Thanks for the dates tip kate. And almond butter ? well I love almonds and love butter so I’ll have to seek that out.
Hoping you both have a great weekend. We’re having a bbq tomorrow and it’s forcecast to rain. ?
Yeah moijan, I think in an age where there’s less and less money being spent on proper journalism, it’s always important to fact check stories wherever you can.
It’s a lot cheaper to twist something out of a bit of research and make a headline grabbing story than to actually investigate and research one.
I’m just relieved I don’t have to give up bread. ?
Hi Chris.
I’m only two weeks in to palbociclib but all well so far.
Apparently sugar feeds cancer. Saying that I’ve just been on holiday for a week and ate desserts every day so I’m not doing to well at avoiding it at the minute. ?
When did you start shedding hair? I’m really hoping not to. I cold capped on chemo last year and managed to keep most of it. The tiny bit I did lose is just getting to a decent length.
Best wishes to you too.
Hi Chris.
I’ve just had my initial two week blood test results. My wbc is slightly low, though I been told it’s normal and nothing to worry about.
How has yours been?
I’m on my 8th cycle of palbociclib with letrazol and can report zero hair loss. I also cold capped through 14 rounds of fec-t and kept most of it.
Thanks for the reply riversidedawn. Here’s hoping I’m the same.
I really love my hair and it’s just starting to get to a decent length as I had it cut very short for chemo.
I’m really mourning for my lost boob lately knowing that reconstruction is now not an option so to lose my hair as well might tip me over the edge. ? x
Morning Annie.
I haven’t been told to avoid anything yet. My nuets have already dropped to 1.5 following my first cycle.
I feel absolutely fine though. Apart from the letrozole aches and pains.
I think we have to be able to enjoy our lives while we’re going through treatments so embracing tiny snotty noses should be mandatory. ?
Excellent news about the lung mets. How long was it before you had shrinkage? I’m really hoping for the same with my liver mets but have convinced myself I can feel them. Xxx
Hi feelthefear,I’m a newbie to the forum. I’ve found it really helpful & supportive reading the posts. I’m on letrozole & palbociclib, just finished my 6th cycle. No problems as yet, also I’m on calcium injection & tablets since the breast cancer came back to party in my bones in my spine. All bloods normal apart from marker going up slightly, which my great oncologist said not to worry about. Does sugar help cancer to party? I never knew.?
Welcome to the forum nobody wants to have to join mags. Great that you seem to be coping so well with the meds. I hope they’re doing their job for you. ?
The sugar thing is a tough one. I think all cells good or bad feed off glucose. If you stop eating normal surgery things then apparently the cells will get it anyway by converting it from other things like bread.
Some ladies on here swear that avoiding sweet things is one of the keys to starving cancer. Others who have been living for many years with secondaries say they haven’t avoided sugar and are doing very well.
Even scientists disagree with each other on this one. So who knows. I certainly don’t. It’s a very sticky subject on here.
Good luck with your treatment. Xxx
Well explained Kate. Thanks. X
Thanks for this, I’m having problems which I’m trying to sort with logging into the website. I have to get on with temp one from breast cancer care,waiting for someone to ring back ?
Hi thanks for comments,when I can figure out how to stay logged in, I will be back. Using a temporary login at mo.
xx
Ok back again, hopefully sorted login problem.
First thing want to say is,thanks to you all for helping the process that has allowed me to have palbociclib without having to pay for it.
What concerns me is if I catch a cold or virus from anyone, can it knock me for six quite quickly. Touchwood managing to stay bug free at mo?
Hi, I’m Amy and have just starting out on this journey, 39 and straight to stage 4 with bone mets. I had 1 cycle of FEC and lost most of my hair but now the receptor status is back the plan is zoladex, letrozole and palbociclib. I had the first zoladex 10 days ago. I’ve been told to start letrazole and palbociclib 4 weeks after the zoladex- was this the same for you ladies?
Hi Amy. So sorry you’ve had to join us.
I had a year after my initial diagnosis before I found out it had spread to my liver. I can’t inagine how difficult it must be to find out your stage 4 straight off.
However you’re feeling now, I can promise you it does get easier.
There are ladies living very very long lives with bone mets.
I’m on the same combo as you. I’m 44 now. I’m half way through my 3rd cycle of palbociclib and honestly I’m tolerating it very well. The worst thing for me seems to be the zoladex and letrozole. The hot flushes are a nightmare. I’m also very tired around lunchtime.
I haven’t changed anything. I’m still going about my normal business, socialising etc.
My wbc has been low since cycle 1 but I’ve still been able to have my meds. First scan to check if it’s working is next month.
Let me know if you have any questions. X
P.s. I was given a zoladex injection, then a week later I started letrozole and two weeks after that palbociclib.
I was put on zoladex, palbociclib and Ibrance all on the same day and zometa infusion a month later.
Hello ladies, I am new to this group. I was diagnosed with stage 4 breast cancer nearly 3 years ago. My original treatment consisted of radiation treatment followed by letrozole and Denosumab for my bones. After 2 years the letrozole stopped working and I developed anothe 2 tumours ( already have 2 in my spine) . Because I am a private patient I have been put on a combination of Palbociclib and Flasodex. For those on this treatment you know that means your white and red blood count I will be lowered.
Niw this is the point of this email and I would be interested to hear from those UK residence on this point. I am 64 my white blood count has been too low on one occasion that my treatment has been delayed once but my GP said I don qualify for a flu jab. Has anyone else experience this .
‘Good luck ladies , it isn’t easy but there is life in this old dog yet
Hi again sorry to keep picking your brain. But I have just finished my 8th cycle of treatment, touchwood still doing ok. I’m in a bit of a quandary, I’ve been offered a flu jab, I’m not sure whether to have it. My oncologist said my choice, it might give some protection, but might give none. I have a fear of undoing the good work so far. Help, thoughts please x
Hi MagsHicks, are you worried that the vaccination or that possible flu might set you back? The flu jab last year wasn’t very effective, I had it in November and got flu really badly after Christmas so I’m keen to avoid that this year!
The vaccination itself is safe, it’s not a live vaccine but I hope it works this year…I joke that NHS got the economy version that only targeted 1 strain!!
Im on cycle 33 of my Palbo trial, will be having the jab but I’ll also avoid crowds, late nights, getting tired and anything else that might hit a weakened immune system. I’m not sure if I’ve been helpful but I hope so.