Living with secondary BC is hard enough. However it is usually the little things that tip me over the edge.
Maybe you have some of your own? Here are some recent ones ??
The routine blue badge stare by elderly people. I am just waiting to be challenged. Who remembers the lady a few years ago that was hit by an old man with a stick??
The 12 year old pharmacist who treated me like a criminal because I was buying co-codamol. Did I know about addiction?? Em , yes but I have secondary BC…Still, did I know I could be addicted? AAArrgh
The chemo nurse who laughingly tells people that people do not really die from bc anymore.
The aggressive stares and verbal challenges when i ‘jump the queue’ for my pre treatment bloods (yes there are posters explaining about priorities).
The list goes on…The aim is for a light hearted vent and scream for the people that know…
Really really sorry that some people are so petty that they can’t bear anyone to have anything extra than them.
You deserve a massive big squeeze from down here in Kent.
I hope that as well as the small-minded people you’ve come across there are some good supportive people within your world.
Keep ranting! I’m sure many more will want to add to your list…
Hi Julie, I know just how you feel about the stares re the blue badge. I get them all the time and am sometimes tempted to hobble away out of the car just to stop it. I am also waiting for the verbal challenge, but I’m ready for them. Have you read the “What is your Disability” thread. It’s unbelievable.
So rant away, it does us good to let off steam sometimes and if you can’t do it here, then where can you?
Hope you and everyone else is feeling well today. Take care, Lotsa love, Dianne x x x
Add to that the older people on the bus, who look at you expectantly to give up your seat for them, them scowl when you don’t because you’re hip/spine secondaries probably hurt a lot more than their arthritis!
My father-in-law bugs me. Whenever I see him he is always going on about how, after he has been playing tennis for 2 hours, he gets various aches and pains. To me this just seems so insensitive given that he is over 20 yrs older than me and that I am on crutches due to having had 2 major ops recently for bone mets. I would just love to be able to walk across the room unaided, never mind run about a tennis court for 2 hours! I feel guilty for feeling so negative about him but it just feels like he is showing off that he is much fitter than me.
I have not got secondaries either but the ‘got to be positive’ bit gets me annoyed.I think if it was that simple we would all be bc free ! Although i had primary bc two years ago and so far NED I do feel out of step with alot of those with primary bc. Ihear all the talk about diet and if Ihad done this and that bc will not return etc. My thoughts are that I have had a disease that could kill me and may do in the future and life is short and small pleasures like chocolate etc should be indulged. I was in a local town today with a friend and I bought an enormous chocolate ice cream- the stares and looks we got from people- filthy looks from me all round. And comments !! My friend has a blue badge for disability and she gets the rude comments as her disability is not obvious to them. I am having a rant but if i put my thoughts on other threads I get in trouble for being negative etc.Thanks for reading and letting me crash the secondaries thread.
I agree with Julie - I feel exactly the same and please come on this thread whenever you feel like it. Lotsa love and hope everyone is having a good weekend. Dianne x x x
Sorry you’ve had to join us on here. Hope you and everyone else are feeling well today. I felt the same when I first got the blue badge. I sometimes got out of the car and made it look as if I was struggling just to avoid any comments or the black looks.
However, I’ve very quickly come to terms with it and now just get out and walk away. Don’t know why people are so unkind to each other. Sad, isn’t it?
Anyway, you take care of yourself and hope you have a good and ‘stare free’ day. Lotsa love, Dianne x x x
Hi
I love the idea of ‘Secondary BC On Board’ sticker next to your blue badge
I’ve yet to get mine - blue badge that is - as I feel I’m ‘too’ mobile atm and boy would I expect to be challenged!
Nicky x
ps it’s nice to have a lighthearted thread again in the secondaries forum - we’ve been missing them. In fact my, minor/funny rant is 'Why, every time I open a new packet of tablets - bearing in mind I have 4 different types to take each day - is the information leaflet ALWAYS folded over the tablets at the end I open? No matter how I try to open different ends it’s always the wrong one. How do the manufacturers do this? Are they physic? Do they just want to annoy me 1st thing in the morning? x
Oh yes me too re those tablet leaflets! I bin the leaflets…and then wonder if I will need them in an emergency when I develop some rare side effect.
Welcome Pippi…although I wish you did not need to post in secondaries you will find much support and friendship here…x
Hi Girls, guess we’re on line at the same time. What a brilliant idea, Secondary BC stickers for the car. Someone should patent it and make a fortune. Nicky, I am completely mobile and really do look as if there’s nothing wrong with me, but I wouldn’t give my blue badge up now, it’s fab being able to park more or less wherever you want and it’s free, so get yourself one. Am in total agreement about the leaflets. I also bin them Belinda and then if I get a new ache or pain I wish I hadn’t. I want to look at them to see if it comes under their se’s so I don’t have to blame it on the cancer!!
Nicky, haven’t seen you on the ‘feeling low’ thread for a while. We should re-name it actually, because most of the time we’re all reasonably happy. Had a laugh this morning cos Mary had lost her post 3 times and I lost mine once. Anne had suggested that Mary look back at your suggestion for copying, pasting etc, but neither of us have a clue, so gave it up as a bad job and started again!
Take care of yourselves girls and have a good day. Lotsa love to you all, Dianne x x x
Hi Diane
It must be another Nicky as I don’t remember posting on that thread although I have read it a few times - and maybe added a comment at the beginning. I’m fairly upbeat most of the time so if any of this can rub off on anyone feeling low then go for it! There are a lot of 'Nicky’s on here atm so I’m wondering if there will be any research into names being a deciding factor for BC (hope this isn’t too glib a comment for you all!)
And worryingly I realise I take 5 not 4 tablets every morning - even more annoyance in the leaflet department - I fair rattle 1st thing
Nicky (08!)
