Hi, has anyone experienced hormone Changes but in a good way and to having cancer treatment?
So had all my treatment chemo, radiotherapy, surgery, hormone therapy.
Settled on tamoxifen and the ovarian suppression, but my body was still trying to do it cycle continually through all the hormone therapy ,
So I stopped the ovarian suppression , just take tamoxifen now.
After 4 months of the ovarian suppression my periods Returned.
But what didn’t return was my severe PMS and delusions I used to suffer through my period.
I can’t find anyone who’s ever experienced this before.
How have you been on Tamoxifen, I still haven’t started mine after 3 months?
Yes! I’ve only been on Tamoxifen a couple of months but I have had periods which are fine and regular which they have never been before due to PCOS. Also, my skin is clearer than it has ever been in my life!
1 Like
Hi,
Yes same - on tamoxifen nearly 2 years. Periods are fairly normal, just a little more spaced out - every 5-6 weeks rather than 4. I get mood swings as normal, but no period pain!
My skin is also clearer than it has been for a number of years.
1 Like
Hi, compared to the aromatase inhibitors,( I tried them all over a
Period of nine months , they made me severely ill.
Tamoxifen is the better one for me.
I still have fatigue and concentration issues.
But it’s more manageable without the ovarian suppression.
I’ve been on Tamoxifen for just over a year.
I can sleep a lot better now, my mood seems to be a lot better than what it was, my hot flushes has improved.
But bearing in mind, I have been meditating for the just over three months daily, which I think helps a little bit of my anxiety.
I have been eating organic vegetables
Pretty much daily for the last two years too.
It takes about three to six months to really kind of know what the side effects are in your body, so I would definitely give it a go, if you don’t get on with it and I would probably suggest having a chat with your team. 
Hi Be, I think I’m a lot older than everyone in this chat, I’m 76, which is one of the reasons I haven’t started taking Tamoxifen. Who is ‘my team’, I have only had short discussions with my surgeon prior to surgery twice, my first 3 month check up & I am due my second via telephone this Wednesday. Also, the guy who explained my radiotherapy, both he & my surgeon told me I need to take the Tamoxifen. I feel totally confused, one day I think I’ll try it, the next I don’t think it’s worth it & so it goes for me.
I’ve got no idea what anyone’s ages are,
I’m a bit confused also as I didn’t think you were supposed to take tamoxifen before surgery.
Your team like your breast care nurse, breast care clinic, oncologist,
also your surgeon
I didn’t realize you could take tamoxifen when you are in your
70s, I thought it was aromatase inhibitors.
definitely get in touch with your breasts care clinic, and speak to a breast care nurse as this medication isn’t like paracetamol, it can give like side effects which can either be really severe or nothing at all.
So somebody should go over with you and weigh up all the pros and cons if taking the medication
I was prescribed Tamoxifen before I started radiotherapy & was given it because I have osteoarthritis, I also suffer from anxiety & constantly fight depression. I’m too worried about long term effects of Tamoxifen to take it.
Hi balchik
I don’t know if you have seen this before, but attaching the link in case you haven’t. This is from NHS Predict and shows likelihood of long term effects from Tamoxifen and shows the risk of any significant ones are really quite low. For me personally it’s a non-negotiable to take the medication as that is my treatment plan and my choice is to follow this to the letter. I had a niggle about the risk of cataracts as I already have one but my consultant said he had never come across anyone this had happened to. I will manage this by booking myself regular eye health checks. Of course everyone can, and should, make their own decision regarding whether to take or not so I hope you are able to make a decision you are at peace with.
Yes, thank you I have read these, but feel they are too general as every case of breast cancer is different. I suppose I could only get a proper idea from my oncologist.