October 2017 Chemo Starters

Post surgery Bra on asda website front fastening 2 for £15 had them delivered to my local store very good too x

That sounds like really good value SueW the m&s one was £25 I think, luckily I had a gift voucher so used that. 

Meesh73 you should have been given an antisickness to take 1hr before chemo if on fec-t have you got that sorted yet? Jencat, even if you are negative for the gene, the girls potentially could get it from dad, i’ll Let you know in December my results. Has anyone heard from chaffinch? My neutraphils have gone up to 1, so hopefully they are on the way up and i’ll Be able to go home mom or tue. Thanks everyone, casa nhs is doable with everyone on the forum. Love and sparkles to everyone​:sparkles::sparkles:???shi xx

Hi Shi, I didn’t have them before first session they gave them to me on the day in a drip beforehand (like SueW). However, I do have them now with instructions for my next session so won’t have the drip next time. Not sure why, just the way my hospital does things I guess. I also didn’t get any daily injections to do either like some on here, again I guess it’s just how my hospital works. I am only only fec so won’t be having the t part don’t know if that makes a difference. Glad to hear it looks like you’ll be able to go home soon.

Hi meesh yes 5 injections after fec to boost white cells… fat lot of good they did eh for me, my went on holiday for a bit longer than they should have. No t, lucky you? mai7 told me there is 7 injections to have after that, so t people in waiting once we’re through the fec, more daily injections ? I’ve got 2 more fec and then 3 t, at the moment, what’s everyone else having? Love and sparkles shi :sparkles:???xx

That’s strange because Ali also had the injections and also ended up in hospital with an infection and low wbc. Perhaps I’m glad not to have the injections! Guess time will tell when I go for my blood test next Monday, prior to my next chemo on Tues 24th.

Chaffinch, meant to say you sound like you have an amazing hubby! My OH is great and does do quite a bit round the house compared to others, but as soon as he could see I was ok he gave me a kick up the bum and had me back to my normal housework duties! 

Sound like ali and I have been the ones with the white cells taking a holiday. How’s ali doing now? My nurse didn’t come till 5pm to do injection, I think I’d have been better off having them earlier in the day, what kind of time did everyone else get their injections? I just wondered for next time. Thanks everyone. Love and sparkles :sparkles:???shi xx

I have said I will inject my self so have got the jabs here
If I struggle my hubby is s diabetic and will do them for me
My nurse said it is essential that are done at the same time every day x

I was only given one injection to bring home for WBC did that yesterday after 24 hours post chemo. It’s odd how it’s different for everyone even on FEC.

Hi suew yes nurse did them between 3 and 5 so wonder if because not same time every day and so late is why I’ve ended up here. I’m needle phobic, but i’ll Bite the bullet and do them myself if it stops this happening again, ali did that happen to you too? Just curious if it’s you and me who have ended up in hospital in first fec chemo. Love and sparkles shi xx

Dizzybrummie, 1 injection, lucky you on that ?it is so different for all of us. Don’t know about anyone else, I never knew there were so many types of bc either till it’s happening to you, that was another thing to get head round as if we weren’t all in spin cycle in our heads anyway. Love and sparkles ?:sparkles:shi, I send sparkles and sprinkling of sparkles to everyone all the time because I’m determind to keep sparkling through to keep the twinkle alive :sparkles::sparkles:???shi xx

I love the sparkles too!

It is strange how everyone gets different drugs to take home. I had 5 injections after first FEC. Only came home with anti sickness whereas a lot of people came home with steroids too. I only had steroids to take before next chemo but none after.

Cassie, I find it interesting too. I guess maybe they really do tailor the treatment to the individual. I wonder if it depends on your blood results, your type if bc and what other treatments your having. Probably also depends on what they can afford.

 

Karana, looked up the Tropics range (never heard of it before), looks amazing. I’ve been having a go at homemade concoctions, so I know exactly what’s in them. Made a facial cleanser/ toner out of rose water, Witch hazel and vegetable glycerin which is pretty good!

Hi Shi and Jencat I am tn too. Sorry you are having such a tough time Shi.
My BRCA test is early Nov. I am 44 and turns out I have family history of breast and ovary - not that I knew until I filled in the genetics questionnaire. Funny the things your family don’t tell you! Turns out Great grandmother had bc and died at 39, then we can trace it back in every generation including my cousin who is my age :frowning: wish someone had told me and I would have taken the gene test years ago!
I’m post surgery FEC-T like you Shi - are you as well Jencat?
Have been a bit fixated on my tn status to be honest and using the nervous energy to focus on food and diet which I think can really impact tn as it is very metabolic (and less hormonal). Nice to find some tn companionship and sparkles :slight_smile:

Evening ladies, hope you have all had lovely weekends. I’m just reading about the injections and can’t get my head around why it seems different for all of us even when we are all on the fec-t. I had 7 days worth which I couldn’t do myself so my husbands been doing them. I also now have the daily bloodthining one for the DVT,s as well. It’s all gone a bit wrong tonight with one side swelling up in a weird way and the other deciding to start bleeding. Think it’s freaked my husband out he’s gone for a walk to clear his head! Thank god it’s the last night of needing the 2. I actually feel pretty good today on day 9 only needed a short afternoon nap so hopefully I am starting to recover from the first session now xx

Ruth, meant to ask you if you managed your run yesterday? How did you get on?

Hi Runnerbean so sorry to hear about your complications - sending healing thoughts and hope you get better soon.

Meesh yes dragged myself around for about 20 minutes :wink: a long way of 1/2 marathon standard lol but going again tonight. At least my boobs are smaller now (diet inflicted not surgery) so they don’t bounce around as much as they used too!!!

Runnerbean, sorry to hear you’re still suffering. Have you phoned up about the swelling? It’s so difficult for OHs I think they feel terrible that they can’t do more. They also want to try to reassure you but are not so sure of things themselves I think. Hope things sort themselves out for you soon.

 

I’m only on fecx6 so wondering if that’s why I’m not getting the injections?