Dear fellow travellers on the road to wellness,
After 4 cycles of EC I am due to start Phesgo with Paclitaxel in about 4 weeks time for my ER+HER2+ IDC.
As a type 1 diabetic I have asked if I can forgo the Paclitaxel due to the ridiculously high risk of peripheral neuropathy plus impact of the high alcohol content. This met with a firm no from my oncologist. I was told there is no alternative to the Paclitaxel, and if I refuse it I can’t have the Phesgo and I will be immediately referred for surgery.
Has anyone on here has a similar experience? It seems cruel to deny Herceptin if its such a wonder drug to a HER2+ breast cancer patient without any explanation which believe me I asked for and got none.
I have contacted the drug manufacturer to ask the same question and await their reply.
N.B. I am 65 years old and have the beginnings of peripheral neuropathy already after 3 cycles of the EC.
I would very much welcome hearing the experience of others.
Many thanks from Tulip x