Hi lovelies.
I’ve got an Onc app on 16 th. How long should I expect to wait after that for radiotherapy. Any ideas? I had a lumpectomy five weeks ago and since have started Anastrazole. I don’t know if it’s the drugs or the recovery but feeling very fragile alone and tearful most of the time. I hardly leave the house unless I have to. I’m sure it will get better.
Is anyone else stRting rads in November at the Norfolk and Norwich hospital?
Sorry for the doom but this is the only place I feel comfortable expressing my feelings ??
Hi suza
I think it takes about 4 weeks, although mine is timed for after chemo so it may happen a bit quicker. After seeing the consultant, I had the initial appointment this week where you have a ct scan and markings and then my first rad is the 21st which is 2 weeks after.
Because of Christmas coming up that will probably make a difference too because it needs to be continuous from start to finish.
It’s a really difficult time I know, but this forum is great for sharing.
Hope this helps x
I had my oncology appointment 2 days ago, he said to expect to start about 4 weeks later. I’m waiting for the appointment for the set-up session.
I’m already 7 weeks out of surgery, this is going on forever…
Hi Suza.g I was 11 weeks from op to starting Radiotherapy, just got 3 more treatments to have. I haven’t had any skin issues and I wonder if this is because my skin had healed well.
I too was on Anastrazole and felt down in the dumps but had to come off it for lots of others side effects.
You will feel better, I think we all have some bad days, if does get better. Xx
Should say it does get better!
Hi,
I’m 2 days on from wide local exciscion and sentinal node ivestigation. Nothing found in nodes thank goodness but I feel so miserable and weird! I thought you would understand - I think the anaesthetic has really upset my system (anaethetist said it might as I’m already on anti-depressants). Am just taking paracetamol for pain as cocodomal made me too spaced out. I have appointment in 2 weeks to get path results and then radiotherapy - going by this thread I’m going to be waiting a while for that too. I’m in the South of England so not near you I’m afraid. I feel your doom!!! We will get better. Do you have someone at home with you? All the best,
Jak60 xx
Hi Suza…I have a choice of going either to Norfolk and norwich or Cambridge.only just had surgery so have to see if I need any more chemo before rads.will maybe be January when I start.where do you live? Not sure which place to choose yet.x
Hi jak
I was in a lot of pain. It’s been five weeks and it’s tender but a lot better. Yes the anaesthetic buggers up your system but it’s also the shock. I feel so low. I think I’ve kept it all in until now and I’m feeling so vulnerable. My bloke has just walked out cos I said he didn’t care enough and now I feel even worse cos he has been good.
What a **bleep** this cancer is.
I wish you all the very best darling xx
I live in Gt Yarmouth but the n and n is the nearest for me xx
Hi alĺ I had my onc rt appt today and told it will start in around 4 wks time so will be all over Xmas and new year! Am about 8wks post op now and have just accepted I’ll have good days and bad so if you feel like crying let it out - I think it helps.I also write things down and can see progress is happening. Keep smiling when you can xx
Hi Julie
That’s rotten timing. I’m guessing mine will be about the same then. Are you working. I’m seriously thinking about refusing it. I just want to get on with my life hopefully.
I’ll be thinking of you xx❤️
Hi suza we’ve decided to postpone a normal Xmas day just so we don’t have to worry about stuff. I managed to escape chemo but think I have to give rt a go if it helps it not come back. Can you chat it through with your bcn? It’s probably best to trust their expertise and just be kind to yourself xx
hi all,
having been through rads in May, apart from some tingling & redness, it wasn’t a problem. sometimes the prospect is far worse that the actuality. rads does significantly reduce the recurrance risk,
take care all
ann x
Hi Suza
It’s no wonder you feel down and vulnerable, you get a cancer diagnosis, an operation that is painful and invasive and then hormone treatment that plays havoc with your emotions. And a long wait for results, more treatment to come. And somehow we have to try to get back to normal after it all.
I’ve started on antidepressants because otherwise I’d have to stop the Tamoxifen, and if that is what I have to do to get through this, then I will.
It’s easy to get into the trap of thinking that you ought to be able to cope, but sometimes it’s better to take whatever help is out there. Breast cancer must be about the only condition where you get hit with a shocking, scary diagnosis and then have to deal with it while taking hormone treatments that play havoc with your emotions.
So we’re here for you, sending you virtual hugs.
Hi dizzy
Your reply came just at the right time. Feel crap. I’ve got an Onc app tomorrow. Do you think he will prescribe or GP
I thought I would be fine I’ve coped so well til now.
Bless you xx
Hi Ladies,
My recovery has been interrupted by the onset of an infection which put me back in hospital for 4 days. Came out yesterday after IV anti-biotics - continuing orally at home. They havn’t been to determine the site of infection but breast care team visited me everyday and are happy with wound - still waiting on skin swab results and an ECG. So am 1 week on from op but still in bed - but, going to finally get to have a hair wash!!! Starting to get dreads!
The infection presented as: day 2/3 generally feeling unwell; day 4 vomitting and high fever (this is the point where GP called ambulance). Had anti sickness injection before leaving for hospital; which thankfully worked. Once in hospital I had continuous headaches which were helped by IV paracetamol. Blood tests showed definate infection. Had chest xray - fine. Temperature continued to spike until IV anti biotics. Am slightly worried that, when treatment is finished in 4 days it will all start again. Breast care team said that infection will ‘look’ for any weak points i.e. the op site so need to keep am eye on it.
So - I should be able to be feeling better by now but not happening!!! In the scheme of things I’m going in the right direction as I couldn’t have typed this 2 days ago!
Best wishes to you all, I hope things are improving for you. I wil definately be taking up radiotherapy can’t be doing with all this again. And yes, thank goodness for regular mammograms it could have been a whole different story as I wouldn’t have known.
X Jak60
Hi Jak
Bless your heart, that’s all you need (not)
I hope you are feeling a bit better now and being looked after
What a horrible thing to go through as if surgery wasn’t enough
Wishing you a speedy recovery
Jak, hope you’re feeling a bit better now, what a rotten experience! As if we don’t already have enough to put up with.
Suza, how did your appointment go with the oncologist? You and I may be doing radiotherapy at a similar time, I’m waiting to start. Last lumpectomy was 21 September so it seems to be taking forever.
Lady Bowler, sorry I missed you out, you’re on the radiotherapy list too, let’s keep in touch so we can compare notes.
I was diagnosed after a regular screening mammogram, like you I tell other women to make sure they don’t miss them.
Hi dizz
Onc said planning meeting about 2 weeks then rads in about 3 weeks. Yes let’s all keep in touch. I’m on FB if anyone wants my name or is that not allowed lol.
Hugs everyone xx