luck Sue. I’m sure you’ll take it totally in your stride as you did shaving your hair. And my very best wishes to anyone else starting their chemo. I promise you it won’t be anywhere near as bad as you’ve built it up to be in your head.
? Bakewell xx
Only just managed to catch up on this afternoons/this eves posts and would like to say thank you for putting a smile on my face…it’s so refreshing being able to converse with people that are going through, feeling & thinking the same!!! When else in life will we be able to discuss pubes falling out with people we’ve never met (by the way I also haven’t shaved mine coz want to see when they start falling out, bizarre I know!!)
Ive had a good day again today, went out for coffee with a couple of good friends and actually felt like I was a normal person!! Only strange thing is my speech, I keep having to really concentrate on what I’m saying, it’s a bit like when you’ve had 1 too many wines but your trying to act sober!! Talking of wine i still haven’t had any and don’t even fancy it, that’s 8 days without an alcoholic drink which is very unlike me, has anyone else become tea total?
Good of luck again for starters tomorrow xxx
Oh and I’m having a Think Pink party in the pub next Friday, have started selling raffles tickets today, better make sure I get some raffle prizes!! Also gonna wear a pink wig!! If anyone’s in the Norwich area feel free to pop in ?? ?
Hi all,
I’m awake early again! So good to hear that your second cold cap was less awful than the first Cherry! I didn’t like it at all and have been thinking of not having it the second time!
All new starters today- be confident, take a book, some cards, some snacks and a smile. It’s going to be alright- we all did it and are still laughing, living and carrying on! It’s a long day, good if you can have someone with you, but there’s always someone in the chair next to you to share experiences with and the nurses have good advice. If cold capping take paracetamol half an hour before and concentrate on your deep breathing for the first twenty minutes then you will be back to chatting, texting and calling your friends and family and whether it’s in for three or four hours you won’t be bothered after that! Take a wide sweat band for your forehead too. Love to you all! Hugs xx
Claire, that was my feeling x I wasn’t fussed about a wig at all, but having bought a pretty hat, it now all looks too ‘cancer patient’! I didn’t realise I wasn’t ready for that ?
Cassie, I definitely need to try the screaming ??
Ali, I absolutely love that analogy! I think I’ll use that with my son to help explain it all ?
Karana, I didn’t actually realise that I could drink during chemo! I was on antibiotics for a couple of weeks before it started and then just assumed, I think! I’m so conscious of my water intake, I haven’t even dared waste that space with a glass of red ??If you have a good non-alcoholic margarita recipe, I’d love that!!!
Love to everyone xx
(I haven’t seen Patchwork Girl’s name appear for a while? Is she OK?)