Hi all
Yes it’s me again. I’m going to tell you everything I know so far and I would like truly honest answers. I know nobody is a doctor but just to have people who have been there are going through it. I suppose I want clarification that my worries are justified.
I first went to the walk in centre because I was getting a lot of pain in my breast. I knew I had the lump but it was pain that made me go the centre. I was then referred to the breast clinic. I was thoroughly examined and he said he felt the large lump and sent me for a mammogram there an then. When he called me back in the McMillan nurse was in the room and he explained that he didn’t like the look of the images and something worried him. He asked me to have a biopsy then on the following Tuesday.
my breast was still extremely painful. I had my biopsy then seen another consultant and he asked me what I thought it was so I said cancer. He then said yes so do we.
I got a call a few days later to say I needed to go back for my biopsy. After having it done again I think I just broke finally due to the pain and built up emotions the bcc nurse took me into a room to say my first biopsy showed normal tissue. I was ecstatic and said that has to be good news but she soon said don’t get to excited it probably means we haven’t reached the lump.
Im on quite a few painkillers due to this constant pain I’m in.
im convincing myself all will b ok on Friday. I have a bone scan tomorrow and another scan on Wednesday then I get all my results on Friday.
Im hoping someone out there has had similar to me. Does anyone think my concerns are justified? Please please b honest with me, I feel at the moment I’m honing to drive myself mad
thanks for listening to me rambling on again
nikki
Hi Nikki, I’m sorry I can’t give you the definate answers you so desperately crave as I’m no medical expert. What I can say is that your BC nurse is correct when she says they may not have reached the lump with the first biopsy, there is also the chance that they might have gone straight through it and sampled normal cells behind the lump. Your team appear to be being very thorough with you and you are in the hands of the experts. It is a very scary time, particularly when you are waiting for further tests and their results, but please be assured it really does get better. You’ll be much calmer when you have your results and a treatment plan, if you should need one, as you will have regained some measure of control of the situation. The best advice is to keep yourself as busy as you can so you’ve not got time to let your imagination run riot, and please do not google - you’ll only frighten yourself to death with out of date or plain inaccurate information. Stay on this site, let us know how you get on and if you do need to join the club you’ll get lots of help and support from us all. Sending you (((big hugs))) take care, Pat x
Hi Nikki,
I’m so sorry you find yourself here, but also very glad you found this site for support and advice. I have to agree with Trisha_51, that Googling will only make you feel worse. This site and the Macmillan are the best sites.
What Trisha says is quite reasonable, of course nobody will know just what the doctors have found. But Friday will come quickly, and with it, the answers you need.
I know I seem to be repeating everything Trisha has said, but it really will get better when you know what you are dealing with. You can take it from those who have been there, that waiting is the worst time of all. I’m also sending you BIG HUGS and very best wishes for Friday.
Hi Nikki - just wanted to send my love to you as I know what the waiting is like. Whatever the outcome on Friday is, at least you will have a plan for the the way forward. There are lots of lovely ladies on this forum who will be only to willing to help and support you. Lots of love and hugs x x
Nikki, I can’t add anything except to agree. The waiting is hell. If it is cancer it is a horrible shock but you will cope. Everyone here understands and will support you and even make you laugh. Keep busy, don’t Google, ask any questions on the BCC forum that you think might help you.
God bless, big hugs, MMM x
Thank u all.
ive used this site since last wk to rant to moan to feel sorry for myself and everyone has been so kind x I just feel like I’m slightly insane at the minute. But Thanku everyone for your support I really do appreciate it x x x
your not insane you are scared stiff and that is ok. The waiting is horrendous and unfortunately if the news is cancer you will be faced with lots of waiting. Please try to take one step at a time, worry about what you do know not what you don’t. I know that is hard but trust me when I say you will feel so much better and stronger when you know what you are dealing with and you will come through this. We are all here to support you xxx
I don’t want to burst your bubble BUT when I went for my tests, the doctor knew it was BC before my results were in, straight after my biopsy. I think they know what to look for etc. For me it was no surprise as I knew as soon as I saw it. I think you, probably do too.
That was probably the worst time of my life.
But it’s not the sentence that you think it is. Get your treatment and then get on with your life. The treatment isn’t pleasant but it does do the job. In a few months you’ll be looking forward to your holidays and simply getting on with your life.
I don’t want to burst your bubble BUT when I went for my tests, the doctor knew it was BC before my results were in, straight after my biopsy. I think they know what to look for etc. For me it was no surprise as I knew as soon as I saw it. I think you, probably do too.
That was probably the worst time of my life.
But it’s not the sentence that you think it is. Get your treatment and then get on with your life. The treatment isn’t pleasant but it does do the job. In a few months you’ll be looking forward to your holidays and simply getting on with your life.
hi, when i went for my biopsy i was told they thought it was cancer before they even started, they seemedto know by the way it looked on the mammo, if it is cancer you will get there and come out the other end, i am 5 years now
xx
Dear Nicki, Nobody can make the waiting easier - it’s the pits! In my honest opinion I don’t think they wold have said that they thought it was cancer unless they were pretty sure. There is of course still a chance the lump is not cancerous, but lease be as reassured as you can be that they are taking it seriously and doing all they can. xx Good luck.
It’s not long now until you get your results…the waiting really is the worst part.
Like the last few posters have said, I don’t think the doctors would have said they thought it was cancer if they weren’t pretty sure it was. I think they can tell from the way the lump looks on the mammogram/ultrasound. I think the biopsy just confirms it for them (as well as giving the type and grade) The actual diagnosis was quite a relief after all the worrying.
It’s better that the doctors/nurses are being cautious and thorough rather than just say the biopsy is clear and you find out months down the line that it was cancer after all.
Please let us know the results when you get them xx
I was also told they thought it was cancer after mammo/ultrasound. After spending a week researching every benign condition that fitted my symptoms, I was convinced they were wrong but the biopsy showed otherwise!
It sounds very encouraging that you’ve had a bone scan already, and I assume a CT yesterday. Then, if the biopsy confirms malignancy, you will at least either have the reassurance there are no detectable secondaries, or have the information to be treated aggressively from the start if there are.
Apologies if I’m moving a bit quickly, but based on my experience this was very useful. I used my Bupa insurance to get these scans early too and unfortunately had secondaries. I was then treated aggressively for both, with great initial results. In the words of my oncologist it meant I got “a more appropriate treatment” for my diagnosis.
Best of luck tomorrow, I pray for the best news for you, after all, they don’t know for sure until the biopsy result. Glad you’ve found good support here, as I did too.
Hi Nikki,
Similar story to the others really. When I had my biopsy, the doctor saw a node she didn’t like the look of and she did a biopsy of that too. That made me believe I had BC, and when I went back for my results one week later, I was told I had Ductal Invasive, ER/PR positive, HER 2 negative. So I had mx and snb. Results came back grade 3 with micromets in lymphs. I also found out later I had vascular invasion. So chemo, but no rads, and now Anastrazole for at least 5 years.
I can honestly say it has been the most liberating experience of my life. With the support of the February Valentines, I found chemo a breeze (relatively speaking) and as millymolly said, we had a laugh through it all. They are now among my best friends.
Sending all good wishes for tomorrow.
Hi Nikki - just a quick note to let you know that I’ve been thinking of you this week, and wish you the best of luck for your results tomorrow. Lots of love x x
Hi Nikki, I hope your results were positive, or that at least you know what you are dealing with. I too got my results (by phone!)this morning and was diagnosed with borderline malignant phyllodes tumour. No idea what this is, but on read the information on here, I think it is classed as breast cancer (?)I told my husband to go to work as they said it was a likely fibroadenoma, got the results on my own with a house full of playing kids!! Sorry for rambling, I wish you the very best with your results xx
Hi all.
Got my results and it is breast cancer. Apparently the lump is too large to do a lumpectomy, so my options are to start chemo and then hopefully the lump will shrink and they can then do a lumpectomy or have a mastectomy!!!
i don’t really know what to do at the minute. Feel like I’m in a bit of a trance and its not really happening to me.
I have an appointment with the oncologist on thur and hopefully I will have some clearer info by then.
Hi Nikki, so sorry your results were not the ones you hoped for, but at least the uncertainty has gone and you now know what you are dealing with. Lots of the ladies on this site have had chemo before surgery, some with some quite spectacular results. Try and take someone with you when you see the oncologist, two pairs of ears are better than one! Best of luck on Thursday, take care, Pat x
xxxx