It could be neuropathy. I didn’t get it badly, but I got it a bit and I have noticed fingers and feet have been giving me occasional pinging needle pains. I think neuropathy can last for some time.
Also, the fatigue can last a long time too, so don’t beat yourself up. We’ve been through so much and our bodies are fighting like mad to keep up. I went to my mum’s yesterday which was 4 hours of driving in total. I was a passenger, but was still knackered when I got home because I hadn’t had my nap.
Just keep doing as much as your body can handle. My only advice for anxiety is to try and keep the brain occupied. That’s what I’m doing.
@dilly yes to the nails, mine are getting more tender. Also the feeling sick resonates. I have had a few occasions where I think I’m going to be sick and then it has passed. It’s a total beach isn’t it?
Yep! I have cried 3 times so far today: when I woke up and saw a picture my daughter posted of me with her newborn last spring because I looked normal and healthy; when I looked at the picture Mr Dilly just took of 3 generations for Mothers Day and I look about 103; at the poor owner when the restaurant where we were meant to be having a special brunch today rang because I forgot to cancel as woken up feeling terrible and need to be ok for Radiotherapy planning appt tmrw.
I am still in Chemo and have various side effects, the most debilitating one being hip, knees and rib pains (as if they are being squeezed in some sort of metal corset) which no pain medication seems to make a major difference. When speaking with my no nonsense Oncologist, her views were that unless it slow downs my treatment I should only worry about them if they are still present in 6 months. It sort of made sense, even thought as usual it is not quite what I wanted to hear. So much is being thrown at us randomly. I feel that every time I find a way to manage either emotionally or physically another side effect shows up which my chemo/fatigue brain as to figure out.
Indeed, I fell apart once and she just did not know what to do, starting muddling her words et all. She was so awkward that it kind of stopped me. She is one of those very clever person but the emotional connections are just not there On the plus side, I can ask her almost any sort of questions in a 15min window …(apart from vaginal dryness… that was quite funny… she called in a nurse, found the leaflet about cancer treatment and menopausal effect, all extremely efficient, trying to change the subject asap ).
@tessie86 yep the emotions are worse now than through most of the chemo, I want to just get on with everything that’s been on hold for a year and I’m too exhausted. I think I was misleading myself about how good the ‘good’ day was before each chemo session so now that I’m nearly 3 weeks out from the last session I can’t get a handle on how tired I still am. It was the one year anniversary of finding the lump in my breast yesterday so it’s really hitting home that how much stuff I’ve not done over the last year and really feeling the need to get on with everything. I run my own business so it’s not like someone’s been doing my job for me while I’ve been ill and I’m fed up of not having the energy to look after my kids much. My husband’s exhausted too. I’ve got 15 sessions of radiotherapy starting on the 26th, and tamoxifen starts on Tuesday so I can’t even look forward to things easing up any time soon
Radiotherapy planning appointment for me today! I got my first tattoo almost exactly 20 years ago to celebrate turning 40. I never imagined my next tattoos would be radiotherapy markers for breast cancer…
@dilly I had my mark up at Southampton it was all laser / digital no tattoo! Think it is all down to which machine they have. You may swerve it and not have another reminder … as if we’re gonna forget this shite! @loupy hope it is just a wee check in with you and nothing heinous
I’m off shortly for 1st post chemo hair cut n dye! Attempting to control chemo curl mullet that has appeared. Currently short at the front, crazy at the back. Could slip into a rugby scrum no problem
K
@lumpybyebye enjoy your haircut! Had mine done last week just to get rid of the wispy bits - I was so excited the kids thought I’d gone mad!
Just back from oncology - it was as he said about moving on and returning to a new normal! Been prescribed Letrozole to start tomorrow morning and then will start Abemaciclib after RT (referral done so hopefully get date soon) he’s also sending me for genetic testing, but on the whole a positive appointment!
About to leave the house to head to hospital for the pre surgery dye. We all seem to have a busy week of appointments, I think a few of us for surgery this week! Very best wishes to all!!
1st cut n dye post chemo … a bit more normal but still weird having short hair! Weird wispy bits gone, tidy up and shape ready to grow longer and stronger.
On the plus side, I can ask her almost any sort of questions in a 15min window …(apart from vaginal dryness… that was quite funny… she called in a nurse, found the leaflet about cancer treatment and menopausal effect, all extremely efficient, trying to change the subject asap 
