Hello, I hope everyone who has had their chemo so far this month is doing ok.
I first had chemo 8 years ago - at the age of 42. Right side breast cancer, which was HER2 +, oestrogen (a smidgen and that was the words they used), and progesterone negative. Had spread to 7 of 17 lymph nodes. Had surgery which was a lumpectomy, FEC-T chemo, herceptin, radiotherapy, and then have been on anastrozole and zoladex implants up until December 2020 when oncologist insisted I come off them despite my saying that I felt that at the end of the 12 week zoladex implant that I had hormones flooding back into my system. Whole conversation about how that was not possible etc etc.
I have been having annual mammograms. This year was the first year I went into the 3 year programme because I was 50 years old, but luckily that appointment came up 14 months after my last mammogram.
I could feel no lumps, no visible changes, been running 5k and walking 10-12 miles most days with the dogs. Felt so well. But got a letter inviting me back from the mammogram.
I have now been diagnosed with right side breast cancer, one area confirmed by biopsy but a probably second area they decided not to biopsy because I have to have a mastectomy this time, so seemed little point to do a second biopsy site. The breast tumour that has been biopsies is HER2 +, osterogen negative and progesterone negative. I took some comfort from this that 7 years of anastrozole and zoladex had at least keep my hormones out of the equation. UNTIL, had chest and abdomen CT Scan to see if the cancer had spread and there it was a little tumour around on my back, just under the skin just under the scapula. That little tumour is confirmed as spread from the breast, I am awaiting it’s HER2 status but it has been confirmed as oestrogen 6 and progesterone 7 . Now I’m thinking that taking me off hormone blockers in December last year wasn’t such a great move and is this one a spread from the “probable” tumour they did not biopsy. Anyway, decided to get treatment done and then ask the difficult questions about this.
I am having chemo first this time. It has taken from beginning of August to 6 October and a whole loads of tests, scans and meetings for them to see, as much as they can, the extent of the cancer. The spread on my back means that I am now classed as “ not curable by definition” but I have friends that live with cancer and have done for over 10 years.
I am having FEC-T chemo, and had my first infusion of FEC on 6 October. Few days of feeling nauseous and very fatigued, but really by day 5 felt whole lot better and today is day 10 and woke up feeling, dare I say it, “great”. Have been getting out for at least one walk a day since day 5 and if feeling ok doing a second walk in the afternoon. Being sensible but also quite determined to get some fresh air as and when I can. Pacing myself, so I have a good rest, but then do a few tasks etc.