Personal Independence Payment & Lymphoedema

I’ve just been turned down for the new PIP payment after having received DLA for lymphoedema in my arm for several years. Has anyone been successful in being awarded PIP for this condition?

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Hi needles,

I am sorry to hear that you have been turned down for PIP and I am sure some of our users will be along to share their experiences and show their support soon. I have moved your post to this board in order to give users more of a chance to see it and respond.

In the meantime you can always use our Ask the Nurse service or call our helpline on 0808 800 6000, who will be able to talk you through any questions you have and offer a friendly ear. The opening hours are below:

Monday-Friday, 9am-5pm
Late opening Wednesday, 9am-7pm
Saturday, 9am-1pm

Best wishes, 


Hi do you have a maggies or macmillan centre near you? They have welfare rights advisors who are excellent if not i would contact macmillan via the helpline. The indicators for pip are different from dla and you could do with some support. In the first instance you need to request a mandatory reconsideration so you are able to appeal and this is time limited. Good luck x

Thank you Helly18.
I never thought of calling Macmillan, but I will tomorrow.
I’ve asked for the mandatory reconsideration, so will wait to hear what they say. There’s a very distinct misunderstanding of lymphoedema - they had completely ignored that part of my interview in their reasons for turning me down. When I called the ATOS person thought my sleeve was a piece of clothing … ?