Hi Everyone
I have not been on here very much
Was diagnosed with BC end of June had op mid July wide incision and a few nodes taken. But had a large 60mm heamotoma which decided to leak out of the main incision so had quite a few weeks of changing dressing and it finally stopped a couple of weeks ago.
I am starting my radiotherpay next monday 09/10/17 for 19 sessions not really looking forward to it but I know it has to be done.
I will take any help with creams etc.
Wendy
Well done Moody Blue!
Argymargy - I had my “breast review” yesterday after the rads with a new and very informed breast care nurse. We chatted about the bisphosphonates, and the way I thought the data had been stacked to get a significant result, and she agreed and added a few other interesting facts. I think I’ve decided that I will say no to the bisphosphonates but ask about the ADD-Aspirin trial. Rather than targetting bones, it helps prevent recurrence anywhere in the body. I take aspirin regularly anyway, so would be happy to take a daily tablet.
Today was the first of my four boost treatments. I wasn’t sure what to expect, but it’s just like the other treatments except shorter :) Three to go! Boob still holding up well, although a bit pink now and with a little spotty rash. I suspect it will get worse before it gets better, but it’s not painful and not particularly swollen.
Hi
Joining this thread as I hope to start my treatment on 18 October but have to get the green light from my Oncologist first. I went to my planning appointment yesterday and felt like a real idiot when the Radiologist said to me that an area at the side of my breast was red and hot and had I noticed it??? No - I hadn’t but my breast had been sore for a couple of days but I have been more concerned about the wound heaing than other areas of my breast. They had to call the Oncologist to come and see me whilst I was lying in the CT scanner so she had a look, prescribed 7 days of antibiotics and an appointment with her on the 18 October. If she isn’t happy then the treatment will have to be delayed - they said a week. The area that is of concern is nowhere near my wound but strangley enough seems to be around where the tumours were - had 5cm of tissue removed after having two tumours - one 1cm and the other 3cm directly in front of each other. No-one at the hospital seemed overly concerned about it apart from me.
Just a bit bit fed up and wondered if anyone else has had this issue?
x Fiona
Thank you all and I won’t have a problem eating chocolate lol!!!
x Fiona
Eight sessions done. Seven to go. Aveno do a body wash - recommend it.
not much redness yet. Aloa vea in morning and aveno in afternoon.
Very tired today. But have cleaned the pit that is the 17 year old’s bedroom so feeling virtuous.
have a lovely weekend people.
With 8 of 15 done today I am flagging. In fact, today’s session was due at 1pm but I finally went in to my appointment at 2.55 and it took longer than usual as they had to redo the measurements as the image they wanted was not right. So, I got out at 3.30 in the end. When I went in they kindly asked me how I was feeling and I said fine… as I so often do when asked this question whether or not I do - it’s a British thing? They must have heard something in my tone because they said, are you sure? I admitted that I am feeling a bit low in mood but no physical reactions but they said I must tell them as they want to know about mood as well as any physical responses. That made me feel tearful for the whole session. I didn’t admit that I beat myself up about this because I feel that I should be feeling better as I have been relatively “lucky” in the grand scheme of BC things. Gosh I really can’t wait for the end of it. All the to-ing and fro-ing, having to go very early to get parked, the struggle to park and then waiting around ages as they are overrunning as well. the cancelled/rescheduled appointments due to the machines breaking; the undignified posture lying there half naked whilst they fiddle around getting the precise measurements and drawing all over you and despite knowing it doesn’t matter I do feel worse when it is young male radiographers, professional and kind though they are. Pretending everything is OK, seeing the other people with far worse problems in the waiting room, I hate the waiting room… it has dim lighting, it is quite warm and sometimes a bit smelly due to food odours from somewhere nearby, lots of medics walking through, people who all seem to have someone with them whilst I try and read my kindle but not getting very far, can’t concentrate, they might call my name. Overrunning on time, did I check in properly as I have sat here ages. Can I go to the loo or is that when my name will get called. Very poorly looking, visibly affected folk reminding me how lucky I am not to have had chemo but somehow that doesn’t make me feel any better. Driving back home in very busy traffic but wanting so say beam me up scotty instead. So tired. Rant over, tears shed. Back again tomorrow for #9, downhill slope now - it is all going well I guess, mustn’t grumble.
Lady - are you me? I know exactly what you mean about the lying prone and the nice male radiographers and the ill people who look ‘proper poorly’ as opposed to me who looks fine. The mood thing I can really identify with. Fortunately our building is luffly as is the waiting room. I’ve only got six more to do. Today was a bit mad as it was son’s diabetic clinic appt so We had free parking at radio, we walked round to diabetic (bit of a trek and managed to get lost), told diabetic nurse I might not be there - son is 17 now so he can look after himself. Dash round to radio, get seen early, dash back to diabetics. Go in to his consultation. As usual he is getting the third degree and told off (they are never ever happy with anything). Then we walk back to car. Then drive thru really awful traffic to the only starion with someone in the ticket office as son has lost season ticket.
Ahhhhhhhhhhhhhhhhhhhhhhhh
Hwin
Ringing the bells for you tonight, yay your did it, congratulations on finishing your active treatment, hope you are doing something nice to celebrate. Keep an eye on things for the next couple of weeks as the effects continue.
Helena xxx
i went to my 4th rad ap today and as i had a stinking cold i decided to stuff tissue up my nose while i was haveing the treatment so i must of looked a right state with that sticking out but i was past careing ,and the girls thought is was a good idea,i prefer when you have the girls doing it it just feels weird and a bit funny haveing two men hovering over your boobys but then they are only trying to find those weeny dots to line you up ,i always have a snickers bar of chocolate before i go in so thats adding up to alot of chocolate but who cares if the body wants then it can have it,booby is holding up good so far with the aloe vera felt o.k sometimes the machine makes me jump when it makes a noise or starts moveing but then i have been watching it like a hawk especially when its really close to you i must focus on the pretty pictures they do and not at the god damn machine it was creaking a bit today and i thought just be my luck if the ting falls off its gonna be heavy funny what you think when your laying there xxxx
Thank you Helena, very happy indeed to be finished!
I am starting to get a bit of an uncomfortable/red/spotty around the boob, and especially in my armpit, but that didn’t appear until the weekend, which would have been after 18 treatments.
I will keep moisturising :) They did offer me some Zerobase today, but I think I’ll stick with my nice essential oils lotion.
It was definitely the easiest part of treatment - I had the same appointment every day, always arrived about 10 minutes early and always got seen straight away so no waiting - and home on the same train I would get if I was heading home from work, so no tiredness. I have actually had it pretty easy - chemo was fine, the op put me out of action for about a week, and the rads are done now, treatment all complete for me 
Keep going, ladies, it’s nearly done!
Hi
felt poorly today. Generally grotty and feelng sick. Managed to drive to rads and just back. Have been drinking water all day. Does or did anyone else feel like they are walking through treacle and feel a bit sick?
mood a bit low today to. Bit of thoughts of ‘what if it comes back’ etc, etc. Lots of obviously really ill people including one poor chap who came out with a very bright red throat area. His wife had been talking hospices to another lady.
Joanne
I think you have finished rads today so ringing the bells for you today. Take it easy for the next couple of weeks as you will still be feeling the effects of it, but thats it now active treatment all done
Helena xx
Mancity Helen
RInging the bells for you today as well, thats it all done active treatment over. Just be careful over the next couple of weeks as you might still feel the effects of the rads.
Helena xxx
Another appointment has been rescheduled making my last session a day further on… grrrr, probably too early to plan a celebration day since it is being moved. Feeling a bit better today despite this. Need to query something tomorrow though as have had my other sessions changed again - a day off for this Thursday but also one day during the last week I have two appointments, one of which is the clinic one I already knew about but they have put two sessions on the next day, which means a total of 16 sessions instead of 15 so am a bit confused - hoping it is just an admin error as not been told about an extra one.
Hi lady, im glad i spoke up, i got couple of areas that are, what they said are breaking down, so they gave me cream to put on those areas only, they said its totally normal and will get worse before better, i look hideous one scarlet boob one white ha ha.
Had some very graphic gentelman in waiting room today, and i gather his e45 cream isnt working, to much info, i was releived it was just my boob, i did feel sorry for him, and im sure he felt better having a rant.
Getting there light at the end of the tunnel, 4 to go.
Good luck everyone we can all do this xxx
Hi flyingarcher
I have to say i felt sick on journey home for first two sessions, and quite light headed, every one since i have been fine, i thought maybe i was alittle anxious and now im used to whats happening, i dont no of any other way to explain why i find it ok now xx
Maybe this isnt the thread to ask my question, but hopefully someone reading may advise.
When you have first yearly mammo, is it anniversary to diagnoses or the date you had op.
Its just something i keep thinking about lately, wishing my life away and already worrying about that mammo.
Debbie xx
Hi
Things for me didn’t improve over the weekend so I was back at the hospital today. I had an ultrasound and 40mls of fluid drained from my breast. I was examined again and have been given more antibiotics and some stronger painkillers with a follow up appointment on Monday. If it hasn’t improved by then I may need further surgery so fingers crossed the antibiotics do the trick in the next few days.
x Fed Up of Nottingham (Fiona)
Thank you Ladybowler, Debbie, Flyingarcher and Helzie.
Helzie - surgery was 19 July followed by further op (Debridement) on 16 August so all taking time as wound has been slow to heal. Draining of the fluid was really painful and plastic surgeon said it was either a haematoma or necrotic tissue because if it is the later I think it will be further sugery. Thanks for the tip about massaging the area but far too sore at the moment lol!!!
x Fiona
.
