I am really hoping I can get it to ease, after 15 minutes of walking it flares up too. I have a 15.1 Walk on the 16th May (we shall forget that I could potentially have Radio that week or leading up to it). Doing the Walk the Walk (Moon Walk), raising money for Breast Cancer I thought it would be a good thing after all my active treatment and something to work towards not realising when I booked on that I would have alot more, whoopsi lol
Will likely be quite an emotional evening, I have a team of 35 of us, my amazing family and friends and all wearing bras, you will love the badges I have got for everyone to wear.
Definitely recommend getting some super cushioned shoes then - I was on my feet all day yesterday and they coped a lot better than I expected! Haven’t even been too bad today either.
The other thing is mine have been slowly improving over the weeks so you’ve got a good amount of time yet for them to get a bit better before your walk!
My milestone is tomorrow, 11th April. I went on holiday the day after with my 2 friends for 1 week to Norway and didn’t tell either of them. Seems an absolute life time ago. But then also filled with agonising weeks of waiting for all the rounds of tests.
Chemo wasn’t part of my initial treatment plan, just kept being told it’s just rotten luck!
I requested to know more information about the decision made regarding my treatment plan last year, in October, and I’ve just heard back!! I wanted to know why I wasn’t given an MRI in April last year… Been fobbed off with vague sentences in an email that was sent to my BC consultant. So might have to go through PALS to get some more info, I just want to make sure that I’m being monitored for reoccurrence. None of my lumps showed up on the mammogram due to extremely dense breast tissue.
Also thinking a lot about the last year at the moment and totally understand how you feel! We have been through so much. I was also not originally expecting chemo.
But we are all still here relentlessly putting one foot in front of the other
Frustrating. You can also request access to your records. It can take a while, but you may find out more information from that possibly?
I’m also really worried about getting a missed recurrence as I too was told I had very dense breasts. I was subsequently sent for an MRI after initial diagnosis because of that, but now I’m thinking ‘well what good is an annual mammogram going to be for me going forward for monitoring now’ ?
@tessie86 I have been using one of those wooden foot massagers ( photo below) I feel like it helps, but can’t be certain. My feet have improved quite a bit. I couldn’t have used the massager a few weeks ago when it was very painful though, but now my heels are more numb (
@kcim I know exactly what you mean about heels, esp when sleeping in on back. Was such a relief when I got PICC line out, as it’s so much easier to sleep on my side! How are your heels now?
I’ve found the neuropathy in my hands has improved, but my feet are about the same as during chemo. I find they get worse with more walking, and then it starts to feel like my legs get weak and are going to go from under me so not sure if that’s linked to the neuropathy
Yes, I’m very glad I can lie on my side again now! Heels are generally ok so long as I don’t push it too much during the day thankfully. Down to being just a bit tingly/numb, very glad to see the back of the burning!
just feel very worried about it if I’m honest
I am actually going to ask again about this at my next appointment