I have been on this drug every 3 weeks since February 2021. Since April I have developed ‘cold’ peripheral neuropathy in my feet. To me my feet are freezing but are normal to touch. This has disrupted sleep, sitting & lead to difficulty in walking. The drug is working well & either stabilising tumours & in some cases shrinking some.
Has anyone out there any suggestions on how to cope with my cold feet? I’ve tried TEN’s machine, hot pads at night & have had to resort to sleeping tabs, thick socks. Only some relief if I keep walking. Drugs - GABAPENTIN up to 1800mg per day. No effect on cold feet. Analgesics make no impact.
The dilemma- Stop treatment or find a way to live with peripheral neuropathy which may get better if drug stopped or may remain as it is.
Hi dorsetpippa,
Thank you for your post.
I am sorry you haven’t had any response yet. I am hoping my response will help our members to see it and share their experience and/or advice.
Sending you our best wishes,
Zoe