Just browsing as many years since I’ve been on this site. Looking really as VERY fed up of pain in my feet, which I feel may be linked to either Letrozole or poss the Alendronic acid tabs I take as my bone density is not what it should be for a woman of my age (52). Expecting soon to be taken off the former as time approx 3 yrs soon up.
My GP thinks the pain in my feet is due to nerve damage when I slipped and fell downstairs a few years ago as still in pain from that, but I’m not so sure. I also take tablets for the (neuropathic)pain in my feet currently pregabalin, having tried various ones, the pain is less but still there. The pain wakes me at night and can be in different areas on my feet both under and on top. I can liken it to being tender / sore after a bruise, but no signs of bruising. Without the tablets it is hard to walk first thing in the morning and I have had to stop jogging. I have tried to reduce the dosage but have to keep going back to about 350 / 400mg?
I have pain in my feet and my GP said it was periphrial neauropathy linked to the Arimasin I take…
I’ve tried Amitriptyline but it knocked me out too much. I now take Zopiclone sleeping tablets to keep myself asleep at night, the pain kept me awake/woke me every time I turned over, and continue to start the day hobbling…
At least I’m not over tired so that helps with the pain and as long as I keep my feet moving, after a slow start once up, I’m ok. I go for a walk every morning wiggling the toes as I go!!
It is uncomfortable although I think I’m getting used to living with it.
Take care and I hope you find something that works for you soon
x x
Thank you very much KatieF, yes I’ve been on Amitryptalin too, side effects worse than pregabalin.
The pain has been much worse today, in fact I think I played it down yesterday (think we’re all guilty of that one). Today it feels like someone is standing on top of my foot and grinding their foot down! / or it’s broken? I now think having read the alendronic acid tabs leaflet that the pain is due to taking them. I always have pain to some degree in my feet, but this time it is far far worse, having to fight back the tears really. Anyway I will speak to the local pharmacist as never seem to have the same brand twice and I’ve noticed the ingredients seem to be different? So will query this and fingers crossed there will be an improvement.
Are you taking alendronic acid tablets? I’ll post the answer after seeing pharmacist.
And I have now had this pain for over 2 years now and have had periods where I have kind of just got used to it, but feel it’s too much now, ie affecting my quality of life.
Dovedale, did you have chemo? I had TAC drugs and have peripheral neuropathy in my feet, which is a side effect. The soles of my feet manage to be both numb and painful at the same time. Blast!
Dovedale - don’t think the pain I experienced after my chemo is the same as yours but having read a thread on here I bought some fitflops and found that I could walk in them (even first thing on a morning). Was a bit cold in the winter mind, even though I only wore them indoors . Might be worth a try if you can get some at a bargain price as I did. Good luck. xx
Hi Dovedale
I’m only on letrozole and would say sore feet are my worst side effect. More on the bottom, heels especially. A bit different from you though as I don’t get the pain on wakening, only when I get up and start walking, more hobbling than walking really. Does wear off in general then on and off depending on what I’m doing. Strangely I do wake up with pains in fingers. I’m trying acupuncture for the second time, seems to help a bit, especially as I don’t do well with painkillers.
Sounds like you may be getting a double whammy with the other meds too.
I am also on amytriptyline, have been a few years before BC, and other than a sweet tooth and a few extra pounds I do OK with them.
Thank you so much for your comments. They have really helped. I don’t want anyone else to suffer, but at least I know it’s probably part of the treatment. I had chemo, surgery, radiotherapy some 8+ years ago, (apparently I would have had herceptin too, but my bc was before) so I’m not complaining. I’m actually going to see a podiatrist but that’s not till the end of April. I also see a chiropractor and although she HURTS my feet, her treatment and aftercare suggestions ie pummel my feet have helped.
Your replies have made me think I should look into getting those is it MBT shoes?
My GP doesn’t think it’s down to the meds at all and has said it won’t hurt if I stop taking the alendronic acid tabs for a while, so I will!
Fingers crossed for all of us and keep smiling, it’s a beautiful day today! xx
Welcome back to the forums. It’s good to see that you’re getting some support from the well informed users of this site. If you need a little extra support then the helpline team are only a free phone call away.
Dovedale, Ive more or less given up any sort of heels for everyday and wear shoes with thick soles and that are cushiony inside. Clarks seem to make their shoes that way,and some other brands, but Im in the US so brands are probably different. For summer theres Flyflot who make sandals that mould to your feet. I guess the Manolos are out now. Thats how I cope! Hope Im not depressing you!
Just having a browse…firstly pain in feet bad again! And I now know it’s not due to alendronic acid as not been taking these for a while now. Initially feet were fine, even pain free but then back with a vengence, so still not sure what’s causing it. But never mind. I find myself unconsciously singing / humming to distract me from it! LOL.
Anyway I was interested in Mimsy’s comments re ‘Manolos’…never heard of them. Will google in a bit. I find it so amazing that this is such an international community…at the moment I’m trying to read your comment in an American accent…apologies I mean well. Now wondering if you do the same? ie read it with an English accent…mine’s not posh just middle of the road, as haven’t really got a regional one.
Anyway all the best to everyone…hope you’ve all had lots of yummy Easter Egss!
hello dovedale
I had pain in my right foot so bad I was unable to walk.I have bone mets and had also badly injured that foot a few years ago in a fall.As with every ache and pain I blame it on chemo(my toes are still numb 2 years down the line)mets or letrozole.My gp sent me for an x-ray and that did not show anything.He is a lovely man and insists on ruling out all the usual before getting around to it being because of bc.He sent me to the foot clinic at the practice and they made me a special pair of insoles for my shoes.These have helped really well, and not just with the foot pain they have also helped with back pain because they make me walk upright!
I am up for trying anthing that does not involve a pill,potion or needle.
Not sure they are made to fit Manolos but they sit quite nicely in my hotters.
I haven’t been on here for a while. I have been getting a lot of pain in my feet, legs and right knee. I also get pain in my hands which all seems to stem from the se’s of Anastorzole which I have been taking for 20months now. is anyone else getting similar problems?
Dovedale have you found anything for your foot pain yet? The last couple of weeks I’m in such pain with my right foot and it feels like hiw you describe someone standing on top of your foot pressing down.I’m on my feet all day and dont drive so need to be able to walk well.At the moment I cant walk at all without pain.My right foot had always been prone to pain and I have a bad bunion but this is in the tendons and burning across the front and sometimes into ankle.As I’m walking oddly its making my knee and.back worse.Just asked my gp for amitriptyline for general pain but havent started it yet.Think I have neuropathy in my feet and often get cramps in my feet and legs.What a wreck hey? But i do need to walk!!
Hi. I thought I would Google Anastrozole and pain in feet to see if the pain I have relates to the Anastrozole; which clearly it does. It’s interesting that the pain is in my right foot, as appears to be a common thread. The reason I wanted to post is that I see there has been some discussions on hormone blocking medications. I wanted to share my experience. I was on Letrozole for 12 months and the side effects were horrendous - the psychological ones much worse than the physical. I thought I simply had to “grin and bear it” but when I mentioned it to my Oncologist he changed it to Anastrozole. As we all know; still side effects, but for me it’s better. Therefore don’t hesitate to ask to change drugs to see if it is beneficial. I’ve been on Anastrozole for 12 months now, roll on the next 3 years ?
Hi All, I came across this blog searching as many of you have for ‘arimidex and pain in feet’. I can tell you that pain in joints and feet seem to be the norm here in the US as well. I am sorry all are suffering. I have fibromyalgia and have suffered from intense pain from this illness for many years. May 2018 I was diagnosed with stage 2a HR+/HER- breast cancer. I did the surgery, radiation and now I am 4months into the arimidex (generic anasterole). The pain is insane. Someone mentioned feeling like 90 on here, yes indeed!
Talked to my oncologist and family doc and both of them suggested using Clariton (allergy med) along with the arimidex. For some reason this helps many people with the pain from the arimidex. I use it and do find it helps. I recently saw my podiatrist (sp?) and got a cortiszone shot in my left heel. My left foot is a nightmare at times. Going back to see the podiatrist very soon and see if I can get another shot.
I wish you all the very best in your treatments and your journey!!!