I finished chemo 5 weeks ago and my oncologist said he would now not see me until after radiotherapy has finished in his clinic in January.
I recently had my rads CT planning scan and am due to start radiotherapy on Thursday. I have received an appointment to see my oncologist on Friday and spoke to his secretary to find out as to why, as I shouldn’t be seeing him now until next year, and she said he wants to talk about my CT scan. I am extremely worried as to what this scan may have found and am very scared about this Friday.
I am Her2 positive, grade 3, and was diagnosed in March of this year. I had a WLE with clear margins in April, no lymph node involvement, and have had 6 cycles of fec-t and like I said due to start 20 radiotherapy sessions on Thursday. Has anyone else been called back to see oncologist to discuss ct scan.
I have coped pretty well through all of this so far and have not seeked advice or anything from a forum before but this has got me very worried in case the cancer has spread.
Hi AnitaB
i understand why you are worried, but there may be reasons which aren’t necessarily negative…try not to worry too much…easier said than done, I recall that in my case they weren’t able to achieve a 1 millimetre margin of normal cells around the excision…which they normally like to achieve. Nowadays, they do have to tell you everything…hopefully on Friday you will be reassured xx
if you really can’t wait till Friday, you could phone and ask to speak to the breast care nurse, who might be able to get you into the onc, a day earlier, when you go for rads.
'Whatever their reason for the new appointment…write down all your questions, take an advocate along as support. Love and best wishes,
Moijanxx
Thank you Moijan for your reply. Both me and my partner have spoken to his secretary and expressed how worried we are and tried to get an earlier appointment but he is completely booked up with nothing else available. I normally see him in clinic at Warwick but he is seeing me at Coventry hospital on Friday after radiotherapy.
His secretary has told him how concerned and worried we are but all he has said is he wants to talk about the CT scan. Praying it is not bad news…
Hi Anita…have just sent you a very long pm xx
so sorry you are having this wait…the secretary wouldn’t be able to share anything…try not to worry, whatever it is, looks like you are going to have to wait till Friday…if it were the prospect of more surgery, then I would have guessed they would have postponed your rads for a while. However, very best wishes and a wraparound hug.
Moijanxxx?
Thank you so much Moijan, I have received you pm, I will update you on Friday x