I get my biopsy result tomorrow and I’m terrified. Its DCIS but what if they find something else.
After my biopsy i met the breast care nurse
Ive already been given my surgeon’s name and where I’ll have my radiotheraphy and advised to tell my family so they could tell from the re assessment its cancer.
Can anyone tell me what to expect at my appointment?
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Hi deedee8
I understand how you’re feeling, most of us have been there, and it’s a stressful and worrying time.
I expect they might give you a bit more information about size, and grade (not the same as Stage). DCIS is regarded as Stage 0 cancer, that is good in the sense that it has not spread, it has been contained to an area. The grade is about how different the cells have changed in comparison to healthy cells. They may also explain in more depth about other variations and any long term care. They may explain how and when they plan to remove it and what to expect before and after surgery.
It’s a good opportunity for you to ask any questions, perhaps write them down before you go. Don’t worry if you forget to ask something, you can normally contact them by phone. This web site and forum are also good aides.
Best wishes x
@sal1 thank you. The anxiety has my brain in overdrive. I doubt I’ll sleep so I’ve a long night ahead. Yhank you for your reply it helps to know what to expect
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You’ve got some leeway for things not to change much if, lets say, some IDC is found. If its a small amount, surgery would be the same and still may not be a need for chemo, so no change really.
Hard not to panic while waiting for resuls, but it doesn’t achieve anything other than sleepess nights. Only 1 day to go, you’ve got this, and everyone is here for further support if you need it. Good luck.
Unfortunately its not the result i expected. The calcifications were benign but a 1.2cm invasive lobular carcinoma was found. Stage 0 grade 2
Ill have my lumpectomy next week and SlN will be checked as well.
Then I have a 3 week wait for the results.
The surgeon said ill have radiotherapy and meds but he also mentioned a 30% chance ill need chemotherapy which has completely terrified me.
Would i be better to just have a mastectomy and get rid of the cancer altogether or am I overthinking everything?
I feel im just living in a nightmare that has no end
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My apologies deedee8 I may have misunderstood your initial posting, that it is was already diagnosed as DCIS.
Sorry it wasn’t the best news. My only comfort I can offer, is that my medical team, and that of many others work really hard to take care of patients . With their expertise, they will be offering you the most suitable treatments and advice. Your team will be on hand to answer any questions and provide support, and you can use recognised web sites like this one, for extra information about the treatments they suggest.
It’s not a quick fix, but you are en-route to tackle this. Stay strong x
Hi DeeDee
Sorry to hear that your results weren’t as expected. I just wanted to share that I had lobular bc in July and had a mastectomy as there were 2 tumours far apart. No lymph infection found. It turned out there was no cancer in between the 2 tumours thankfully.
Final result was no radiotherapy (although was expected before surgery due to size even though I was having a mastectomy) and no chemotherapy. My surgeon said he’d only known of 1 lobular bc that benefitted from chemotherapy.
Just wanted to share and potentially stop some of your worrying thoughts. Really hope your results are good from here on. xx
@sal1 you are correct that i had been told it was dcis at first by what had been seen on the mammogram and. ultrasound. I then had the biopsy and aftr those results came it showed the ILC so i had gotten my head around one diagnosis and then had to take in that the first diagnosis was wrong and the second one is the correct one that i have to let sink in noow
Hi @tiamaria , thank you for your comforting words. I can only hope mine goes as well as yours did.
I had my pity party last night and cried solidly from 10pm until 4am when i fell asleep.
I went into work today just for the normality and i glad i did as it gave me a focus away from my cancer and waiting for results
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