Pinkdove, just to update you all

Pinkdove has not been well enough to post on here for a while and last night PD asked me to update you all.

Just before christmas PD was diagnosed with Meningeal mets.
Shortly afterwards was admitted into hospital due to complications where she stayed for a month.
During this time PD had WBR but contracted C’diff which left her vey very weak and with a huge weight loss which she didn’t have to lose in the first place.
Of course Pd has always been in full voice…
even the times she cant remember!!!

Scans showed that the cancer was active in the liver once again after two very sucessful years on Capcitabine and so Pd started on oral Vinerobine.

Unfortunatly this has not worked and left PD even weaker.

PD has also now got mets in the lung and has needed her lung drained twice.

Last week it was agreed that treatment was to be stopped as the chemo is not working.
(Jane, PD would have loved to have joined in your post about stopping treatment and sends her thoughts to you…
I almost felt as though I should have been taking notes and then posting them)!!!

PD has been transfered to our local hospice and is getting some proper drugs for her pain!!!

I had a lovely visit last night and updated her on everyones news, that I could remember!!!

I will be seeing PD this weekend and if anyone has any messages I will gladly pass them on.

Regards
Tess,
(bikinggirl)

Hi Tess,
thank you for the update on Pinkdove.
When you next see her please pass on my best wishes and give her a gentle hug from me.
Love Debsxxx

Thanks so much for the update Tess.

I often think about Pinkdove…I don’t really do cyber hugs but thats what I’d like to send her…particularly knowing she wanted to join in my thread about stopping treatment.

Please tell her I’ve got a thread going on regional recurrences and thank her for all the support and help and ideas and understanding she gave me about this.

This is all such s**t. Go gently PD in every meaning of that phrase. I hope the hospice gives you good care.

Jane x

Hi Pickdove,
Sending you my love and to let me know you are in my thoughts.
Kate

Hi…Please give pinkdove my love and tell her I’m thinking of her…I have missed her postings but I’d hoped she was feeling okay and was taking a break from the board.
I hope she’s getting all the help and support she needs from the hospice…and I do hope she’s as pain free as possible.
Thank you Tess…Love to you both…Belinda…x.x.

Hi, I don’t really know Pinkdove at all either but I am really sorry to hear she’s not doing too well. I am sure she is being very well looked after in the hospice. Please send my love and thoughts to her too, thanks Tess.

Lesley x

Please pass on my very best wishes to Pinkdove. I have often wondered how you are and I am sorry to hear your news. I wish you peace and comfort in the times ahead. I have missed you on the boards.

Jenny
xx

Hi

Please pass on my best wishes to Pinkdove too, and am so sorry to hear the latest news about her. I did read on bcpals that she was poorly etc, but probably like everyone else, hoping that she managed to pull through that time and return to us all on the forums.

Sending lots of love and hugs to you pinkdove. Hope that the hospice take good care of you and keep you pain free.

Dawn
xxxx

Sorry to hear this news, but please pass on my best wishes to her. I often wondered how she was getting on and like others already mentioned hoped she was having a break from the boards.

Take care hun xxx

Hi
Just to ask for my best wishes to Pindove to be passed on to her. Hope she is comfortable in the hospice
Love Kathryn

Thanks for the update…PD - lots of love and thoughts. Hope you are comfortable and being looked after in the Hospice…
Heaps of love
Heather
x

Pinkdove,

I have meningeal mets too, we exchanged some posts before Christmas which I found really helpful. I had not come across anyone else with meningeal mets, it is good to be in touch with others out there. I have been thinking of you and wish so much you did not have to go through all this.

Just before Easter I finished a 6 weekly dose of chemo delivered by lumbar puncture. Not pleasant!

Thinking of you, with love and a prayer,

Lottie