Online mbc awareness event tomorrow/Monday

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Hi everyone,

 

I hope this is okay to post, but there is an internet event FB, twitter, blogs etc. about secondary breast cancer which anyone can participate in tomorrow (the more the better).

 

It is quite hard hitting so not everyone’s cup of tea, but it is action on behalf of everyone with a diagnosis of secondary breast cancer.  I am participating because I need to feel that I am doing something supportive and it tells it like it is.

 

facebook.com/events/1545494399062541

 

Tink x

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Thanks for this Tinks.
I have seen such a sea change since my diagnosis, not, in my opinion, for the better. These forums have changed, even, sadly, the secondary forums. Looking back some of the old threads, pages long, would not be started today for fear of appearing negative or of upsetting others. So much is down to pink washing. Everywhere. Not much awareness though, certainly of stage 4, less I think than a few years ago.

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Thanks, Tinkerbelle, for posting.  Event needs to get plenty of attention… but not from me as I have chosen not to register for Facebook or Twitter.  I will look at the link though, there might be something that can be viewed by anyone?

And well said, Belinda :slight_smile: awareness does not seem to be improving.

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Yes, Facebook page is publicly viewable :)… but… started by people in the US, where mbc/sbc awareness is far far ahead of the UK - and there is a much wider range of treatment options.

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 “we all hope that it will raise a small amount of awareness (probably for five minutes) but will get the issues heard more widely” Yes indeed, every little helps…a drop in the ocean but the ocean is made up of many drops.

 

“BCC do a wonderful job of providing support and information about breast cancer and I am grateful for the support I have received” Yes again, so am I… sbc is acknowledged and there are some very good resources that BCC has produced for those of us with mets, such as the factsheets on various aspects of SBC…

 

“but they are a support not a research funding charity” Ah yes… but we’re probably not allowed to post the names of other charities in US/UK/elsewhere that fund research into sbc/mbc.  or are we?