Hi aLL this is my first posting on the site but i have reading lots of other posting and found it amazing just how many of us are memebers of this club that we didn’t want to join! My own “memebership” started after routine mamao which showed supisous area some how i knew this was going to happen not sure how, just a feeling. so now on the roller coaster ride and i just want to get off. i have been dx with widespread dcis and microinvasion, each time i see someone i seem to get slighty worse news, so we’ve gone from this is very treatable, to oh its widespread need MX to oh as you have microinvasion need SNB checked, i now call all my visits " more bad news day" i am now booked for DIEP tomorrow having had the most stessful few days ever, to have this op i need to travel over 30 miles away and no one seems to coordinate anything very stressfull, but the best is having known that i would be having this op for nearly 3 weeks no body decided to check my blood pressure which is raised and now compromising wether i will now beable to have full op will find out on day of op (just keep adding to the stress), no wonder it’s high. The staff are lovely but not impressed with the cordination and planning which when your under such strain needs to be better. Also i find that everyone repeats them selves and i’m continually answering the same questions over and over again and must admit i do find some of the attitude quite condesending.
i am very happy with the 2 consultants who will be performing the op but more concerned that they will find more nasty things lerking on the final histolagy report (anothe potential bad news day) has anyone else had this experience?
Best of luck with the surgery tomorrow, Terri.
You can expect to be asked your date of birth by every single person who speaks to you tomorrow! That’s normal, and a safety measure so they know they’re dealing with the right person.
As for blood pressure, my OH is having a heart op later this week and his surgeons (cardiovascular, so they should know what they’re talking about with blood pressure!) say it’s much easier to deal with HIGH blood pressure when you’re in surgery than LOW blood pressure, as they can give IV drugs to lower it during surgery if necessary. You might want to ask about that sort of thing if you’re worried, to get some reassurance.
There will be others along who’ve had mastectomy and diep who can help with that side of things. Best of luck for tomorrow, and make the best use of the painkillers.
CM
x
thanks for your reply makes me feel a bit happier about the blood pressure problem the diazepam is also helping!!!
sounds like you and your OH are having health issues, that can’t be easy.
Just packing, as go in later today, think i will need bigger holdall!
Hi Terri 52
Just wanted to say good luck for tomorrow. I know how you are feeling, my diagnosis routine mammo showing calcifications the size of salt grains to a MX and LD flap recon (after biopsies, WLE, and SNB).
So I know where you are coming from when you say that everyone you meet seems to deliver worsening news. I felt so prodded and poked about and was constantly in/out hospital for appointments repeating myself, it was like being on a conveyor belt that I couldn’t get off and forever feeling anxious, but it DID stop once I’d had my MX and the results of that I breathed a sigh of relief as I knew what was ahead of me and there would be no more surprises - my MX was the beginning of the end of it all for me. I was relieved, I could get on with it and get over it and back to normal asap.
I know it doesn’t feel like this at the moment, it’s great that you are so happy with your consultants. Take it very easy, let people run around after you for a while, accept all offers of help and look after yourself. It’s time to be selfish.
All the very best, keep posting.
Rachel.
Hi Terri and welcome to the BCC forums
In addition to the support you have here we have a helpline which you can call on 0808 800 6000, here you can access further support and information from our team, weekdays 9-5 and Sat 9-2.
I am posting a link to the BCC publication about DCIS which you may find helpful:
Take care
Lucy
Hi Teri,
Just wanted to say good luck for your op tomorrow!
I’ll be thinking of you and hoping all goes well for you.
Keep posting on here when you feel up to it, there are lots of fantastic, supportive people here for you.
Lots of love
Helen xx
Hi Terri
hope this message gets to you before you go in for your op. I too had widespread dcis and had my mastectomy 2 1/2 weeks ago, it is definately easier once the op is behind you. Please believe that it is never as bad as you think it is going to be. As for the blood pressure, there were several people in with me who had high blood pressure and none of them had problems with this during or after their ops. I was the one who caused the problems as I have low blood pressure anyway, which dropped again after surgery.
Wishing you well for tomorrow, I’m sure you’ll be ok, just remember to take things very easy.
Wendy
Just to add my voice to the best wishes. I’m sure all will go well and wish you a speedy recovery. When your up to it, let us know how you got on.
Julie xx
Hi Julie, Sorry you have had to join this ‘great big club’ but the ladies on here have fantastic advice and support for you if and when needed.
I hope everything goes well for you and wish you a speedy recovery.
Debbie x