I think it just means the others are more urgent and in hospital - same happened to me when I broke my ankle - that time I was in hospital - got told 4 days running I was going to theatre but didn’t .
Not happening tomorrow am now ,could be tomorrow pm but I’m not holding my breath - it’s becoming like pschological
torture now as nothing else can progress until it happens .
??? i would switch off from it Jill if you can till they ring so you can wind down a little some lavender on your pillow i do that when i feel stressed xxxx
Hello all,
Yes Jill - psychological and physical torture. Hope you can have got some good distractions to take your mind off it. Unfortunately, I have no wisdom to offer.
I am feeling like the pits. it has been an absolute rubbish week. I don’t know how much longer I can deal with this continuous pain. I wish it would stop just for a little bit. I felt so spaced early in the week that I stopped the Gabapentin. Oh goodness, on Thursday I could not stop crying and just kept telling myself it was the pills. I then stopped taking the rest of the cocktail. It was not really making a difference to the pain now and god knows what damage they were doing inside. I lost 4 pounds in weight since stopping these past few days even though eating and drinking. I have been going around feeling like I am still stoned.My emotions are running high at times and I have been getting a bit hot and clammy, I have taken a couple of paracetamols. The only release I get is if I manage to fall asleep.
I got 3 more piddly physio exercises on Friday. Well too little too late. And the only thing GPs can do is fill you up with more or higher dosage drugs. To top it all, I noticed my mastectomy area feeling more tight and sore than usual and a puffed up area that I don’t think was there before. A BCN checked it Friday afternoon and after discussion with doctor, arranged an appointment for Monday morning clinic when they would have the utlrasound available to do a scan. I am hoping it is just something to do with how I have had to lie on my left side due to the leg and foot pain.
Best wishes
chick X
Chick that siunds like you have definitely had a ? time i too stopped my meds as i was feeling like i was away with the mixer and as you say still in pain i now am just taking it when i really can’t stand it any more and don’t feel worse than when i had everything its terrible what they have been doing with you Jill really not fair that is definitely evidence of the cut backs isn’t it hopefully it will be resolved next week i hope im ik for Scotland next Friday i don’t want to cancel as i won’t get money back and was really looking forward to it but hope im not going to regret going either i know its only 4 days
Oh to be young and carefree and be a risk taker not bloody now!!
Well im gkung to have some hot milk some lavender and chamomile onmy pillow and my sleepy cream from lush on so hopefully it will knock me out!! I know it sounds daft but i find watching gardeners world really relaxes and helps me destress there is something about Monty Dons voice too i could listen to him reading i swear they should pescribe that show on the NHS instead of all those tablets that dont even work!!!
Should have added there that i was watching gw on catch up incase you all thought i was weirdly going off tangent there ?
Oh ,Chick what a miserable time you are having - being in constant pain is soul destroying .My back has gone from painful to excruciating over the past couple of days and like you say even the max dose of strong painkillers doesn’t seem to have much impact apart from to turn me into a zombie .I think it must nerve pain which would seem to be the most difficult to get on top of unless you can get to the bottom of the cause.Where are you up to with your investigations ?
Good luck tomorrow Chick - have you tried CBD oil for pain ? I tried it for anxiety and found it helpful - I think you need to be careful that it doesn’t interact with any other medications you are taking but worth a try ?
Jill pleased the CBD oil has worked for you
Chick i hope everything goes well for you at your appointment tomorrow i don’t think that feeling will ever go away no matter how much time has passed i broke down in tears at my mammo which was my 1st time back at the breast clinic i will keep everything crossed for you
Lije the sound of the chilli cream i wouldn’t mind some of that
Jill i hope you get your appointment this week preferably tomorrow have you rang your onc team and out them in the picture Jill i remember when i was worried about some skin changes on my breast i rang my onc i had just had mammo and he had a cheeky look to see it was ok its just a thought but i thought thats probably what yours would do re your scans im quite forward like that as things can niggle away with me and i like reassuring!!
Hi Chick ,had op postponed 5 times so far ! They now want me to go in tomorrow afternoon and stay overnight with view to have op Thursday - great -sitting around on hospital bed waiting in pain and no sleep .Rang GP yesterday as I was getting desperate with the pain - ended up having a weep about all that was going on - he was lovely and even got the painkillers delivered .GP had nuclear bone scan report and it looks like they are working in the premise I have bone mets and would be surprised at any different outcome .Just wish I could get on with some treatment now .
Hello Chick good to hear from you and yesterday went well what a relief for you after a very long day, im pleased to hear you are also doing better without all the meds its quite sunny today still cold but hopefully it will stay like this for Friday looking forward to Scotland
Jill i hope you are ok any news on op or have you already had it?
Ih Jill just saw your post sorry you are having a rotten time im pleased your gp has been so good with you i really feel for you atm i really do, im sorry to hear it’s looking like it could be mets i was really hoping the outcome could be different for you but am i right in thinking this needs confirmation from a specialist i do wish they would get their fingers out and get you on a treatment plan if that is what it is can the gp contact your oncologist
?? for you xx
Thank you Jencat .
Hi Jill hope you are feeling a little better today after your rubbish last few days i hope the pain isn’t as bad for you today x
Chick hi are you still ok doing the less drugs i am going on the CBD oil next week fingers are really numb strange feeling i can move them normally just can’t seem to do anything wjth them even holding a knife and fork is a challenge as i keep dropping them gave up trying to read a magazine as i can’t turn the pages ? i wonder how much of it is neuropathy left over from chemo maybe ? i only had 1 and a half doxetaxol as i was allergic but i had a couple of Abraham which apparently can cause it too!!! Other than neck pain no new symptoms touch wood it stays like this till i have my scans and see surgeon i really don’t want an emergency situation scenario i don’t think mentally i could cope!!!
Hi Mishy ,your symptoms sound very scary and debilitating - I hope you get a date to get it sorted in a planned way rather than emergency - scary stuff .Had another aborted hospital admission today - was supposed to go this pm - didn’t .Tomorrow at 11 is next date to be cancelled …
Im getting used to it Jill trying not to think about it its not getting worse at any speed if that makes sense i bet you are fuming with the hospital its getting beyond a joke keep cancelling on you will keep fingers crossed you get to keep tomorrow app x
???- if you don’t hear from me for a couple of days presume they have actually let me through the front door !!!
In admissions unit waiting -MRI of spine through up multiple issues - some suspicious others that need dealing with but not suspicious - including a problem with my neck which may be cause of some of my leg weakness /arm symptoms -eek !!!
Just gets better and better …
Oh ? yes Jill neck problems can cause pain in legs, flippin heck i bet you are getting really fed up i was shocked when i got my mri too my lower back things were nothing to be concerned about bjt i wasn’t expecting what did show up try not to freak out over Jill like i did xx