phyllodes

phyllodes

phyllodes hi can someone help me with some info on phyllodes borderline tumours - your experience or any other useful info

thanks

mallen

Links Hi mallen

Breast Cancer Care publish various leaflets and publications, the link below will lead you to some information you may find helpful.

breastcancercare.org.uk/content.php?page_id=427

you may also find the Ask the Nurse email service or

the helpline on 0808 800 6000 Monday to Friday 9am-5pm and Saturday 9am-2pm a good sorce of information and support.

Kind Regards

Online Forum Host

Breast Cancer Care

borderline?? Hi Mallen,

I have a phyllodes tumor which is in part, 25%, malignant and was wondering what they class as borderline?
I have found lots of information from the internet just through search engines but it still seems to be just the same stuff over and over…my consultant wont commit to giving me any more information at this stage and just keeps saying how rare it is and the pathologist wont sign off the final report…so good luck on your quest!!
All the very best
sal

phyllodes hi sal

Don’t know what borderline really is, assume it is part malignant, not getting any info bar what i have found on internet same as yourself.
Have had no dealings with pathologist, what do you mean won’t sign off final report?
I have just had second tumor removed and consultant seems happy just to keep a good eye on me, am not too happy as this is 4th time i have had operations in last year. All i know is it is really rare and you are the first person who i have had contact with who has the same tumor, no-one has been able to put me in contact with anyone with same problem. Didn’t even know under what forum to ask questions as we don’t seem to fit any label.
Enough of my moans -
All the best

Mags

phyllodes Hi Mallen,
Moan as much as you like…its a stressful time…Igot loads of help through “darkfairy” on the link below, she has lots of experience with it and links to other sites…I must say I found this forum a lot more relaxed and supportive, especially as we dont have common or garden tumors!
You can also leave me private mail there under same user name!
Good luck!
Sal
xx
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