Blooming heck Emily - I saw your name come up on the thread and thought you had your results - I keep dipping in at work, to see how the three of you are doing.
Hi all
Score was 20 so very close to low but slipped into intermediate. Due to age and size of tumour it’s chemo for me, expected to started around the 15th Feb xx
Hi, Lexxy,
Sorry you have to have chemo, but glad it’s been decided, if that makes sense. The monthly threads are great and Jo is on the February one. Good that they aren’t hanging around. If it’s any consolation, most people I’m in touch with aren’t finding it too bad. Certainly not debilitating.
Ali x
Hi, I’m with you Lexxy, chemo for me too!! xx
I start on the 15th @ 2pm xx
Helena - I’ve had the oncotype dx done so it was all depending on the result of that so I didn’t quite know what was happening but I was still VERY shocked to be honest …
Susan - you’re putting up with me following
You around again … don’t know why it just posted xx
Lexxy and Sallyanne
Welcome to the chemo club! Just to echo what Ali has already said, chemo is not nearly as bad as you#ve built up in your mind or seen in the movies! I’ve only had 2 rounds so far and the worst side effects I’ve had is the first week wipeout - general fatigue and constipation. Nothing scary all doable x
Sarah and Lexxy, sorry you are both having to have chemo. I am a couple of weeks ahead of you ladies so please ask away or PM me if you like. I had my first EC on 30 Jan and will have second on 20 Feb. The side effects have been manageable and I’ve kept myself busy but rested when I needed to. I was lucky enough to be prescribed Emend as an anti emetic. I’ve was speaking to a friend who didn’t have this for the first cycle but was prescribed it for the next cycle and was a lot better.
The best way I can describe it, for me at least, was those tired, nauseous days of early pregnancy.
Feb thread is good and there is now a spin off FB group that I have just been added to so am going to mosy over there for a peek.
Jo xx
Such a good analogy Jo. A bit like pregnancy it’s also a time when you can do nothing (lie on sofa/ watch telly/read etc) & still be doing something useful. Ok, it’s not a baby but it’s beating cancer. I can’t say I’d choose the circumstances, but I’m not having a horrible time.
Sorry it was a shock, Sarah. I almost think it’s easier when you know from the get-go that it’s going to be needed.
Ali x
Strudel - good luck with your rads tomorrow. It just seems strange us all starting treatment, it only seems like yesterday, we were all having surgery.
Thank you all so much for your support. I see it as us throwing all we can at it now. He’s scared me a bit about the future but I think mentally i’ll have to revisit that one later and just deal with the here and now.
Susan, mine will be 3 lots of FEC then 3 lots of Docetaxel over 4.5 months. I hope you hear soon and maybe we will all start close together.
Sarah I’m sorry you’re in the same boat hun but we can do this, it sounds like we might even start on the same day x
Strudel, how you feeling about tomorrow? I bet you can’t wait to get going now x
Susan - yes I know … it’s 3 cylclrs of ec and 3 cylcles of docetaxel … 1 cycle every 3 weeks so 18 weeks altogether … the doctor told me not to work, I’m not sure because of the job I do or just because … scared the **bleep** out of me she did with side effects etc … told me not to put anymore weight on (embarrassing) ? and to eat a Mediterranean diet and get plenty of exercise (walking) and to try and carry on as normal as possible … gave me the phone number for wig/scarf fitting …
before I start chemo next weds (15th) I go to meet the chemo nurses this Friday xx
Hi. I’m hooome!!! Is it wrong for me to say that I enjoyed today?! I did! It was lovely having all this attention showered upon me by such lovely medical staff. Surgeon said he couldn’t feel any swelling in the lymph nodes so fingers crossed the pathology report will have good news. I enjoyed talking to the other ladies in the ward who were in a similar position & mentioned this forum to a couple of them. I was waving at the other patients as I was being wheeled down to the theatre. I couldn’t believe how relaxed I was after all my worrying before today. I’m definitely a better breast patient than a dental 1! Sending hugs to everyone xx
Yay Elizabeth you’re home … glad it all went well for you today … what’s next for you? Do you know?
Sarah xx
Susan - maybe rads … she said she would discuss it with me again … are you having rads after?? Do you know which chemo you are having? xx
Ladies
Well you lot have been really busy today its as if someone has pressed the “on” button, you are all going to be very busy from here on in, make sure that you get plenty of rest and be kind to yourself, remember we are all here for you no matter which road you are now going down in your treatment.
Helena xxx
Elizabeth that’s great! Hope you are still being paid lots of attention and being looked after at home x
I have a quick question for the ladies having or about to have chemo. Is anyone trying the cold cap?
Lexxy - I’m not, I was asked today because apparently they have to book me in if I wanted it … not sure if anybody here is having it xx
Susan - I’m not having the F bit of chemo … don’t know why as I see a lot of people do have it …
What is the nail stuff you bought? I remember you getting some and where did you get it? Online?
I need to get my bum into gear … xx