You’ll get there @sammy75 it is hard and scary and tiring but you will get through it x
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Sounds so horrid, I always cry at the dentist when having major work. And that really sounded major!! A few times have needed intravenous sedation to get me through it. But thank god it’s now done!!!
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@lumpybyebye thanks for explaining and I’m sorry you had to go through it. Glad you are finished and home now. Hope you feel much better soon!
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@lumpybyebye hope you can rest up with plenty of pain relief x
Question for all, most prob stupid one but are we allowed to have massages? I have finished chemo so wondering whether I can.
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@lumpybyebye that sounds really horrible, I would’ve cried too. But well done, it’s over now. I hope you recover well - keep popping those painkillers 
I know what you mean about endless hospital appointments. I’m also under ENT for longstanding sinus issues and Orthopaedics for chronic back problems. Both of which have been made worse by chemo.
@tessie86 oooh a massage sounds lovely!
I can’t imagine why you wouldn’t be able to have one now your chemo is over and I assume your Picc line has been removed? In fact, a lot of the cancer charity centres offer complimentary therapies such as massage and reflexology. I think the only thing to be careful of is if you’ve had lymph node removal or clearance - I’m sure I read that you should just avoid being massaged on that particular side. Maybe check with your BC nurse just to be sure. Enjoy! 
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@poptart thank you, thats what I thought. Its my best friends 40th the day of my surgery so we were thinking a few days before of getting massages, pedicures and lunch, treating ourselves 
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@tessie86 that sounds great!
@lumpybyebye how are you feeling today?
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Massage sounds absolutely fantastic idea!!! That will be one of first things on my list!!!
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I have been having regular massages during chemo but with a trained oncology masseur. I asked my oncologist and this was ok. She used a more gentle pressure than regular massage and I had a consultation about my cancer treatment, surgery lymph nodes removal etc. She is also trained in lymphatic drainage but my oncologist didn’t recommend that. My masseur wanted approval from oncologist or GP. You might need to get a letter.
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@Mairead_49 sore, on painkillers and eating mushy food! I’ll be grand just in time for Rads mark up on Wednesday. How’s you? K
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Bless you it all sucks doesn’t it!! Yes i think in total 4 weeks delay since the start 
Sorry i’ve taken a while to reply. whilst im well i’m in my normal full mum mode! have to make the most of feeling well until im back in Wednesday if bloods good
What’s ur radio plan i dont have one yet! i have surgery first! meeting my surgeon on tuesday!
Did ur surgery go well?
Bless you thankyou 
unwell days are defo challenging! but thank for for my amazing husband!
Hope you’ve managed to feel well this weekend
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Hay @sammy75
i looked back at one of my first posts and honestly i was a mess! The shear fear of the unknown! and honestly i was thinking to far into the future and worrying! and like everyone has said u really have to focus on one day at a time! no planning ahead! just one day at a time! i was terrified of chemo and how i would be and would i be able to be the mummy i normally am! but listen u have bad days and those bad days are shit! this whole process is shit! but honestly those good days u need to get up and moving! and positive mindset!
i sometimes don’t have the energy to shower everyday when im struggling but that’s not a bad thing and that’s ok and acceptable! i’ve gone from hardly can’t move away from the toilet from 
to this week being able to run around and play football with my girls!
Honestly you’ve got this! it’s tough and it sounds like ur husband is doing a grand job looking after you! set goal like the others have said!
This group has ur back because every single member knows what ur going through and are just the most wonderful bunch!
Please try and stay positive because it will help!
Much love 
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Hay @Mairead_49
I’m so sorry to hear your delay! did u feel unwell?
Please can i assure you i have had 4 weeks in total delays now and each time still hits hard but now im defo understanding the science behind it because my word! when i go back in after the delay i feel so much more ready and able to cope!
my neutrophils on 3 out the 4 times have been down to 0.4 and ive been in hospital admitted and just with that one week they been back to above 3 and that’s with no extra filgastrins!
Embrace your week of rest and i hope u feel better soon
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@slc1 thank you so much. I am just consumed with monitoring my temperature, what i drink trying to eat, remembering to wash my mouth 5 times a day. Im exhausted. I shouldnt compare myself to others and its great your up and about with your children. I feel like my life is in groundhog day. I dont habe anyone apart from my husband and this is alot for him. My next chemo is Tuesdag 
2 down 4 to go. I just cant seem to motivate myself 
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@lumpybyebye feeling much brighter than on Weds when chemo was cancelled. Finished my Filgrastim shots yesterday and they are causing weird spasms through my body when I stand and sit after doing the opposite for a while. Only last a second or 2 but it’s so weird.
@slc1 I honestly thought I felt great, but after a few days of Filgrastim, I feel better and can see that possibly I wasn’t feeling great, I’d maybe just got used to feeling a bit rubbish and it became my new normal! Oncologist has said I can have the injections again if needed so that’s good as it gives hope I’ll stay on schedule for these last 4 cycles. I’m sorry it’s happened to you 4 times! 2 is more than enough for me x
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Hay @Mairead_49 that’s very reassuring they will offer you more if needed. With all my delays i got into my head they’re gunna stop treatment but they haven’t! Just keep battling it is very frustrating when your delayed but i’ve gathered now they know best Glad your feeling better! I have bloods tomorrow awaiting my next EC so praying for good results and no more delays for me!
@sammy75 your Life does become quite task orientated for a while and at the start i was the same but now i only check my temp now if i feel unwell! so i pray for you in time your anxieties will settle down! Just be assured we all probably felt the exact same at the start!
Happy Sunday to you all and hoping for a symptom low day for us all
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Hello all, looking for some advice/experiences re neuropathy (?). Didn’t get it at all on first Docetaxel ( when I was able to use Suzzipads), but this time it’s bothering me. Not the worst in the grand scheme of chemo things, just keen to know how best to manage it and whether likely to be just temporary. Day 5 and heels are part numb and also quite painful, feel like I’ve walked around all day on hard pavements with a backpack full of rocks!! (Rest of foot and fingers only very slightly affected.)
Not sure whether I should be walking on/ massaging or resting my poor slabs of meat! Going out for walks is usually something that helps me a lot, so would like to keep doing it…
Sending best positive thoughts to all xx
@nib32 sorry you are struggling with neuropathy. I can’t help really, only to say that I’ve had a tiny bit of tingling in my fingers at times but that’s been it, and I’m hoping I don’t get any more, and I hope yours doesn’t get any worse. There are probably discussions within the Breast Cancer Now forums focusing on Neuropathy so that could help to search for, and there are Facebook groups also but to be honest I find Facebook groups sometimes a bit negative whereas these forums are a better cross section of positive and negative experiences x
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