I know that’s what I was thinking - the MRI is for legs and hips which is where I have pain and some bone loss -CT is abdomen so different area I presume - whole thing feels so disjointed which is not helping .
Thank you Rubycat - that cat def looks a bit like how I feel at the moment !!! My back has decided to go into spasm to make life just that bit more of a challenge - God knows how I will manage a scan with my back spasming !!
Hello Jill,
Big hug ? to you. Sorry to hear the back and leg issues are continuing. I can empathise with that.
If you are not confident in the scans you are having then go back to breast clinic and negotiate the bone scan as the nurse did say that is what they would do (not clear - why didn’t they refer anyway - was it due to the other 2 scans being arranged?).
Mind you at least with MRI, there are no injected dyes etc and it can pick things up well before they develop.
If it’s any consolation, I am waiting for a MRI appointment too for the ongoing back/hip/leg issue. How things drag on…
Anyway, whatever scan you have, I hope it all works out ok and you get to the bottom of things and resolve tge pain and discomfort.
All the best Jill, Chick ?
I think the Breast nurse saw my horror when she mentioned a 3rd scan - she knows I suffer from anxiety and having scans is right up at the top of my list of things I will find difficult to do - my head was in a bit of a mess as I had just spent 1.5 hours at the fracture clinic and been told that the bone thinning could possibly be something concerning .
Hello Jill,
Sending another ? as below. Last thing you need is more stress and anxiety. The good thing is that things are being looked into. Have you got dates for your scans yet? Hope the back spasms have stopped.
?
Hi Chick - not had appointments yet for scans - he thought would be within 2 weeks -have another appt at fracture clinic week on Monday but I’m doubtful they will have the results by then .Have taken high doses of ibuprofen and that has helped with back spasms - improved but not gone .Paun my legs driving me mad- strong painkillers help but make me so sleepy can’t then do anything else 
Good Morning Jill,
Hope Fracture Clinic appointment goes well today. X ?
Hi Chick - it’s next Monday not today - haven’t even had appointments for scans yet - thank you for thinking about me !!!
Hello Jill,
How are you doing? Did you get any clarity from your appointment. Wishong you well x ?
Hi Chick they didn’t manage to get my scans booked before Monday so the appointment has been re-arranged for next Monday I had MRI on Tuesday and have CT Saturday .Have you made any progress with your leg ?
Hello Jill,
That is brill that you have had the MRI and the CT is booked for Sat. Hopefully you will be feeling that you are getting to the bottom of things although that may also be a scary place to be as well? I really wish you well and that you get it sorted out. I hope the pain has settled down.
There will be a limit to my ability to manage anything else on top of the existing, should it strike. Had to go to Out of Hour Docs at weekend as could hardly walk. Had to crawl on all fours to the bathroom. Had been in mega pain for some days. Was doing fine managing things before that with dihydrocodeine every so often, not even every day. Now in pain 24/7-the milder ones I can sort of cope with but when the “waves” hit ?.
Never mind - still trying to be active and have to walk even though it really hurts at times. Hopefully getting MRI end August. I checked this week to make sure I had been referred as the “Special Services” person said she would but only after I started talking about going private. I keep wondering now if something was missed off the previous bone scan or that it did not detect spread to spine. I just want to be certain one way or the other.
The frustrating thing is that had they accepted me for physio in June when I first tried to make self referral after going to GP, then perhaps I would not be in this dire predicament now. This is one of those occasions where having a cancer diagnoses delays treatment - and you just get offered bundles of pain killers - Yes - that really solves things.
Fingers crossed for both of us x ?
That sounds miserable - have you asked to try any different types of painkillers like Gabepentin - people have told me they can be really helpful if the pain is nerve related which it could be if you have any sort of pressure /inflammation of spine .I have dihydracodeine - they help with pain but make me incapable of doing anything else but sleep .I think it’s highly unlikely the nuclear bone scan would miss bone issues so I don’t think you should worry about that .It just seems to take forever to get anywhere near being able to put some treatment in place that may help with the pain and restricted mobility - for me this has been going on since May .???we both get some relief soon .
Oh Jill - what a bleeding pair!! You since May, me since March. I got prescription NSAIDs and also Gabepentin from out of hours doc. However sticking to the dihydro, NSAIDS and paracets for now. The other stuff scares me. Would have hoped to ve back at yoga, swimming, weights and classes months ago. Oh well just going to have to go with the flow. ?
I know what you mean re other painkillers I would rather not take them either but sometimes needs must .I have 2 friends who take Gabepentin it takes a couple of days to work and can make you sleepy but does really seem to help them .Very frustrating when you have been active person isn’t it
Thank you Jencat - I have appt Monday but not optimistic that I will get results - will
prob build myself up and then be told come back in a week
Hello Jencat ,unfortunately no further forward - full report wasn’t back from MRI so Consultant went to talk to radiologist and look at the MRI -the jury is out - it could be bone mets and it is still the most likely explanation he said but they can’t say for sure from the MRI - need nuclear bone scan - CT was clear so looks like it isn’t anywhere else .bone scan then further appointment in 3 weeks -more anxious waiting .Shattered after building up to today’s appointment .
HelloJill,
Just seen your latest update. I was really hoping that there would be some sort of resolution for you today nor more blInking waiting and… waiting. As Jencat says good news re CT and fingers crossed bone scan will be the same. Yes I would be shattered too - from the never ending roller coaster. I do hope you have got something indulgent and enjoyable planned to distract you at least a little bit from all the c**p. X ?
Hi ladies hope you don’t mind me joining this thread i am at my GP this Wed for the results of a spine Mri comprising of spine cervical spine and thoracic spine, had a nuclear bone scan in jan for some back and hip symptoms it was clear just showing some arthritis in my foot and hip, i have however been in alot of pain in neck and middle of my shoulder blades with tingling sensatios and muscle spasms in hand arms and legs, and some sciatica type symptoms the gp was fab ordered a mri which i had 2 weks ago i know thr results are in as had a call last eek to book an appointment to discuss results secretary said not to worry, trouble is since my scan the pain has got worse stupidly i carried some heavy shopping bags home as couldn’t get in touch wuth my lift from shops and im hoping if there is something going on i haven’t made it worse!!! The pain is excruciating at times going right to the base of my head and its a burning type of pain i can also feel and hear a crunching type noise with certain neck movements ?
In 2005 i had a cervical spine fusion following an accident so it could be something to do with that but the bone mets thing also worries me, how would we know what the symptoms are i think its frustrating that many of us get passed from pillar to post i have been too worried to contact my onc so soon after finishing treatment (Jan) as he knows i had some anxiety issues after diagnosis and treatment so went the gp route instead in the hope its just an old injury coming back to haunt me
Jill i really do hope you are feeling OK after everything you have experienced in the last few weeks and agree that having it all dealt with by one team should make it less stressful for you im keeping everything crossed for you and sending you a virtual hug
Chick i see you are also having an Mri it seems to be quite a common thing after bc reading on this forum that many of us are experiencing unexpected joint/ bone/ rib pain i know im not on any hormone therapy as i was TN and i know a lot of the time this problems are blamed on the meds so i wonder for those of us who aren’t i wonder what the cause is??? All i know is i have never been in this much pain till now!!!
Hi Mishy - you are welcome to join us .It’s so stressful waiting on these appointments / scans isn’t it .The fact that you had a nuclear bone scan in Jan is a good sign surely ? I wish I had had that scan first rather than all this messing around but GP
didn’t think the report from the X-ray suggested it was suspicious but turns out the orthopaedic doctors do as they are struggling to find another explanation .Will keep everything crossed for you tomorrow .xx
Hello Mishy,
You join in whenever - how I wish none of us felt the need to be here. Hope you get some answers and relief soon. Good luck with your forthcoming appointment.
I went the Onco route first but then after the bone scan (and I am certainly not complaining that they said it was clear), no one interested so then it was a long winded journey via GP and only getting an MRI booked due to my “dog with a bone attitude”.
Now I am at the stage where I have borrowed a walking stick and crawl on the floor after getting out of bed as too painful to put weight on right side. This has just got worse recently.
I was hardly taking any painkillers and now I am on the verge of running out of my regular ones as I only packed so much. It is turning into a fiasco trying to get extra supply as away from home. It shouldn’t be but it is bleeding turning out that way.
I was verging on tears of frustration today. It is bad enough with being physically limited, in pain and trying not to let it bring me down without goung round the houses due to admin matters.
If I don’t get an extra script sorted today then I will wait until end of office hours and go the duty doc route because I will not be messing around with this again tomorrow!!
Looking forward to a ? ? ? meal tonight with family members - am determined not to let this bring me right down.
Love and best wishes to all ? x