Hi Carol
Just wanted to wish you well and hope that your treatment goes well and you dont suffer too much.
Take care and lots of love
Dawn
xxx
Hi Pinkdove
I have just picked up this thread and wanted to dend you my best wishes for yor treatment. It’s horrible having it start at Christmas but I can totally understand what you say about otherwise it just hangs over you. My philosophy has always to get started asap and get into a routine , then things become sort of normal, well in the world thay we all sadly inhabit. The hair is sad isn’t it, I am trying to hang on to mine at the moment on Taxol as I hated it growing back curly after FEC and it was at the stage when it was half decent again or as decent as it’s going to get given my 48 year old harassed working mother state ie can’t spend an hour every morning blowdrying and straightening, the life of a 14 year old!!
Take care and post us updates
Love Kathryn
Hi Carol
Yes hoping wbr goes as well as it can. I’m on my third time of baldness too…really like my incredibly cheap wig from Trendco…much better than much more expensive ones…now there’s a positive for you…
Jane x
Hi Pinkdove,
If you look at some of these postings
crmagazine.org/archive/pages/CRReportsFromSABCS.aspx
there is some interesting new stuff on the horizon with new chemos mentioned for brain mets etc.
Jenny
x
Hi Carol,
Just wishing you all the best for kicking this bu**er into touch… Hope you feel well enough to enjoy Christmas and can benefit from that amazing relief once treatment starts and you feel like you’re doing something positive and part of a team fighting it together.
love jacquie
Hi everyone
Thanks for your messages. Had my blood transfusion yesterday which in my naive state thought would be 2 hours - huh??!! 6 hours in total but am feeling slightly better today so whether that’s in my mind or it’s true I don’t know!
This will be my third time of losing my hair Jane as well - that’s the thing that seems to be upsetting me as much as all the other stuff that’s going on which sounds so trivial to people who might not have been in this position but I have very thick dark hair (it’s in my genes even though I’ll be 54 at the beginning of January!) and I just don’t want to lose it
again
Bumped into the Matron on the cancer ward who is a friend of mine (she’s had a benign brain tumour about 6 years ago) and she said to me not to underestimate the radiotherapy and how it can affect me so I find info like that really good because I know it’s the treatment not symptoms of the disease.
Take care everyone. Thanks Jenny for the link.
Love Carol
x
Hi Carol,
I am so sorry to hear all that is happening for you. Sorry I haven’t been in touch with you for a while but had a bit of a cr*p time of late.
It is so awful to keep losing your hair on top of everything else. I think it is hard for people to understand if they have not experienced it. My hair thinned with my chemo which I am feeling highly disgruntled about and am fed up with leaving a trail of hair behind me wherever I go even now after my last chemo cycle is over. But, hey … at least I still have some to play with… Just thought I would say that I took some lovely photos of earlier in the year so if you need a formal ‘reminder’ of your beautiful hair, let me know.
You are an amazing lady, Carol and even though you probably don’t feel you have the strength to face what lies before you, you will.
Big hug, lots of love and I’ll be thinking of you next week.
Angee xxxx
Hi Angee
Thanks for your post - it’s meant a lot to me. I had a feeling that you probably weren’t 100% and am hoping that you’re beginning to pick up again?
My hair is even longer now than when I last saw you - typical isn’t it! I’ve decided to buy some new wigs (the ones I bought 14 years ago feel dated and the ones I bought 4 years ago just don’t feel right!) and because I’ve been told that it’ll take longer for my hair to come back I want to feel confident with a wig that doesn’t look like a wig.
How’s your work going? I wondered whether you were able to do much as it can be so hard sometimes when you feel unwell.
Hope you have a lovely Christmas - email me anytime you want to.
Lots of love
Carol
xxx
Hi, just wanted to sympathise with the hair loss - I understand completely how you feel about that. I was diagnosed 3 years ago in January (I was 37) and had a mastectomy, radiotherapy, chemo, herceptin, and finally tamoxofin and the worst thing about all of it, for me, was losing my hair - I was totally and utterly devasted when it happened and cried bucket loads… To be honest I couldn’t really have cared less about the breast coming off, at the time I just wanted the cancer cut out and gone. If I had to lose my hair again I truly dont know how I would cope but you do, dont you, we havent really got much choice if the docs say we need treatment. I had two wigs and they both looked pretty good, I wouldnt even empty the bucket without my wig on, thats how conscious I was about it all - I can look back now and laugh at myself but god at the time it was no joke. Once the chemo stopped and my hair started to grow it came in curly and that was another nightmare, up until then I had always had poker straight hair, but thankfully it looks now just as it did when I lost it, no curls, lol.
I wish you the best of luck with your treatment X
Jackie
Wishing you all the best - hope the rads have begun OK.
Jenny
x