@sammy75 I was on 7 or 5 filgrastim for both Docetaxel and EC but finished now.
You could call the Breast Care Nurse number at your hospital, I’m sure they will be able to reassure you because they will be familiar with how your particular oncologist works. Each oncologist and each hospital seem to follow different protocols, so I think asking your specific BCNs about the filgrastim injections would give you the most accurate information x
@dilly so are they the injections? I tried to call my CNS yesterday and couldnt get through but raised my convern in my review one week after chemo she said oncologist likes to see how you go after the first due to side effects. I am desperate to keep on track as I want it over with as struggling enough.
I managed to get my oncologist to phone me after begging his secretary and when he called hebsaid if i wasnt coping then just dont do it and mive to cdk4/6 which apprlarently is part of my future plan after radiation which is also stressing me out thank you your advice would be aporeciated
@sammy75 yes, the injections which stimulate your bone marrow to produce more white blood cells are called Filgrastim and are given over a number of days after chemo. Some trusts use a single slow release injection called Pegfilgrastim, which is the same medication which releases itself slowly over a few days x
@dilly i think im the only person not on them. He will surely have to give them me if my 2nd treatment is delayed. Im so very worried. Thank you for explaining x
Some oncologists seem to use the filgrastim injections ( to boost immune system) as a matter of course ,and some wait until they know it’s definitely needed.
Both approaches work, just different pros and cons, and I would say that choice is best to leave to your oncologist.
My oncologist also stressed to me (when I was worried because had to wait a couple of weeks due to cough /low neutrophils in December) that short pauses in treatment ( as opposed to delay in diagnosis or starting treatment) are very unlikely to have any significant in impact on treatment success.
@sammy75 I’m not sure comparing yourself to other people online is helping you x That’s why I suggested calling your BCN who will be able to reassure you about your specific oncologist’s approach.
@nib32 can I ask you did he put you on them after your delay. I am desperate to get treatment over and done with. Maybe thats adding to my anxiety. I just want to get back to some kind of normal. I physically dont seem to be able to do anything.
ARSE … in waiting room of oral surgery at the hospital … next in! Bloody cancer curve ball strikes again. Teeth extractions due to bisphosphonates pending. Absolutely shitting it. Hate the dentist, this is so much worse knowing I’ll be in pain for days Mushy food here I come. Arghhhhhhh.
Good luck @lumpybyebye! How long were you taking Bisphosphonates? That seems so quick to have already caused such a problem! Hoping everything goes well for you.
I can only echo what others have said about trying to avoid comparing to others. The decision on what you need (if you even need it ) will be based on your own personal circumstances, and you need to discuss this with your BCN/oncologist. Just take it one step at a time , very soon you will know how your bloods are doing x
@nib32 thank you. Ya my bloods are tomorrow and I habe spoken to my chemo ward as I ddidnt know how it worked. She explained my bloods are reviewed Monday and if any issues they ring you Monday afternoon. If I dont hear anything go to appointment as normal.
Back home - dribbling. Cried throughout, eyes streaming - they had to mop my ears. Horrible experience. Crown came out relatively easily ( the noise and sensation) but the roots were so very stubborn. My face will be bruised. Stitches in, back in 4 weeks for check up. @nib32@poptart@dilly utterly fed up with going department to department at the sodding hospital. Under 7 different specialist consultants now!!! Thankfully, oral surgeon double checked work of my dentist and felt removal of the other tooth wasn’t necessary, future need may be filling but not bone / jaw impacting. So yayyy!
@Mairead_49 this is before bisphosphonates to allow me to have the Zoledronic Acid safely. I had the recommended pre treatment dental check up a few weeks ago after chemo finished; my dentist didn’t believe the teeth would last 3 yrs of bisphosphonates without problems. Extraction to minimalise chance of OJN. I should start bisphosphonates now safely after 6-8wks of healing also radiation will be complete.
@lumpybyebye glad it’s all done, bloody hate the dentist!
I know what you mean about consultants - I’ve now got a urology one because of something with my kidneys - lost it this morning felt I couldn’t cope @sammy75 we all have those days…which is why taking each day at a time is so important!
@sammy75 I hope all this chat has made you feel a bit better x
@loupy thank you so much. I think my journey is going to be full of anxiety. I was always scared of having chemo. Im trying to take one day at a day. The end seens so far away but you ladies have been wonderful with me