PLESE HELP (Herceptin Postcode lottery)

Public Archive
1

PLESE HELP (Herceptin Postcode lottery)

2

PLESE HELP (Herceptin Postcode lottery) A lady has emailed me asking for help regarding 7 other ladies who need Herceptin in Shropshire. She is trying to gain support from other BC sufferers because the ladies have a meeting TOMORROW!. I’ll copy and paste her email here:-

Janine

I am contacting you regarding the decision by some PCT¹s not to fund the
drug herceptin.
I live in Shropshire and was diagnosed with breast cancer last year, I had a
mastectomy followed by 6 months chemo. I don¹t need herceptin, but became
aware of 7 women in the county who do and are being refused it by Shropshire
PCT.

I contacted these ladies last Tuesday as I felt I should offer my support.
We have managed to secure a meeting with the chief executive on Tuesday 21st
march. She will have her experts in the meeting with her, I am frantically
trying to gather whatever evidence I can ahead of the meeting.

I am particularly interested in anybody who has had a meeting with their
Chief Exec and managed to overturn their decision not to fund herceptin.
We are meeting with the Chief Exec, Director for Acute Commissioning and
Director for Public Health so they will be all clued up and no doubt have
lots of jargon to throw back at us.

Please contact me if you know of anyone who could provide information which
will help us at our meeting.

In the meantime we have set up a hastily done website www.shropshiresix.com
on which you can email direct to the chief exec and Patricia Hewitt offering
support for these ladies.

Many thanks

Julia Black

The website is very good and there are links for who you can email to support them.

Thanks for you help!

love Jen xxx

3

Jen I’ve emailed Julia some stuff I sent to my MP (who’s the Lib Dem Health Spokesman) recently about Herceptin and the intransigence of the PCTs in my area. (and I owe huge thanks to slp for a lot of the material)

I don’t know whether it is of any help to the Shropshire six. I deliberately tried to include some challenges to the “exceptional circumstances” excuse.

If anyone wants a copy, I’m happy to email it (not sure how due to restrictions on email contact details on this site) - need to know if anyone wants it first.

I can’t promise that it will make any difference, but who knows - as my mum says - constant dripping wears away stone.

4

Hi Daphne www.phpbbserver.com/breastcancer

We have set up another message board with a facility to contact other members. Jen has a section for Herceptin there, you might want to post the details on there, that way members will be able to contact you.

5

Thanks RMW Have followed your advice.