Hi Everyone,
Hope you are all coping with this crappy crap we are dealing with together!
Now, this is going to sound like a really weird thing so brace yourselves…
I feel well enough to try my Yoga class today, BUT my hair has started to drop out and I am really worried about ‘moulting all over my mat! I can’t make up my mind if I should take a cap or just let it happen. Downward Dogs are going to be interesting!
Ahhhhhhhh!
Sue x
Last night I felt dizzy and a headache started. I dug out my hypnobirthing album and set it to play. It worked a treat, headache melted away and had a good nights sleep - well until a small child appeared at 3am anyway.
Woke up with a fuzzy head, sniffly nose, swollen runny eyes ?! And just feeling a bit zombie like. Took all my anti nausea stuff (was told just take it as it’s your first chemo, even if you don’t think you need it…domperidon and emend) and after a cup of tea and a pint of water I felt human again. Staying well hydrated is clearly important!
Got red rosy cheeks after the steroids. Who needs blusher anyway?
I had to inject myself with the bone marrow stuff at lunchtime, which was surprisingly easy and painless even for a wimp like me.
Had a short walk around the block with a neighbour and I’m now collapsed on the sofa with a cuppa.
No nausea yet which is what I was fearing most.
Great tips on this thread. Hang on in there everyone…
Hi Liu. Don’t worry about the Picc Line. It will not restrict you at all. The only thing is you have to cover it in the shower. I was given a Limbo cover but others just use cling film. You can get some really pretty covers on eBay, which I needed with short sleeves in the summer but you may not as you will have longer sleeves. You will be given stockingette. It needs flushing each week. Some people go to hospital for this but my district nurse came and did mine at home. They also take your bloods through the line. You will be glad you had it done!! Kxxx
You’re very brave, Mrs fingers, injecting yourself with the GCSF. I made my husband do it!? I found my face was very puffy all over from the steroids along with red cheeks. This seemed to go away a few days after I stopped taking them. Well done keeping the nausea at bay!
Good luck with your PICC line, Lou. I don’t have one but have a Hickman line and (after the initial discomfort passed) I’m really pleased I have it. As ktk says, it makes having bloods taken and chemo administered much easier! ?
I’ve seen my oncologist for a review and am feeling more positive about my second cycle. They have changed my anti-sickness meds, so that I will now be taking Emend, Ondanestron, Dexamethasone, Cyclizine and Halperidol. Goodness me, it sounds like a lot! Fingers crossed it does the trick and sorts out the vomiting and nausea this time.? For any other ladies that suffered with sickness in round one, mention it to your team as I was really encouraged by their proactive response. ???
P.S. Sue, I can definitely relate to your hair-shedding concerns. I feel like I’m leaving a trail of stubble (had shaved to number 1 a week ago) whenever I move! ?♀️?? I hope you enjoyed your yoga!
Hi ktk
Thanks for that , yes i will be glad ive had it done because when i have my bloods done they have about 3 attempts before they can get blood to flo they had 3 yesterday to do my treatment i am like a pin cousion and covered in bruises, at least this way i wont have to go threw that each time,
Thanks again
Lou ?
Elliesmum
Thanks ?, they scanned my vains in my arm to check it was good enough and said about a hickman if the arm wasnt any good but it was okay so at least i wont have to worry bout being a pin cushion anymore it was starting to get real painful ?,
I can relate to you and sue with the hair it was a nightmare but since i had it shaved off monday its been great no more molting everywhere and no more prickly itchy scalp and the best thing is not having to faff about with it in a morning like today just put a hat and off out i went was great ?,
Take care stay ?
Lou ??
Anabeel and Ellie’s mum and all others who’ve been feeling rubbish - sorry to hear it and hope things pick up.
Lou45 I have a port not a picc but it’s lovely, blood tests and transfusions all without pain.
Badboob - top yoga story!
I have to say last night and this morning I feel completely normal and would not know I’d had chemo 2 days ago. I’m sure it’s going to come and bite me in the arse big style now I’ve said this…
Sorry should have added im a bit tired as not sleeping that well due to the steroids presumably. Small price to pay.
Morning ladies,
Aneeebel
Sorry to hear you have been so unwell but glad you feeling bit better now, i think i obsessed with my thermometer take my temp twice a day lol, but you stay ? we will all beat this together ?,
Mrs fingers
Glad you feeling good i am the same had my first chemo on the tuesday felt good but then sunday was my bad day like you say it came and bit me on the arse, so thats what i expecting for this week again beens had my second round this tues so i being more prepared think my prob was that wasnt drinking enough but i drinking like a fish now,
Hope all our other ladies are okay today ?,
Just one more thing is any one else having trouble sleeping i seem to be wide awake from about 2.00am driving me mad,
Anyhow have a good day all,
Stay ?, keep warm, ?? to everyone,
Lou ?? x
Thanks for the warning Lou, I expect this will be me!
I’ve been waking any time from 2-4am and really struggling to get back to sleep. I blaming it on the steroids. Last dose today so hoping I’ll crash back to “normal” tomorrow.
Mrs fingers
I cant get back to sleep either its awful i blame the steroids i have them for 3 days too and find i dont start to sleep normaly till a few days after i suppose they have to get out of your system first,
Have a good day ,
Lou ?
Hi all
Well I think my sickness maybe just maybe starting to subside a little
I don’t seem to have had trouble sleeping well I do wake early around four but normally I go bed at ten and up at 6 now I’m sleeping almost 18 hours a day that first dose literally took me of my feet and to say I’m all ready dreading the second is an understatement but I will speak woth consultant to sort some different meds out
I’m hoping to at least get out for some fresh air today
I have drank so much water I’m surprised I haven’t lived on the toilet
And my daughter asked me yesterday so two days post chemo if my hair was falling out
So I had to explain it doesn’t happen straight away ?
Hi fiona,
Dont you be getting scared now,
it all good i feeling fine apart from the tierdness , i off to pick my wig up this afternoon well thats if it ok if i dont like it i wont have it i will just stick to wareing my hats i never been a hat person but had some nice beanies of amazon and i quite enjoying them,
Stay ? we will all get threw this together,
Take care,
Lou ???
You’re not alone, Fiona. I decided to walk the 2.5 miles to my appointment yesterday to get some fresh air, and felt good so jogged home. Boy did I regret that come 5 pm! ?♀️? I was falling asleep on my feet! Literally could not deal with my little one when she woke and was sad from 1-2 am, as I could not for the life of me stay awake. Had to get my husband to take over.? So I really do think we are more susceptible to becoming overly tired from seemingly normal activities.
Aneeebel, I’m so sorry to hear you’ve been unwell again and have had to deal with a fever and low blood counts. I hope the antibiotics sort you out and you start to feel better soon. Hang in there! I’ve declared that I’m quitting more than once, ? but I know I’ll rock up for round two tomorrow anyway! ???
Love to all. Hope those who are struggling to sleep overnight can squeeze in a daytime nap! Xox
Oh Fiona, not the news you need right now! If it helps at all, remember that the chemo will be blasting all cancer cells - be they part of Humphrey, in your lymph nodes, or anywhere else in your body. So even if it is bad news, you’re already fighting it! ??xox
Thanks ElliesMum, that’s what I’m trying to tell myself but I just wonder what else they’ll throw at me. I’m trying to be strong ?
? Fiona xxx
Well, I am glad I made you all smile with my Yoga exploits! I firmly believe that you HAVE to see the funny side of this crappy hand we have been given, so you now know what to except from me!
I gave my hair a good brush before I started, so not too much fall out during the session. I managed to clear up the evidence when I cleaned my mat at the end! I really enjoy Yoga and my teacher knows I am having chemo so we had a more gentle session, which was really nice.
I am so sorry for those of you that have been having a rough time. I feel a bit of a fraud as I have not really suffered that much. Had my bloods taken today and an appointment with my lovely oncologist. Bloods good. My white blood cell count has gone up from 4.0 to 6.7! Blimey! So I am good to go for my next dose of demestos! My biggest problem is in the bottom department ? with a rather nasty bout of constipation,(apologies if you are eating your tea) , anyway he got very excited and ended up prescribing me a whole new box of tricks designed to get thing moving…I have warned DH to move out for a few days…
Finally, I too have found that my sleep pattern is disturbed, I seem to wake every two hours, but have trained myself not to panic so I do drop off again. But the Steroids definitely made this much much worse so much so that the oncologist said I could forget about taking my pre chemo doses. Hurrah!
Hugs to all
xx
FiMillan as elliesmum said the chemo is ??? any ???and giving it a ??? where the sun don’t shine. Keep ???your team will have seen it all before and know what to ???all over it with ?? plan a nice stroll round chatsworth if you can, always good for the soul up there ???
Shi xx
Hi Elliesmum, hope you get on okay today, will be thinking about you! Hopefully you’ll be fine on your new sickness medication! X ??
Hi ?Fiona…I bet that call knocked you for 6! X ??
Mrs fingers… hope you continue to feel well! ??
Hope you all have a lovely day… take care and stay strong! X
???
Good luck ElliesMum, thinking of you and ?? it’s better this time ?
Thanks Aneeebel, yes it did knock me for 6, still trying to get my head round it but no point speculating too much until I’ve had the scan and results. I hope your antibiotics are doing the trick ?
Stay ?, safe and warm. I’m off for a walk after my porridge while it’s still frosty and gorgeous out there.
Big ??
? Fiona xxx