Hi all, Im new to this forum so pleased to meet you all, I have completed all my treatment surgery, 6 chemo, then axillary clearance, 15 radiotherapy.
Now on Letrozole, have been told that post chemo I had 13 positive lymph nodes, I had a Ki of 60%. HER2 pos.
Im 53 going through lots of anguish I’m swinging between get on with it and wait and see and then choosing songs for my own funeral.
Im not depressed i just tend to work my way through it but i dont really have anyone to talk through these worries as I know my oncologist cannot be any more definite than ‘‘high risk’’,
Is there anyone else out there with a similair medical scenario who can offer some info.
I am sure you will find shared experiences and support here from others who understand how you are feeling, our helpliners are also on hand 9-5 weekdays and 10-2 Saturdays on 0808 800 6000 so please feel free to call to talk your concerns through with one of our team
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Hi farawaytree. My experience was very similar except I only had 1 positive node & they were all removed prior to chemo. I am 54 and finished all hospital treatment in November & most of my friends think I should be back to ‘normal’ but things are not that easy. For the best part of a year you go through the mill with different hospital appointments, which then just stop. Then your head has to process what your body has been through and each day is different, one day up, the next down. I am going a walk as often as I can, have just been for my first yoga experience ( wish I had found it sooner). I am shortly going on both the ‘Movong Forward’ and a course run by my local hospital to assist with exercises and coming to terms with everything that has happened (similar type of thing but as me head is all over the place am quite prepared to try anything and everything on offer). My best friend does not appreciate what I have been through so as I can’t talk to her (which I would normally), I have been referred to a counsellor. This is really because I am due to return to work on a phased return but thinking about it too much so can’t sleep & don’t want to take anti depressants as am taking too many already, Letrozole, Alendronic acid & Vit D3 for the osteopenia.
On the plus side my hair is growing and though not going without a hat outside, I am tempted to go without a wig tonight when I go out.
I didn’t like the prosthesis much because it is very heavy but last week went for a proper mastectomy bra to be fitted and straight away it felt a lot better.
I have had a mixture of up and down days and try to stay positive and whilst some friends have been there all the time, some have drifted away probably thinking that now treatment has finished I will be ok.
I do try to get out as much as possible and whilst it may be the last thing on your mind, sometimes a short walk can help.
The road to recovery can be a long one apparently but with time, patience and their forum I’m sure we will get there.
Wishing you all the best.xxx
Hi I was dx 2.5 years ago and modes clear and had delayed reconstruct 6 m ago. But had scan last Monday showing suspicious nodes after feeling lump under arm. They took biopsy. Get results on wed but so scared. Have CT booked too for next Mondsy. I am 49, nearly 50. Yes I’ve got the songs and music done too!