Into a cold sea!! ?(just read it back!!!)
Hi Ruth, gosh sounds like a busy week! I’m quite lucky with work as I can work from home, so did that last week (when immune system at lowest), then in the office this week. I have found it ok but do find it difficult to focus sometimes. My team are so busy at the moment that I think work are probably just happy with anything I manage to do! I am also making sure to spend time having a proper lunch break and went for a walk today too. To be honest if I didn’t have the chemo still on my mind it almost felt normal today, which is good ?
The best place that I’ve found for scarf tying tips is YouTube there are loads of easy to follow videos on there.
Evening Lovelies!!!
Been catching up on all the posts and having a good chortle at Ali’s tangled hairbrush story (that’s no doubt what I looked like first thing this morning) and Ruth’s Wee Jimmy Krankie hair reference.
Managed to survive the day with hair on head - despite ex-hurricane Ophelia’s best efforts. Hacked at hair currently resembling one of the Bay City Rollers on top, so have finally decided enough of the bad hair days - Raquel is to be summoned from her shelf. Almost all of my aggro since starting chemo has been hair-related which is ridiculous and self-indulgent, particularly as some of you have actually had to be admitted into hospital and here’s me still harping on about my damned hair!!! I may actually be admitted at some point myself as I shaved furry legs, armpits and tufty club with a razor this morning. Didn’t even cross my mind I shouldn’t be doing it!!! Jeez, this chemo lark takes some getting used to…
Anyway, very well done to Jencat and Reboot today. Jencat - the cold cap does get easier, although after this morning’s matted fiasco I’m not its biggest fan at the moment. Ruth, I’ve carried on working during chemo - just off for my actual treatment days. I’ve found it fine and as my side effects have been mild to fairly non-existent it’s no doubt helped to keep my mind off things. I’d say play it by ear though. I was quite blasé at the start but seeing people I know on the forum going into hospital has been a wake up call. I had been carrying on pretty much as normal but am now far more conscious of not doing too much…
? xx
SueW, sorry didn’t have the injections so can’t help. Ali and Shi are think did them so probably best to give tips on that! ?
Cherry I too have managed to have a fairly easy time of things for my first cycle, but was conscious of not trying to do too much. So have compromised by signing myself off for first week (and indulging myself with a week on couch and some walks) working from home the second week and then into office on the third week. Don’t think work are expecting me to manage to work for the whole of my treatment but i agree it does give you something else to think about. ?
???glad hair held up cherry bakewell ???you’ve good stamina everyone working through this, how on earth are you having chemo and working, are you all having kryptonite like superman instead of chemo? I want what your having and fec-t can do one.???
shi xx
Thanks Meesh and ? Part of me feels like taking a great big holiday! But I fear that if I dwell in the land of bc too long it will swallow me up!
I cut down I my assignments since my diagnosis but think that it might be good to still be my old self every now and again. I have a home office so pretty flexible on that score. I like the idea of signing myself off completely for a week and then upping the anti slowly for week 1 and then week 2. (All being well) although I know that none of it will be my choice!!! Let’s see where the rollercoaster takes me! ???
Cherry, almost meant to say you keep us all entertained with your tales of hair woe so you shouldn’t underestimate that!
???cherrybakewell, the visions of that, you are priceless:heart:
shi xx
Ruth, I also felt like just getting signed off for the whole thing but I was a bit worried about getting back to work afterwards. I may still need to get signed off later on in treatment but decided to take it one cycle at a time. My OH and my family were trying to encourage me to work more but I know what’s right for me and sticking to my guns, my regime seemed a happy balance. For me it hasn’t been the physical effects so much as the mental/ emotional ones. I think maybe have a plan of what you want to do and then play it by ear to see if it’s achievable! Hope it goes well for you!?
Sue, hope 2nd one goes as well as the first one for you, another one done on the countdown???love shi xx
Ha ha Cherry that would be hilarious (although probably not for you)! I’m just wondering how the hell you’re going to manage your hair underneath!
? that’s funny ?
Thanks Meesh - yes for me too the mental has been so much worse than the physical (so far). Would be good to get a bit of my old spark back and worth seeing if finding a way to work helps with the confidence and stops the introspection! ?
SueW, when you started talking about lining up powder I thought they’d prescribed you with cocaine to snort! Still amazes me the different treatments everyone gets.
Hi Sue, I am not good with needles so if I can get them done anyone can. Ice cube to numb things a little really helps. Only started with the ice cube in the last couple of days but it has really helped I honestly don’t feel a thing now xx
Cherry, I think we all feel we look like total lunatics in our wigs so you won’t be alone!
All went well with my second cycle, thanks for asking xx ? They’ve taken the F out so I’m just on EC until the T at cycle 4. They did change my antisickness drugs for some reason, and added a new tablet to help combat the sore mouth (which isn’t really sore at the mo). And I finally took the lorazepam I was prescribed a couple of week ago.
I just feel slightly nauseous, I slept for 2 hours then got up for some toast. Back to bed now with a dressing table covered in tablets, tissues, Rich Tea biscuits and bottles of water!
My husband’s on baby duty tonight as the lorazepam made me sleep right through her 4am feed last night!! ???
Oh and I’m sleeping in my sleep cap as I’m shedding rather a lot at the mo!
Lots of love to everyone xx
Hi Reboot good to hear it all went well for you and you’re bearing up ok. I took lorazepam for the first few nights after my first cycle as I figured one more drug isn’t going to hurt and if it helps me to sleep that can only be a good thing!
The Mersey is a fine river, well I didn’t like to mention tupee tape, shall we contact the whithouse to see where they set donalds?when I got one of my wigs it’s only a cheap one for now, I told them I’d be having no hair and they tried to flog me the clips to hold the wig on, I said hold it onto what i’ll Have no hair ??? Shi xx