I am halfway through chemo of Docetaxel, carboplatin and phesgo injections for HER2 positive breast cancer. Treatment is brutal but going well. After a lumpectomy and radiotherapy will still have to have phesgo injections every three weeks for 18 months. Wondered if you still have to shield and if you can travel whilst having these injections
@daisy9 well done half way through! I have my second cycle on Tuesday and agree itās brutal.
I was told 18 cycles of phesgo in total including the 6 I have with my chemo.
I think it does affect your immunity but maybe not so bad as the actual main chemo. Be interested in what others say in this. I am not enjoying the āisolationā
Thanks. Wishing you well with your treatment. Do you also have to have a lumpectomy and radiation
@daisy9 thank you. I have to have mastectomy. Not sure about radiotherapy yet, they said will depend on my surgery. (I am quite small chested hence the mastectomy)
Hi,
Iām not long finished this treatment. I still had to get bloods taken every 3 weeks to make sure my levels were ok. I didnt need to shield but was told i couldnāt go swimming or in a hot tub during this treatment. I was however able to go on a couple of holidays (home & abroad). It gets easier & youve got the hardest parts behind you. Keep going x
Thank you. Wishing you well for the future.
I found the adjuvant treatment (Kadcyla in my case as there were still some cancer cells left at the end of treatment- so like phesgo, but with a tiny bit of chemo thrown in for good measure) to be very doable. I felt a little rough for two or three days but worked throughout the 14 cycles. I didnāt shield and luckily never had to delay a treatment as bloods were fine each time. I finished my last one a month ago thank goodness! I am tired and need to get fitter but that could also be the cumulation of 20 months of treatment from the first docetaxel/carboplatin/phesgo to two surgeries to 19 radiotherapy sessions to the 14 Kadcyla cycles!!! Onwards and upwards now though. All the best of luck to you. Itās a long haul for us HER2+ ladies, but arenāt we lucky that they have so much to chuck at it, and give us the best chance of keeping it away xx
Thank you. Youāve really been through a lot. Wishing you well for the future
Hi, Iām getting my 6th Phesgo tomorrow and currently have a break in between surgery and radiotherapy. After radiotherapy Iām moving on to Kadcyla, so I asked if Iām allowed to travel for a weekend getaway next week as I have a few days without appointments before everything starts again. They said that my bloods are fine (itās been about 8 weeks since my last chemo) and Iām fine to go on a plane and have my short holiday that I wanted! I had asked about Phesgo on its own and they told me that it does lower your immune system slightly, but nowhere near as badly as the chemo didāŗļø
Good news. Enjoy your Iām sure much longed for break away
Hi, you have the exact same BC and treatment plan that I had. The chemo was brutal and I suffered with sepsis and needed a blood transfusion and ultimately a lower dose of the chemo. I had a lumpectomy and radiotherapy and also a continuation of phesgo injections for 12 months post radiotherapy.
I found that once the chemo finished I tolerated the phesgo injections very well. Your immune system will remain low for a while but I still went out and socialised which was a blessing after isolating during chemo.
Iām coming up to a year post chemo next month and Iām doing well.
Good luck with the rest of your treatment. Stay strong and keep focused on being positive xx
Thanks for that. I will keep this in mind as I have my next chemo this week. Iām strong an determined and will get to where you are. Wishing you well for the future
Hi Daisy9
I was HER 2 positive and had the Phesgo injections after my chemo, surgery and radiotherapy. I was back at work (teacher in a primary school) for at least 9 of them. I was never told they would lower my immunity and went on two foreign holidays as well while on the Phesgo injections. I didnāt have my bloods done as regularly either maybe once every 2/3 months? Found them very doable but was still glad to get to the end of them.
Wishing you all the best!
Hello also HER2 pos here
I was meant to have my 5th chemo cycle tomorrow but this as been postponed till next week! As my blood platlets etc was low. Not had any issues until nowā¦ not going to lie thought the 4th session was pretty rough! And i feel like i have not fully bounced back like i normally have with the other roundsā¦ just felt tiredā¦ aches n pains. Occasional headache and just wiped out so i was not surprised at all about my bloods. Just having a week of rest and hopefully next week i can go again. Geared my self up too for tomorrow! So frustrating.
Anyway, my treatment plan is same as yoursā¦ 6 rounds of carboplatin and docetaxil followed with the phesgo injectionā¦ i will have a op in December followed by radio tooā¦ its a proper sh*t storm but we will get there! It is brutal but its all worth it! I had a mri scan after third round and its all good. Lymph nodes clear and lump gone from 2.7cm to 1.4cm i have had another round since then too! I dont even know if i can.feel it now. #shittytitty
I have not been told to sheild either just to be carefulā¦ i not done much but i have been out the odd timeā¦ have a 2 year old to entertain so it can be quite hard stuck in. I not seen any friends though since all thisā¦ but planning to soon since i have 2 treatments left
@jeml you and I are in the exact treatment plan but not yet mentioned radio. Just had my second cycle yesterday so a little behind you.
I have my scan booked for the 30th so really reassuring to read about your response to chemo with the tumour shrinking that is fantastic news.
My oncologist said the fatigue is the the thing that gets worse, so just surrender to it and keep doing what your doing as itās obviously working.
Good luck with the rest of your treatment
Yes i have responded excellent to treatment. The side effects are brutal but its the only way! Stay positive and get plenty of rest! Listen to your body and its needs.
It does get tougher as you go along because your dose is topping up each round. But to see the results it does is all worth it! I have had another round since my scan tooā¦ i dont think i can even feel my lump now! Just feels normal again. I had tested positive in my nodes too but they are back to normal now just after 3 rounds x
Well we have lots getting thrown at it with our type! Did you have node involvement? Maybe thats why i am having radiotherapy. They did say they were going to throw everything at it though due to me being only 33.
@jeml not when I had my initial biopsies so hopefully still clear. Am 50 so quite a bit older than you x