Thanks. No ? so far ?
I was told lactulose too but I got some anyway as had a problem after taking codeine after surgery x
Read this one before I pressed send so hope no typos ???
I’d think about getting on to it asap. Karana said that peppermint & licorice tea helped her, if you’ve got any of that? I’d try the lactulose if you have it, was told not to leave it too long. Should be ok if you haven’t got anything to get some tomorrow.
Thanks ladies. I have post op lactulose kicking about
Anyone know how chaffinch and runnerbean are? Hope you are ok. Jencat 
sparkles for tomorrow. Dizzybrummie get some sudocream too for sore bum after constipation, helps ?love shi xx
Can’t believe how many posts on this thread since I last was here…66!!
I’m good thanks, had a very busy but lovely day. Got up cooked beef roast and apple crumble with our special ground and flaked almond topping for diabetic hubby. We eat low carb most of the time and avoid sugar. I eat loads of fruit and veg and amazingly managed to avoid post chemo blockage issues although I think metaclopramide anti sickness has slightly opposite effect so maybe helped a bit too. Had a nice long walk after lunch and had a coffee and a naughty glass of prossecco in the pub beer garden half way. I’m just making the most of feeling well, we never quite know how long it will last!
I’m on 6 x FEC and didn’t get injections to boost white cells either. I too can recommend Biotene mouthwash and toothpaste. I have two dry strips like sandpaper on the inside of the top of my gums and have had a couple of small ulcers right at the back corner on each side but otherwise ok and my tastebuds have been largely ok too and I’m still managing to eat spicy food which I love.
Hi chaffinch glad you’ve had a lovely day ??is your pee ok now? Love shi xx
I bought biotene but haven’t needed to use it yet. I normally use corsodyl daily mouthwash so have continued just using that and so far so good ??
You can use the Biotene 5 times a day so I have been using it after eating to keep everything clean. Also have the gel and the toothpaste.
My wee is fine thanks Shi just need to go quite often and isn’t quite as comfortable to hold but not a problem. I am drinking loads so probably down to that.
In the subject of bikes. I cycled everywhere as a teenager because we didn’t have a car and lived in a rural area so the only way I could get about and see friends. I then moved to a couple of miles outside Chester when I left home. I worked in the centre so cycled to work for nearly a year before getting into an argument with a concrete mixer on the way home one night. He didn’t see me on his inside while we waited at traffic lights and as he started off he headed towards the kerb, my only way out was to jump off, just as well I did because bike got mangled. Put me off cycling which is a shame. The roads are too busy now, only went out with the kids a few times and found it terrifying
Geez 6 pages of updates tonight! Its been a busy day!!
Day 19 for me and my hair has all but gone. Still had a full head of hair on Wednesday but has literally fell out over the ladt couple of days. Wore my wig all day today and it was fine. I have worn a cotton hat in the house. My daughter has really cried!!
Shi i ended up in hospital on my 10th day. Felt great day 8, felt fluey day 9 and had really bad thtobbing back pain early hours day 10. I also had hot wee but didnt really think about that. Anyway went to A and E, had no temp but my white cells were 2 and neutrophils 1.2 so i was kept in and given tazocin iv evety 8 hours. There was no sign of infection and my urine was clear but the treated me as a precaution! My white cells went up and were 4 by monday and my neutrophils were 2. As i went in on friday , i had to wait til monday to see tbe specialist oncology nurse and she said i was fine to go home.
My bcn said my treatment may be changed as this happened after my first chemo. I will find out on wed when my 2nd chemo is due. I did have 7 gcsf injections which finished on day 9 and they think they were the cause of the back pain which were around my hips and pelvis. Bones working hard to boost white cell levels. Obviously it dodnt work though!!
I am now eating kiwi fruits and drinking coc9nut water to try and boost my immunity and i am going toavoid people this time round between days 5 and 12. Hope you get out soon Shi xxx
Oh and my auntie has bought me live well honey which i have to start having the day after treatment she said her friend took it through treatment and never got any infections. It is about £40 a jar thougjxx
Chaffinch i have been using biotrne mouthwash and toithpast too but i still got a sore mouth. It imptoved wuickly after my gp prescribed biozytene mouthwash and daktarin oral gel for thrush so might be worth you getting some. It is on repeat for me now so i can just get it when i need it xx
Hi Chaffinch I’ve got the same going on in my mouth…it’s like a dry line right across the front bit of the roof of my mouth…I’ve got the toothpaste but think I need to go get the mouthwash tomorrow!!
just had a bit of a meltdown…hubby asked if I was gonna be ok wen he goes away tomorrow and I burst into tears…really didn’t want to do that…bloody stupid emotions!!!
xx
Hi ali, sound like we’ve had similar experience are you on fec too? Sorry to hear daughter been upset, if she’s young you could try and say mummy will need help to grow hair, like things grow in the garden and get her to help with scalp routine? Just an idea if she’s young and it could help her? I’ve not spoken to my bc nurse about it, did you ring yours and let her know yourself about the reaction to 1st treatment? Love and sparkles ????? shi xx
Thanks jencat ? she’s been on hear earlier and been out and about and all ok, I was worried about her pering, seeing as that’s what floored me. Hope you are ok for tomorrow and lollies at the ready, then survival pack of bottom help etc that we’ve all been swapping today. Don’t forget tho anything that you don’t feel is right even if no temperature rapid response it, don’t take any chances because apart from burning per, I felt fine and no temp, yet I was down to 0.5 when admitted. Days 7-14 A’s May ladies advised are when things are at their lowest, but keep eye on yourself anyway. Wishing you love and sparkles for tomorrow ???shi xx
Jen sending positive vibes for tomorrow
Will be with you in spirit xx
Karana, sending you love and hug ???we’ve all had a cry, the brave mask we all put on since diagnosis can slip from time to time ???it’s ok love shi xx
Best wishes for tomorrow Jencat, first few days were a bit rubbish for me but gradually got better and have pretty good for the last 3 days. If I’d known how well I’d feel at this stage I wouldn’t have been so down during first days. It’s the fear of the unknown that’s the worst. It really is doable x
Thanks Shi
Jencat I agree with Chaffinch…if I knew I wld feel as well as I do now I’m sure the first few days of feeling poorly wld have been easier! You will be fine ?
You will all be pleased to hear that after last Sunday’s experience after eating Chinese, my hubby is sitting eating it on his own!! ? Xxx