October 2025 chemo starters

@poptart Morning … just off the phone with my GP. Drugs imminent- sleeping tablets, just enough to reset and get some quality of sleep back and a non hrt anti flash med, lol. (So many bad jokes in my head.) Picking them up later, sleep drug highly addictive so very short dose but enough to get me as normal as possible.:winking_face_with_tongue: Hot flash meds lower dose for two weeks, monitor - see how I go. AI (aromatrose inhibitor) starts 1st March … see how it goes!

I had no difficulty reducing my hours previously due to another medical issue which had started to encroach on work. With Equality Disability Work Act going through occupational health had to be granted. Changed my contract initially for a year to 0.8 then permanently on review. No Friday. I’m requesting to have either Monday or Thursday 0.6 so work a block of 3 and 4 off. Due to plenty of time to staff, September change low impact on the school and consistency for children.

I’m 54, 55 in July. I want to keep working but acutely aware of how precious time is now. Recurrence % increases at 10yrs / 15yrs, I don’t want to spend the time inbetween just in the classroom. However, not ready to hang my whiteboard marker up yet. I have staged down over the years going from Deputy Head to TA / cover teacher due to work life balance and being a (grrrr, name) geriatric mum!!

I love being a TA :pink_heart::pink_heart::pink_heart:much more fun than SLT management. Pay cut sure but was only buying more of the same with the money. Health and family helped the decision - best thing I ever did. Teaching a few afternoons a week and supporting my little pickles in the morning is fantastic, best of both worlds, no weekend planning! Out of school and home by 3.30pm

Have a really good think about what you need and want going forward. The ‘Big C’ to me is the ‘Big Chance to Change’ priorities and habits I had which weren’t necessarily great; kick up the arse I needed to shake it up. Job share could be just what you need​:blush:

Rads: as far as I know mark up is the pre appointment to ensure they are hitting the right area and subsequently the same area each time. Also talk through what treatment entails, sign off on consent forms. Go tgrpugh side effects and skin care.
Rads itself, fractions, I have 15, so Mon to Fri for 3 weeks. Appointment for fraction is 15mins active treatment plus getting changed. My fractions include booster dose to aux and main boob danger area. From the Rads forum I have got myself a boob(less)tube to wiggle down so feel less exposed. Started to really moisturise area now to get skin as healthy as possible. Need to start arm exercises again, I’ve been a bit lazy, to make sure I can hold position. I think @rbf is a wee bit ahead so gonna get more info from her. Main side effects to skin and rad fatigue usually peak after treatment ends with the fatigue being cummulative with chemo.

Onwards with another week! Hopefully with sleep and considerably less sweaty.
Take care
Karen x

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Did anyone feel like Sigourney Weaver in Alien after Docetaxel infusions? Pain and compression moving around chest, ribs, back,shoulders, neck etc felt like something was going to burst out! Seems to be easing slightly today (day 7) , but still 2x filgrastim to go so don’t want to count my chickens! I know some people have had a reduction in dose if bad SEs but not sure whether to push for that, or keep the thing that stops the cancer coming back. Due to see oncologist tomorrow Any thoughts, similar experiences?

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Can any of you help me. I start chemo tomorrow and cannot afford the £50 one the nurse recommended.

WHAT NAIL POLISH SHOULD I USE

What did you all use. Im having EC then Docetaxel.

Advice greatly appreciated :heart:

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@dilly yes I’m going flat. Can’t be mithered having reconstruction at my age. I just want to be in and out and getting on with living my life.

Yes it is a minefield for sure. I also bitterly regret giving my previous front fastening bras to a cancer charity now.

I might visit my lady in Harley Street in London again actually. That makes it all sound really posh, but one of the clinics lets a MacMillan service operate there one Friday a week and you book a fitting session to try on different bras. I might also look her up. Luckily for me I am close to London, but I’m sure there are similar services in other major UK cities.

x

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@sammy75 Hey - any water based nail varnish in dark colours :blush:
K​:shamrock:

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Honestly @sammy75 I couldn’t afford it either and I just used Sally Henson nail oil and no nail polish. I’ve been left with grooves on my nails for each Docetaxel cycle but that’s it x

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@nib32 Yup, best descriptor ever. I took quite strong painkillers and antihistamine and omeprazole and drank Gavisocon. It us evil and is every infusion, sorry. I had 6 lots of the fecker and my chest was wrecked with it until the magic 4 above - took until the 3rd round to get med mix for me right!

Are they giving you an antihistamine infusion before the dose? I had 30mins on antihistamine infusion after first round being evil. Antihistamine then docetaxel then cyclophosphamide…

My dose was reduced only due to the mega reaction on day 10 - edema, hands split, hives, swelling lips … bleugh. Dose dropped to 80% - SE seriously reduced :blush: I was worst case scenario - cummulative effects kickd my arse.

Hope that helps
Karen x​:shamrock:

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Thanks fro this, good to know. Im not sure about antihistamine infrusion so can ask about thus. I guess i may have to just suck it up and employ all the means at my disposal re fighting side effects. I havent had those extreme side effects you had, and so far no neuropathy so i guess i have to take the wins where i can! xx

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I think nails are more of an issue for Docetaxel than EC, so maybe hold fire on this one?

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@nib32 thank you x


Just ordered this has good reviews xx

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@lumpybyebye there are anti-hot flash meds? I didn’t know that… been waking up with hot flushes and also getting them during the day. I don’t know if it’s a direct effect of chemo or going into menopause, I’m only 36 and so far my periods haven’t stopped although one was a week early and this next one is now late.

I’m not sure how understanding my GP would be, it’s a tiny surgery with only 2 male GPs, one would definitely be useless but the other might be ok. Hmm. It’s so hard as the chemo is also making me exhausted, emotional and brain foggy so I don’t know how well I could advocate for myself.

3 more Paclitaxels left, then starting radiotherapy and ovarian suppression within 3-4 weeks of the last dose. Really wish I could have had a break from cancer stuff to recover rather than straight on to another potentially difficult to tolerate regime. I’m feeling very woe is me today as I’m fed up with battling on with everything

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@orchid2 i have had a lot of woe is me days lately you’re not alone - think it gets to us all now and again! Lots of love :two_hearts:

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