I’ve tried the old and new versions of predict. With the same info, the old version says I have a 5% benefit for chemo and even more with tamoxifen, making it go from 82% alive in 10 years to 94%. With new version, I may as well not bother with any treatment other than surgery as it says 94% survival without anything extra. My dr says I will need probably need chemo as nodes are involved. Of course, Predict is just modelling software and the dr takes much more into account, but I am now hopeful for no chemo. So confused.
Hi @bluesatsuma could you sit with your doctor and go through the Predict model together? - in truth, that is the recommendation from the NHS anyway. That way he or she would be able to address your questions directly. Whilst it is good news that you have better outcomes according to the tool, we have to bear in mind that this is just averaged data from tens of thousands of individual stories. Fingers crossed that you get some clarity and a good outcome.
I had a chat with my consultant today about this because of people talking about Oncotype scores on here and I wondered why I didn’t know about this.
She said that since I had node involvement from Day 1 and am ER 8/8 HER2 -ve and Grade 2, chemo was going ahead no matter what. She said that if it was in the breast only and Grade 2/3, she would have done Oncotype to decide whether the risks outweighed the benefits but node involvement automatically means it could have spread so chemo goes ahead.
She is ex-Royal Marsden and Oncology Lead for the SW of England so well qualified.
I will also have radiotherapy from clavicular fossa and into armpit having had full mastectomy and node clearance and 6 rounds of ECT.
So far so good and going well despite node involvement. X
Hi bluesatsuma,
Thanks for posting.
It’s understandable that you feel confused, having had different outcomes from the different versions of the predict tool.
NHS Predict is used to estimate what benefit might be expected from treatments such as chemotherapy or hormone therapy. This programme uses individual information about the person and their breast cancer alongside data from large research studies. The new version has been updated to use more recent data.
As @Tigress has said, it is important to discuss these results with your oncologist so they can help you understand them, and why there is a difference in the results. As you say, the treatment team take lots of factors into account when deciding if you are offered chemotherapy treatment, including the grade, size and stage of the cancer.
It can be a difficult time waiting to know what treatments may be recommended, you may find it helpful to call your breast care nurse to talk through your concerns.
We offer a range of free supportive services for anyone who has had a diagnosis of breast cancer which you may be interested in. They include face to face and online courses and events. For more details about all of these services, please see the information on the link.
Do call our helpline if you would like to talk this through or have any further questions. The helpline team have time to listen, talk things through and signpost you to more support and information if necessary. Your call will be confidential, and the number is free from UK landlines and all mobile networks. The number is 0808 800 6000, (Relay UK -prefix 18001).
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Best wishes
Cassie
Breast Care Nurse
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