I am due to start Capecitbine on Thursday, fingers crossed, first line of treatment did not work. I have what they informed my was a small spot on my liver and now 4 mets within my spine possibly something on my lung too. Thank you Jaybro for your positive story regarding Capecitbine, these stories encourage me to want to start the Capecitbine. Would be interested in finding out how long people have been having this treatment and following this chemo tablet what was the next line of treatment is there another chemo tablet if Capecitbine stops? I am a girl/lady who needs data to help come to terms and feel positive. Many thanks to all Louise x
I’ve seen a chart that shows the first three lines of treatment, with lists under each line (apparently that’s what they call it). It might be just TN but if I can locate it on FB, I’ll PM you and hopefully they’ll. let me attach it. I’ve been told ready that Paclitaxel will be my 2nd line and maybe the new drug Troveldy (which it seems is intended as a 3rd line treatment. So I am hoping Cape keeps me going as Paclitaxel made me feel like a zombie and I still have numb fingertips!
I am also ER+ and started Capecitabine in June 2020. I’m still on it and it has been working really well for me. I had quite a few mets in my spine, ribs and pelvis, with a couple of spots popping up in my liver, but Capecitabine has kept everything in check and it has actually almost cleared my liver mets up completely. I’m on a reduced dose, I started off at the full dose but I have eczema and am very sensitive-skinned, and Cape was making me itch like mad. After 6 months my Onc reduced the dose. I take 1300mg twice a day now and its been really good, I feel very well most of the time and hardly have any side effects.
Out of the few side effects I have had, its mainly been itchy skin/itchy eyes and having random dark freckles suddenly appear in weird places, like on the soles of my feet! However they are harmless. I make sure I don’t go out in the sun unless I’m fully sunblocked at factor 50 and covered up. I also started to get really bad pompholyx eczema between my toes, which I used to have as a child, but it seems that Cape has brought it back, or so the Dermatologist and Oncologist think.
Keeping very well hydrated seems to have a big effect as well, I notice that the days where I forget to drink plenty of water I start to feel lethargic, more itchy and generally a bit headache-y.
I work full time from home in a very hectic job. I manage to do some gentle exercise every other day, whether its a short walk, a few small weight exercises at the gym or prancing about in my living room to the likes of Nintendo’s Just Dance game. I do get really tired sometimes, usually at the start of my week off the Cape, but its never stopped me from doing what I want to do. Life is pretty “normal” for me in that sense.
I hope you have a good experience with it and that it gives you some good results! xxx