Posted for new user MM
my iv chemos have stopped working.my oncologist suggests the above oral chemo. has anyone been on this to give me some ideas about it. thanks
Hi,
I have had them iv but not oral. Methotrexate is tiny (70mls for me)and is also used for non-cancer conditions too. I felt really well on that one and it made my stiff joints and bone aches all go away and feel fab. They came back when I stopped it :(. I also had to take folinic acid while on that, just tablets. I had 1000mls of C every visit so much bigger. I had a reaction to cyclophosphamide and had to have piriton with it and it administered really slowly by pump. Nothing scary just this swimmers nose and pain in the head if they hand injected it. I was told on FEC that is the one you will react to if you do at all. I had the runs on FEc but no idea which part did that and very few people reacted the same way as me. Altogether a gentle one but i had it 2 weeks in a row then 2 off. Wishing you much success with this one and that side effects are bearable for you
Lily x
Hi MM
Sorry I don’t have any experience but just ‘bumping’ this up to the top of the list so someone else may see it. Good luck
Nicky
Hi Jo, my mother was on oral cyclophosphamide for over 6 years, at the time I was on FEC and someone told us that the ‘c’ of the fec was the clyclophosphamide. My mum didnt have cancer but did have a terminal disease fibrosing alveolitus of the lung.
Before she started this treatment she was reduced to being in a wheelchair to get about and along with oxygen therapy the cyclophosphamide got her walking again. She didnt loose her hair but we are confident this drug added another 6 years to her life as she was desperately ill when she started it.
Just remember just because its oral it still needs the same care as iv chemotheraphy, be careful around people with infections, rest if your tired.
Best of luck Ann B x